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barry
New Member


Date Joined Feb 2008
Total Posts : 2
   Posted 2/19/2008 8:50 PM (GMT -6)   
about 15 months ago, I had terrible symptoms and was told I had to take 6MP to  survive. I went to a Herbologist/accupuncturist. I started to get better within a week. I had no dairy, wheat, raw vegetables or fruit, nuts or alcohal. I took herbs specially prescribed for me, and did acupuncture two times a week for 6 months. Now I still take herbs every day. I go to acupuncture every other week and have gradually added most foods back into my diet.  Getback to me if you want more info.

blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/19/2008 8:54 PM (GMT -6)   
i do believe in alternative treatments and i am a pharmacy student(future pharmacy).  i'm on the scd diet and on lactobacillus acidophilus tablets.  i'm on my way to remission. 
Pharmacy Student, Midwestern University
Class of 2009
 
I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.
 
If you have any questions about medications/drugs, feel free to contact me here privately.  I will attempt to answer them ASAP.
 
3200 mg Asacol
 
HAVE YOU CONSIDERED THE SCD DIET?  IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!


relativelyquantum
Regular Member


Date Joined Sep 2007
Total Posts : 196
   Posted 2/20/2008 3:46 PM (GMT -6)   
barry, what herbs were you taking? I'm trying some now.
Pancolitis '04
Yet to ever go into remission, additional Flare-up since Aug 12th
Time off work since 10/17.  Returned to work on 1/11 and doing much better.
 
On Lialda (2/dy), Probiotics, Fish Oil, Folic Acid, Alpha Lipoic Acid, Borage Oil, Iron


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 2/20/2008 4:34 PM (GMT -6)   
Way interested. I have been thinking of going to an acupuncturist for months, but don't really know of any good ones around here. And no-one that I know uses one either. They are into chiropractic care. Let me know how you found your herbalist/acupuncture person, and abut how much does it cost for the treatments and the herbal supplements?
diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female


barry
New Member


Date Joined Feb 2008
Total Posts : 2
   Posted 2/20/2008 5:24 PM (GMT -6)   
The scupincturist was found through a friend of a friend, but there are several acupuncturists and herbalist here in Fairfield County Connecticut. It costs $75.00 per session and the herbs cost about $80.00 every few weeks. It's been worth it. I have been on NO meds for 15 months and feel great! the herbs are a specific precription just for me but I will give the ingredients if it will help.


Phellodendri Cortex Bark 373mg
Bupleuri Radix Root 373mg
Poriae Cocc ;Sclerotum Sclerotum 371mg
Angelicae Sinensis Radix Root 371mg
Pulsatillae chinensis radix Root 371mg
Paeoriae Lactiflorae Radix Root 371mg
Atractylodis Macrocephalae Stem 281mg
Spatholobus Sunerectus Vine and Root 273mg
Astragali Radix Root 279mg
Ledabounella Sesloidis Radix Root 279mg
Proprietary Mixture 654mg

I also take a mutiproniotic 2 times a day.
Herbologist will talk to you on the phone...203-461-8463.

TalktomeHIV
Veteran Member


Date Joined Jun 2007
Total Posts : 1539
   Posted 2/20/2008 6:01 PM (GMT -6)   
There are some wonderful herbal remedies available for various conditions, but I'd just like to remind everyone that it's generally not a good idea to embark on taking all sorts of herbal supplements without consulting a doctor and/or nutritionist first, since many herbal supplements can have similar effects to medications, and in some cases, can have bad interactions with meds you may be taking.

Always consult a doctor first. They may not believe in the effectiveness of some or all herbal supplements, but they can at least let you know if there is any risk of interaction or negative effects.
HealingWell.com HIV/AIDS Forum Moderator
HIV Hotline Counselor


quincy
Elite Member


Date Joined May 2003
Total Posts : 30828
   Posted 2/20/2008 6:45 PM (GMT -6)   
It's a misconception that herbs aren't medicine....most of our mainstream meds are derived from herbs.

Herbs are medicine....they are prescribed and people take them for medicinal effect.

quincy


*Heather*Status: mini flare Dec 28... tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


new to the game
New Member


Date Joined Feb 2008
Total Posts : 8
   Posted 2/21/2008 9:05 AM (GMT -6)   
Barry I've very interested in who you are seeing in CT. I have family there and would be willing to travel and see a good dr. I'm not looking forward to being put on any rx meds if possible. I have an appt with the gastro dr today!

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 3/22/2008 9:34 PM (GMT -6)   
So, does acupuncture actually work? I've been thinking about trying it, but my PCP said she didn't know if it had any benefits.

Sherman Tank
Regular Member


Date Joined Jan 2008
Total Posts : 34
   Posted 3/23/2008 10:46 AM (GMT -6)   
I've had some luck with both herbs and acupuncture- but I've found it to be fairly common knowledge that its the herbs, not the acupuncture, that make the difference. The nice thing about acupuncture is it calms the system- deals with the patient on a psychological level. But it won't 'cure' your colitis or even stop a flare up. I saw a great acupuncturist for a couple years before I found that out.
Diagnosed proctosigmoiditis/ UC 2004
Misdiagnosed with just Hemeroids since I was 12!!
Bad flare after birth of first son in 2004,
another bad flare pregnant with 2nd baby summer 2006
recent reallly bad flare Dec 2007- 1st time w/ prednisone
Just tapered off Jan 20,2008, Flaring again today :(
Asacol for last 4 years 3pills 2X's, ROWASA as needed up to 3X's a day,
now just Asacol 3X's a day, probiotics 2X's, fish oil
Tryed-acupuncture, herbal remedies


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 3/23/2008 3:14 PM (GMT -6)   
Some years ago, a talented acupuncturist got me into remission in 3 weeks. I had been ready to check myself into a hospital I was so bad. I stayed in remission with regular acupuncture for 10 months. It was amazing! I took no drugs during that time. And no herbs. After missing some appointments, I flared and the acupuncture stopped helping. I've not had the same "miracle" response to it since. I've heard that it can be like that for some people -- that the first course of treatment is very helpful but if you stop going and relapse, it's harder to get it back under control.

The trick is finding a good acupuncturist. I saw one in NYC who was a total quack -- he had about 6 patients at a time in different rooms and he'd run back and forth adjusting the needles. He even left a needle in my accidentally that I noticed when I went to get dressed.
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)

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