There are so many variables regarding type of meds, patient recognition of symptoms, tolerance of symptoms, consistency of med usage, misdiagnosis...etc, that the statistics could mean very little in the real scheme of things.
I think the best defense is to keep inflammation as low as possible no matter where it's extended to...and to protect all the areas above.
From what I've seen on here...there are many who have had original diagnosis with UP and it's spread to pancolitis in a fairly short period of time. Could it be because of initial meds or lack of meds initially? who knows.
UCinNC...it would be obvious if your whole colon were affected through a c-scope and biopsies. Were you diagnosed originally through a c-scope?
If yes, your original diagnosis would stand, and that now you're at left-sided probably now that you're healing...it goes in a bottom-up spread pattern, top-bottom healing pattern.
I've never been as bad as my original diagnosis....my doctor did say that statistics state that I might never have it extend past that point...but I'm on Asacol to help keep everything above that clear just incase...as well, because it can help prevent cancer..that's an added plus to keep on the meds.
I do treat any flare symptoms early...my flares are very minimal, but still obvious.
*Heather*Status: mini flare Dec 28... tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!