New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

toanova
New Member


Date Joined Dec 2007
Total Posts : 15
   Posted 2/22/2008 3:05 PM (GMT -6)   
I'm on my 3rd treatment of Remicade and I remember reading someplace that if you come off Remicade, you can't go back on at a later date.  Does anyone know if that's correct. 
4x3 Asacol
60/75 mg  of 6mp 


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 2/22/2008 4:44 PM (GMT -6)   
It's not uncommon for individuals to develop antibodies if they go off Remicade and then it won't work if you go back on. It doesn't happen to everyone. And there are alternatives available if it should happen. Humira uses a different protein and that would work if you develop antibodies to the Remicade. Humira is not yet approved for UC but it can be used off-label and if you need it due to developing antibodies your GI should be able to make your case to your insurance company if it comes to that. And there is another biologic in the pipeline -- these things tend to get approved for Rhumatoid Arthritis first, then Crohns and then UC. But once it gets approved, it's available for off-label use for anyone (under a doctor's care of course).

Meesh
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, starting yet another taper attempt, down to 15/10 mg alternating daily. Daily supplements: multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums
12/1 - 12/29/07 weekly Venofer (iron) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran (2/07)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/22/2008 4:45 PM (GMT -6)   
I think the latest statistics I've seen are that about 50% of people who come off Remicade have adverse reactions that prevent them taking it when re-started. That said, remember that the other 50% don't. I had to go off for over a year due to insurance issues, and had no problems when I re-started it. Others have had.

So, like anything else with this DD, it's a definite "maybe."
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/22/2008 5:30 PM (GMT -6)   
Hi if you come off Remicade you will be anti-bodys to the Remicade. Alot of doctors do not stopping and starting Remicade. I would not go off Remicade unless it stops working. I have been on Remicade for almost 5 years and I don't plan on stopping until it does not work.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


toanova
New Member


Date Joined Dec 2007
Total Posts : 15
   Posted 2/24/2008 1:08 PM (GMT -6)   
Thanks, my insurance has only approved 4 treatment and so I was concerned about the effects if you had to stop and they restart. cool
4x3 Asacol
60/75 mg  of 6mp 
Remicade just started


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/24/2008 1:15 PM (GMT -6)   
Toanova, I believe insurance carriers only have 30 days to authorize or deny treatment requests. So as soon as you have the 4th treatment, or earlier if you are noticing a positive response, remind your doctor's office to submit another authorization request documenting your improvement. Insurance carriers can be major b_____ about authorizing Remi, some of them use every delaying tactic in the book.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, May 26, 2018 12:27 AM (GMT -6)
There are a total of 2,966,035 posts in 325,300 threads.
View Active Threads


Who's Online
This forum has 162698 registered members. Please welcome our newest member, Puppylove.
308 Guest(s), 4 Registered Member(s) are currently online.  Details
pam lewellen, Girlie, garyi, (Seashell)