And so it begins...

New Topic Post Reply Printable Version
35 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 2/20/2008 7:23 PM (GMT -6)   
Alright lads and lasses, had my last colonsocopy, ever, today. I am to arrive at the hospital at 6am bright and early tomorrow for the first stage of my jpouch surgery. I have given my fiance access to my account here so I can keep you guys posted on things are going via her infinitely greater typing/writing skills. I should be in the hospital for 4-5 days pending lack of complications, etc, etc. Have a good weekend, and take care.
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February)

Meds:
Remicade 7 infusions (no more!)
(Per Day):
Prednisone (30mg taper)
Asacol 8 (Ran out and waiting for refill...actually improving off of it...hmmm)


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 2/20/2008 7:28 PM (GMT -6)   
Oh wow! Please keep us posted. Can't wait to hear how it goes!!!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4234
   Posted 2/20/2008 7:39 PM (GMT -6)   
Good luck, Carlow! Hope all goes well. Keep us posted.
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D)


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 624
   Posted 2/20/2008 8:10 PM (GMT -6)   
Will be thinkin' about you and wishin' you the best, Carlow.

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/20/2008 8:23 PM (GMT -6)   
Good luck and speedy recovery!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Singulair
~Secondary Reynauds Syndrome -'04 - Norvasc~Fibromyalgia -'06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 2/20/2008 8:29 PM (GMT -6)   
Carlow! this is exciting! I am really glad your fiance has access, as I definitely want to hear about your progress. I hope you're able to get some good rest tonight, and that you and your fiance somehow say farewell to your colon this evening!
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 2/20/2008 9:09 PM (GMT -6)   
Good Luck and speedy recovery

Janice
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/20/2008 9:30 PM (GMT -6)   
Here's to a speedy recovery, Carlow!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 2/20/2008 9:48 PM (GMT -6)   
Good Luck and a speedy recovery!
James
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
12th Remicade infusion End of March


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 2/20/2008 10:17 PM (GMT -6)   
Hey Carlow, I was just thinking about you today and wondering when the surgery was scheduled for. Best of luck to you, and know we'll be rooting you on all the way. Thanks for giving your fiance access; it will be wonderful for her to update us on how you are doing.
Carol

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 2/20/2008 10:27 PM (GMT -6)   
Good luck Carlow. May you have a quick and easy recovery!

--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 3 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 2/20/2008 10:56 PM (GMT -6)   
6 AM? Ungodly!!!!!!!! Wishing you all the best-- / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 2/20/2008 11:06 PM (GMT -6)   
oh i'm wishing you good luck and a quick recovery!!  
                                          ~Christie
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
                                         Medications
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08,  6-MP 100mg daily, Pentasa 500mg twice a day, prednisone 20mg 10mg 5mg daily, Nexium 40mg twice a day, Lantus insulin 45 35 25 20 units daily, Novolog 10 8 5 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30601
   Posted 2/21/2008 12:46 AM (GMT -6)   
Hi Carlow...I hope the surgery goes well and recovery is smooth. Updates will be welcomed!

Happy dreams while in la-la land..;-)

quincy
*Heather*Status: mini flare Dec 28... tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 2/21/2008 1:32 AM (GMT -6)   
good luck.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 2/21/2008 1:11 PM (GMT -6)   
Hoping all is well!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


AshNH
Regular Member


Date Joined Jul 2007
Total Posts : 208
   Posted 2/21/2008 1:26 PM (GMT -6)   
Best of luck.
Ash 39 NH, vegetarian
Current meds: Asacol 12/day, Imuran 150mg
L-glutamine, Coconut Water, Rowasa(as needed)


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 2/21/2008 1:27 PM (GMT -6)   
Excellent...can't wait to hear the good news! Have a speedy recovery.
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 2/21/2008 1:36 PM (GMT -6)   
Good Luck, hope everything goes well for you.
diagnosed with uc 27 years ago.  Enojoyed 10 - 12 year remission
 
asacol 400 mg 3 tabs 3x a day, didn't work
was on prednisone, doc took me off.  Asacol didn't help.
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid,mesalamine enema every other night, Omega 3, Probiotics, multi vitamin, cacium supplement, Biotin.....and dare I might say "I may be in remission"  been doing real good for the past 2 weeks


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/21/2008 1:43 PM (GMT -6)   
wishing you a speedy recovery!!
Beth, 32
Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday.  Potassium 100mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 2/23/2008 2:33 PM (GMT -6)   
Hello all! Holy cow what a couple of days its been! What is today? Saturday? Ok. So the colon is out as of this past thursday. I'm currently in the tail end of a blood transfusion but I'm doing well. I'm on a clear liquid diet as of today (I was on an "ice chip" routine since thursday morning). I can't post more, this is just a quick update. My fiance will post more details tonight. I'm going back to napping after I take my second walk around the nurses stations!
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February)

Meds:
Remicade 7 infusions (no more!)
(Per Day):
Prednisone (30mg taper)
Asacol 8 (Ran out and waiting for refill...actually improving off of it...hmmm)


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 2/23/2008 2:58 PM (GMT -6)   
Carlow, I am so happy you are on the mend! Take good care of yourself. Lots of good wishes and speedy recovery coming your way.

--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 3 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 2/23/2008 4:49 PM (GMT -6)   
They can't keep a good man down! Hey, Carlow, what a perfectly typed post, even with one arm plugged in! Take care; hope you can get some quality rest in-house. Are they giving any hints about your discharge date? / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

quincy
Elite Member


Date Joined May 2003
Total Posts : 30601
   Posted 2/23/2008 6:11 PM (GMT -6)   
Carlow...sounds as though you're good in spirit/mind and coming along quickly in body. Good to hear things went well....looking forward to your updates.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 2/23/2008 9:53 PM (GMT -6)   
Carlow - good to hear from you. glad you are doing well. looking forward to hearing more when you get a chance. continue to get lots of rest.
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Cortfoam in AM, Rowasa in PM (is working wonders for me thus far)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!

New Topic Post Reply Printable Version
35 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Friday, June 22, 2018 10:45 PM (GMT -6)
There are a total of 2,974,436 posts in 326,174 threads.
View Active Threads


Who's Online
This forum has 161277 registered members. Please welcome our newest member, Ki85.
326 Guest(s), 5 Registered Member(s) are currently online.  Details
HarryN, Dimitri71, BBN!!, Brian84, (Seashell)