night time bathroom trips

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Charmin
Regular Member


Date Joined Feb 2008
Total Posts : 53
   Posted 2/19/2008 2:33 PM (GMT -6)   
Hi everyone,
I was just diagnosed with UC for the first time last month - had symptoms since Oct 2007.  Needless to say I am more than freaking out.  I have not even seen a specialist yet because no appoinments were available (with a highly recommended physician) until next month. I have read many of your comments and totally appreciate all of them, but I see people mentioning morning problems or problems after certain types of food.  Quit honestly I have "problems" all of the time that seem to be only getting worse.
The cramping is insane, I can visit a bathroom up to 20 times a day, I have no ideas why I'm not anemic (maybe I am), but what scares me to death is the fact that I wake up at least every two hours to use the bathroom (sometimes it is almost violent).  Does any one have a similar problem or does anyone know the significance of this?? 
I'm sure I have a lot to learn.
 

JerryGarcia
Regular Member


Date Joined Feb 2008
Total Posts : 68
   Posted 2/19/2008 2:49 PM (GMT -6)   
Hi Charmin,

I'm new here and have only had UC for just over a year but your symptoms seem pretty normal. I presume your flaring at the moment as you haven't seen a specialist? Are you on any meds?

When I was first diagnosed I was given a course of Pred (steroids) and that cleared things up (for a year anyway).

It's a good idea to eat bland food if your flaring badly (nothing spicy and to flavorsome) and try and avoid too much alcohol if you can. The night time toilet visits are somewhat normal, these will ease up as soon as you take some meds.

It gets easier when you get used to your symptoms but I really would recommend seeing a GI as soon as possible. Have you had a colonoscopy?

Good luck :-)
DX with UC Jan 07
Currently taking Colazide (allergic to Asacol and Pentasa) 6 a day
Also taking VSL3 X1 a day


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 2/19/2008 2:54 PM (GMT -6)   
Hi Charmin,
 
When someone's having a moderate to severe flare, waking up at night is common - at least it was for me, as I was getting up several times at night.  I didn't find out that I was severely anaemic till I had a blood test done. 
 
From what I know, simply put, the significance of getting up at night is that you have severe inflammation and any slight irritation or activity in the intestine triggers the immediate urge to have a BM.
 
Can you not request an appointment with another physician or get them to see this as an emergency?  I would not hold off till next month to see a physician as it'll just prolong your suffering.  I was in a similar position and realize now that I should have addressed things aggressively a lot sooner.
 
All the best and hope you get this addressed by a specialist soon.
 
Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone taper from 60mg - Now on alternate days of 20mg and 10mg; 2/08: added 1 Pentasa x 1mg.


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/19/2008 3:03 PM (GMT -6)   
are you on meds right now? it sounds like you are flaring....
Pharmacy Student, Midwestern University
Class of 2009
 
I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.
 
If you have any questions about medications/drugs, feel free to contact me here privately.  I will attempt to answer them ASAP.
 
3200 mg Asacol
 
HAVE YOU CONSIDERED THE SCD DIET?  IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!


Charmin
Regular Member


Date Joined Feb 2008
Total Posts : 53
   Posted 2/19/2008 4:20 PM (GMT -6)   
I really can't thank you all enough for your responses.  Besides going through all of the emotions that comes with this condition I have very little information about it.  Each day I was hoping to get better and just wait it out for the appointment I have next month.  UC in google doesn't really address "flare ups".  I honestly thought maybe my current state would be the state I would be in for a really long time.  Besides I didn't like some web sites because they seemed like ads for the pharmeceutical industry.
 
Here is a little more about me.  Symptoms started in Oct. 08 (otherwise totally healthy on no medication for anything).  Saw a general practitioner in Dec. and had a colonoscopy first week in Jan.  General practitioner gave me mesalamine suppositories 500 mg two times a day, but  I was 100% unable to retain morning dose and night time dose lasted one hour at best.  Stopped taking. Myabe had a total of 10 night time doses. They also made me feel nauseated and bloated (or was that just the UC?).  All along my symptoms are/were getting worse/ or changing??   Blood test for anemia in December was in the normal range (but I was nothing like I am now).
 
