I am sorry to hear that you are having problems. I can't help but wonder if it is the Remicade. When I was having those killer joint pains, they tried to tell me I had developed Arthritis due to UC. Really? Overnight and severe like that? Hmm funny how now I am off the Remicade and I have zero joint pain and am exercising and feeling good, except for the darn flares! And how you never had this Anemia and after starting Remicade you do? Hmm. You aren't having bloody bms at all, are you? I'll admit I could be completely wrong about the Remicade. But it's just a guess. Lately I feel like all the meds for UC are like picking your poision. I'd still take Remicade over Prednisone any day, though.
But, actually I've had this anemia for quite awhile, but today I received results from my GI and he marks that its abnormal, but yet says its ok and that its stable. I just think its so weird to be abnormal but yet normal. It hasn't really gotten any worse since Remi...the blood result that HAS gotten worse is my White cell count. It's below normal, but the docs don't seem to be too concerned. And the joint pains have gotten worse since my last flare, and since being on the remi. But I always had them since the UC diagnosis...it just have gotten worse...and I"m wondering if the prednisone didn't have something to do with it. It's known that Prednisone/steroids "ages" you quicker than normal..so now I have joints of a 50 year old perhaps???
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo). Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 6-MP 100mg daily, Pentasa 500mg twice a day,
prednisone 20mg 10mg 5mg daily, Nexium 40mg twice a day, Lantus insulin 45 35 25 20 units daily, Novolog 10 8 5 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily, and pro-biotics daily.