Hi Severin and Paul - Its interesting to hear your stories on Abatacept.
I see you both went to the open label part of the study quite quickly. Did you have to go through another scope to get there? I think the stage 2 of the trial is more tricky - as you have a 50% chance of placebo compared to stage 1 which is only 30%.
Also - did your counts detoriate? On remicade, my WBC dropped so low, they kept me in hospital until it improved. I asked the trial Dr about this, and he said if that happened on the trial I would be taken off!
Well, this is my 2nd day after the infusion. Its very early days but I do feel a little better. Normally, I cant turn sides while sleeping without running to the bathroom but now I can. And my morning BM today was formed and no blood.
But, like you say, my symptoms also differ greatly from day to day. So, I will see how I am for the next few days before I know for sure. My back still hurts - it began hurting right after the infusion, and hasn't stopped since.
Back on Pred - 7mg - Steroid Dependent :-(
EPA Fish Oils, Various Homeopathic meds
Asacol x 9, Lialda (Mezavant)
Remicade every 8 weeks (Stopped working)
Aloe Vera Lily of the Desert Juice Gave me the worst D !
Primadophilus Reuteri Probiotic