Because of your advice I plan to get my appointment sooner - no matter what it takes.
 
Also please know that I have never used one of these forums before so I don't mean to ramble on so much.  Last question for now -- is a "flare up" also associated with great urgency whenever there is anything resembling a formed BM  in my colon (ever the smallest?).  And great amounts of blood to boot. 
 
Thank you all again!

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 2/19/2008 4:20 PM (GMT -6)   
Night time trips are an indication of more severe flaring. They are perhaps some of the most disruptive bathroom trips as well - how is your body supposed to heal when it can't sleep!?!?!? My first flare was plagued with night time explosions. Heaven forbid I moved in my sleep!

I would strongly suggest calling the doctor's office and stressing your symptoms, getting put on a cancellation list, and having them give you some recommendations.

One thing that got me a couple of extra hours of sleep was taking Tylenol before bed. (Remember no NSAIDs!) If the pain is more than Tylenol will handle, an rx for Darvocet from your PCP may be in order.

Best of luck! Oh - and Welcome to HW! Glad to have you, but sorry you had to find us...
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 2/19/2008 5:08 PM (GMT -6)   
I was waking up every 20 min. to use the bathroom for a while around the time I was diagnosed. I wasn't anemic either even though I was losing lots and lots of blood. Your symptoms sound pretty normal for a moderate to severe flare. Yes, urgency and bleeding are also common symptoms of flare-ups. Sometimes the urgency comes even when there isn't any stool to pass, just blood and/or mucous. Did the doctor who did your scope tell you how much of your colon was inflamed?

I think it's good that you're going to try to get in to see a specialist sooner. Welcome to the forum and feel free to ask as many questions as you want. There are some really great people here with lots of experience and information. Hang in there.
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D)


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 2/19/2008 5:17 PM (GMT -6)   
I'm going through the same at the minute with the night-time trips to the loo.But at the minute i am still passing some formed bms.I too have the urgency to run to the loo only for nothing to happen or just a little blood or mucous.
We are glad you came here to HW, Feel free to ask us anything that is bothering you.Believe me we've all went through the same experiences, its good to share.
Welcome to Hw
Marty
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/19/2008 9:04 PM (GMT -6)   
when i was flaring 4 weeks ago, i was going to the bathroom every 2 hours at night. i didn't sleep well for a whole month. so it is an active indication that you are flaring. it sounds like you may need some prednisone to get you into remission.

can i ask what you diet is as well? it could be contributing to the inflammation.
Pharmacy Student, Midwestern University
Class of 2009
 
I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.
 
If you have any questions about medications/drugs, feel free to contact me here privately.  I will attempt to answer them ASAP.
 
3200 mg Asacol
 
HAVE YOU CONSIDERED THE SCD DIET?  IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 2/19/2008 9:56 PM (GMT -6)   
blueclassring,
 
Great to see that you're studying pharmacy. We need more people like you who seem to have a genuine interest in the well-being of others.
 
However, I wouldn't jump the gun with respect to Charmin trying prednisone.  There's a variety of other meds to try before even thinking of taking prednisone - especially as Charmin is yet to see a specialist and has only tried a short treatment of mesalamine suppositories so far.
Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone taper from 60mg - Now on alternate days of 20mg and 10mg; 2/08: added 1 Pentasa x 1mg.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/20/2008 11:43 AM (GMT -6)   
Charmin, I had that too, it is horrible. I was able to get the flare under control w/some enemas. Please contact your Dr. again and tell them how bad you are right now they should really get you in. Before I was first diagnosed they told me I had to wait 3 months, but I was losing toilet bowls full of blood, I was like I don't even think I can make it 3 months. Going 20 times a day they should get you in asap.
Beth, 32
Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday.  Potassium 100mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


