After 4 years, I am finally looking for help from others. I've been going this long trip alone. My Husband is a blessing as he is very understanding of my plight. My UC has never been in remission longer than 2 months. I have been on and off of prednisone for 4 years. Its a quick fix for me but has not long term help as every time I taper off, it takes about 2 weeks before the next flare starts again. I've also been on Asacal, Lialda, Pentasa, Canassa, Rowasa, and 6-MP. I am currently on Lialda but haven't been in remission at any time. My last drug jump was 6-MP, which was a disaster as I ended up in the hospital with Pancreatitis, and anemia. That was just a short 5 months ago. Heavy doses of predinose followed and I taper off as of January 23, 2005, only to see the ugly UC flare return two weeks later.
Today, I have to contact my GI to get another regiment of something to stop the flare. He will probably go the Prednisone route again, and have me taper over 6 weeks. That's just a short term fix in my opinion because I will see a flare again in 8 weeks. We have discussed Remicade and Humiera as options in the past, but in the GI's opinion, my UC wasn't severe, just cronic so they would be last resort options. I'm not sure if I'm at the last resort options yet, but my quality of life really sucks. (My Husband must be frustrated by this point as I just don't feel well most of the time, so much for being newlywed's).
I would sure like to enjoy a night out without multiple trips to the restroom and rushing home to get to the restroom without incident.
does anyoune out there have any thoughts on this?
Thanks for the insight...