Eva Lou said...
that's so disheartening! I wish I could be like you, Quincy, & have success with only the 5ASA's- you are very lucky!!! What is dicyclomine?
Hopefully the 5ASA meds will work for a long time....salicylates are a miracle from my perspective.
I also have PSC...UC-related liver disease....my theory is that if the UC stays calm, so will the PSC considering it's a fatal disease.
Dicyclomine is an antispasmodic....The brand name in Canada is Bentylol, in the US it's called Bentyl.
If my UC got to the point where functioning is getting me down and meds weren't working any longer, I'd definitely consider surgery..as scary as it is to think about it, I trust the fact that the ones who have had it say they have a life again. That sounds good to me.
*Heather*Status: mini flare Dec 28... tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!