I most certainly agree with the idea of feeling nervous when you're in a remission. You want to keep on feeling good for the rest of your life, but you know that this is unlikely to happen. Lame as it sounds, my best advice is simply to enjoy it while the feeling lasts. Let's face it, having to live with UC sucks...it makes it difficult to plan for the future, and it causes anyone who is not completely ignorant about
their condition some anxiety when they start to look down the road. Offsetting this, it also gives us a much greater appreciation for every day that we get when we do feel "normal". You can't spend the rest of your life longing for the days before you were diagnosed with UC, wishing that this would all just go away. What you can do, is not let this disease define who you are as a person, and take advantage of every opportunity you get to enjoy your life.
Now maybe I can bring a little bit of hope to everyone with UC who's worrying that perhaps they will one day need to have their colon removed. My father was diagnosed with UC when he was 14, and he battled with pancolitis for 35 years. A large portion of those years were spent in painful, debilhatating flares. Through a combination of the pain and suffering caused by the disease, and the side-effects of the medications he was taking (particularly the prednisone) he became a very angry, unpredictable, and generally unhappy man. Finally, in 2004, it became necessary for him to have an ileostomy. Although I know it's probably the hardest thing he's ever had to go through, in retrospect everyone (including himself) sees it as a benefit. I think my dad put it best a couple of years ago when he said, "Yeah, there's definitely some parts of my life that are unpleasant, but overall it's a big improvement. I can predict how I'm gonna feel from day to day...there's no more pain...and there's no more fear about the future." And do you wanna know something else? I can't remember any point in my childhood where he was as contented or as emotionally stable as he is after having his colon removed.