Posted 2/23/2008 12:18 PM (GMT -7)
All of you experience the same thing I do; my infusion center has become like a group of friends to me! I know all the nurses and most of the patients, so it's really nice to go there....and yes, I'm treated so well. It is nice down time, and I know I'm going to feel well. Most of my friends say when I'm leaving for my infusion...."Have a nice nap!" :-) I just can't get over how good I feel the next day; it's almost like a battery running down, and then I get some juice. Ha! And Sherry....I'll be over to help clean in about 8 weeks. Hee hee.

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
Co-Moderator for the UC Forum

Posted 2/24/2008 6:43 AM (GMT -7)
Sweet! yeah   LOL
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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Posted 2/24/2008 1:10 PM (GMT -7)
It all makes sense to me...I have never done them, but from seeing how they work for you, it's something I'm not afraid of if needed in the future.

*Heather*Status: mini flare Dec 28... tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 2/24/2008 11:23 PM (GMT -7)
Sad as it might sound to a healthy person who has never known UC, I really do look forward to my monthly Abatacept infusion as well.

Not only does it mean that in a fortnight I will be feeling another step better, I also look forward to seeing my partner in crime from this study, our specialist, the trial co-ordinators and the nurses. They are all such a fun bunch.

Its also great hanging out with people who can understand the stresses, fears and pressure that UC causes in my life. There's no one else I know who I can laugh about sloppy farts with, or understands the frustration of having to get up 3 times a night to rush to the toilet... Normal people just don't understand.
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male, Australia. Diagnosed at 16yo;
    - 2xColazide, twice a day; 1x6-MP twice a day; 1xAbatacept 10mg/kg per month;
    - 1xZinc per day, 1xteaspoon of Metamucil smooth powder 3 times a day;
    - 1xBIOCeuticals UltraBiotic 45 per day + 1xSB FlorActiv per day;
    - 3xGarlic Oil caps 2 times a day, 5mL Olive Leaf Extract 2 times a day.

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