Charmin
Regular Member


Date Joined Feb 2008
Total Posts : 53
   Posted 2/20/2008 1:03 PM (GMT -6)   
Hi everyone (Charmin here).  I'm actually sorry I picked that name, but at the time I thought it was slighly funny.  However I'm quickly learning this is no joking matter. For those of you following this I managed to get an appointment with a highly specialized doc. later today.  The same one I was hoping to see in mid - March.  He has already asked me to bring a stool specimen (goodness that was no problem!) and has scheduled me for another colonoscopy tomorrow. All I really wanted was some medicine to get me through one night (I was up every hour last night- with handsdown the worst pain I have ever encountered).  Looks like I'm on the right path thanks to this forum!!

Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 2/20/2008 1:21 PM (GMT -6)   

It's great that you managed to get an appointment so soon!  Charmin's not a bad name, but it's never too late to change - as long as you don't change it then to Charmin Ultra, or even Angel Soft (hey, you were asking for it).  Honestly though, it's good to keep a sense of humor about everything, no matter how bad things may be.  We're all in the same boat and can relate to where you're coming from.

Good luck with the appointment and the colonoscopy.


Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone taper from 60mg - Now on alternate days of 20mg and 10mg; 2/08: added 1 Pentasa x 1mg.


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 2/20/2008 1:30 PM (GMT -6)   
So glad to hear you got in so quickly! The scope prep cleans you out so well that you should feel good for a couple of hours. Then hopefully you'll have some meds to get you on the path to remission.

Let us know what you find out!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 2/20/2008 1:49 PM (GMT -6)   
Charmin, I'd highly recommend you read everything about UC, inflammatory bowel disease and general digestive health you can get your hands on. It's up to you to educate yourself on your condition and your treatment options. In my experience, gastro docs are not the best educational source of unbiased information. Some books I've found very helpful are The First Year: Crohn's and Ulcerative Colitis - An Essential Guide for the Newly Diagnosed, Optimal Digestion, Listen to Your Gut, and Colitis and Me: A Story of Recovery.
 
Frequent bathroom trips throughout the day and night are not uncommon for a bad flare, but you should be able to get this under control with your doctor's help. Supplementing with l-glutamine may help reduce your frequency.


Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/20/2008 2:29 PM (GMT -6)   
usually the next course of tx for uc sufferers at this stage is prednisone.

first 5-asa drugs, then steroids, then imuran or 6-mp, then remicade or cyclosporine, then surgery.

Mod Note:

[I have modified your signature to remove the request to contact you.  We do not allow dispensing or soliciting of professional advice on the forums.]

Post Edited By Moderator (Admin) : 2/21/2008 9:43:40 AM (GMT-7)


UC Wife in MD
Regular Member


Date Joined Aug 2007
Total Posts : 63
   Posted 2/20/2008 2:37 PM (GMT -6)   

Charmin,

You may want to write down what you are eating as well and see if you get worse after some foods.  My husband has had UC for 8 years and he found he can not eat anything with any dairy in it.  Even traces of milk, whey, lactose will make him really ill and he never had a problem with milk before.  Tomato products also hit him hard.


Ambrosia
New Member


Date Joined Feb 2008
Total Posts : 13
   Posted 2/20/2008 6:04 PM (GMT -6)   
I have found that does does play a huge role. I can't drink coffee at all, usually can't drink tea, nothing fried, no salt, and DEFINITELY no garlic. I guess perhaps we are all different - i'm still trying to figure this out. I also think citris fruit is suspect. :)
33 year old female - diagnosed with UC 7 years ago. Misdiagnosed since i was 19.
 
Current treatment:
Colazal 3 tablets 3x/day
Remicade
 
In the past I have tried Rowasa (no response), and have been on Prednisone for up to a year at a time. I have been flaring for over a year and started Remicade in October, 2007.

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