You may want to ask your doctor about
Remicade - if the other meds aren't working. That was the only way i was able to get off Prednisone .... couldn't get lower than about
20 mg. Re. your diet - you get to know yourself and what agrees with you or not. Generally raw veggies are difficult to digest ... steamed or cooked might be easier. Try adding things one at a time to see how you feel. I can't eat pancakes, as one person suggested, i know i can't eat citris (and i LOVE oranges), NOTHING fried, nothing with garlic in it, no salt, etc...
I agree - it is SO frustrating to go to restaurants and not be able to eat anything. I can't eat anything with spices in it .... and interestingly enough anisee (sp?) is a common ingreedient / spice found in Pitzelle (sp?)
cookies that you get at x-mas time. I can't have that ... one bite and i'm in the bathroom for hours. Its horrible. Its all a process of elimination. Ooh, caffine and coffee is bad, as is soda.
Things you might want to try adding slowly: plain tuna (low fat - in water), rice-based products (like crackers, etc.), v8 is good (though i can't stand the taste). Anything plain should be ok ... try adding one thing at a time ... and see how you feel. I love my ice cream ... at least i can have that. If you can't tolerate lactose - go to a store like Trader Joes or Whole Foods and look for dairy-free ice cream ... its not too bad. Ooh and watch the citris fruits - i can't do them, either.
I know everyone is different - just sharing my experiences. When i go out i usually get ice water with lemon (i've grown to like that), plain rice, and i can eat quesidillas or fajitas ... that's pretty much it. Salmon is supposed to be easy to digest but i don't like fish that much - except for sushi. I don't have much trouble wtih sushi.
Good Luck. Let us know what you find.
33 year old female - diagnosed with UC 7 years ago. Misdiagnosed since i was 19.
Colazal 3 tablets 3x/day
In the past I have tried Rowasa (no response), and have been on Prednisone for up to a year at a time. I have been flaring for over a year and started Remicade in October, 2007.