Why am I so tired ?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Sep 2003
Total Posts : 660
   Posted 2/22/2008 4:53 PM (GMT -6)   
Hi Everyone,
Its been a while since I've been on.
I'm feeling better, the imuran is really making a difference in my life.
I still have quite a few bm's a day but no blood :-)
The thing is I am sooooo tired all the time. Is it the winter? Is is
just having colitis in general? I have thalsymia so I can't take iron.
I have to go for blood work next week.
Does anyone else feel just fatigued?
Thanks for listening

~~ Donna ~~
Diagnosed with UC in 1987 at age 16
Imuran ~ 2 1/2 pills a day,Colazal  3~3x a day
Lexapro ~ 20 mgs daily for sanity  :-)

Veteran Member

Date Joined Apr 2006
Total Posts : 733
   Posted 2/22/2008 5:01 PM (GMT -6)   
It's probably the Imuran.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15, Tried: Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Anamantle, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Feb 11) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil,  Tylenol pm, Lyrica for Fibromyalgia started 1/17/08

Regular Member

Date Joined Feb 2008
Total Posts : 55
   Posted 2/22/2008 5:50 PM (GMT -6)   
One of the symptoms of UC, is you got easily get tired.. and i'ts happening also to me....... it is not caused by the medicine
Diagnosed with UC on 2007. Undergone Fistulotomy on 2005. Taking Generic Asacol 400mg 3X a day... "HEALTH IS WEALTH"

Regular Member

Date Joined Jul 2007
Total Posts : 21
   Posted 2/22/2008 6:15 PM (GMT -6)   
My husband was ALWAYS tired from the UC, especially after eating. He'd sleep 10 hours or more, wake up, eat, take meds, and then be back to sleep for another three hours. Some meds may make you tired, but most of his sleepiness came from the disease itself.
Husband diagnosed with ulcerative colitis in 2003(?)
Hospitalized 4 times
Asacol, Imuran, probiotics, fish oil, Vit D, Librax, Zoloft, Metamucil
Surgery scheduled for Feb. 11
2/11/08 - Colon removed! Jpouch surgery will come later - tapering off pred, healing from surgery, and shedding those pounds gained during all the pred induced snacking!
Ileostomy is working well - I think we might be getting our lives back!

Regular Member

Date Joined Aug 2007
Total Posts : 317
   Posted 2/26/2008 1:11 AM (GMT -6)   
Ever since going on Imuran, I have definitely been a lot more tired. The winter isn't helping things either(this said as I hear the snow plows going down my street again--gotta love Chicago!).
Diagnosed with UC in 2004
Had flares all through pregnancy last year, and current flare on and off for about 6 months, Imuran helped me get off Pred. and get into remission!!
Currently on Lialda, Imuran 75mg,
prenatal vitamin(taking for folic acid and other nutrients), calcium, and Bifidus Balance FOS probiotics.
Mesalamine enemas as needed...

Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 2/26/2008 10:07 AM (GMT -6)   
I think it's just the UC. tjf and I posted on the tiredness recently as well. Somedays it seems like I could sleep forever... Bloodwork was all good. But a nap would be wonderful!
Pan-colitis and GERD diagnosed May 2003
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate

Regular Member

Date Joined Sep 2006
Total Posts : 133
   Posted 2/26/2008 10:51 AM (GMT -6)   

 I think it's the Imuran.  I am taking it and sound just like you... it's finally clearing up my UC and I'm feeling good in that aspect but I'm just so tired.  And it's not really an "I'm tired I could sleep all day" type, it's more of an apathetic, lethargic feeling.  I have to force myself to do so many things.  I am in Chicago in the middle of crappy weather so while I think that isn't causing my fatigue, it certainly isn't helping!  Sunshine hurry up! :)


29 years old; diagnosed since 1997 (but I've had it forever)
Current meds:
-Prednisone 7.5 mg!
-Re-trying Imuran; I'm at 100 mg now...but it's making me so tired!
-Asacol 12/day
-Failed Remicade (8/06-8/07)
-Calcium + Vitamin D(for my steroid-affected bones)
-Prenatal vitamins (for the extra stuff, not for pregnancy)

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 2/26/2008 11:46 AM (GMT -6)   
Hi Donna, good to see you again and I'm so glad that Imuran is helping you! It could be the combination of both the Uc and the Imuran. I know I was always tired before I started 6mp and it became even worse after I started it. Are you on a good vitamin at the moment? If not, you might want to look into an iron free vitamin and maybe this can help you get your pep back. What about your B12 levels? Have you had them checked lately?
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE


Veteran Member

Date Joined Dec 2005
Total Posts : 3238
   Posted 2/26/2008 11:50 AM (GMT -6)   
I'm tired all the time! I'm always on here complaining about it! I just a ton of bloodwork done and it was all normal. I blame it on the meds and UC in general.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

Co-Moderator UC Forum

Regular Member

Date Joined Nov 2007
Total Posts : 124
   Posted 2/26/2008 1:42 PM (GMT -6)   
I started 150mg azathioprine a month ago and I've noticed terrible bouts of tiredness. I specifically asked the registrar when I was at the hospital a couple of weeks ago. She said categorically it could not be the azathioprine and that it was the inflammatory processes going on in my body as a symptom of the UC.
Diagnosed Indeterminate Colitis 25/11/2007 (update: told by consultant 15/01/08 in his opinion definitely UC). 1 x Solofalk Enema/day 40mg Prednisolone 35mg Prednisolone 30mg Prednisolone 20mg Prednisolone 25mg Prednisolone 20mg Prednisolone 15mg Prednisolone 4g Pentasa/day

Now on 150mg Azathioprine/Imuran, back up to 40mg Prednisolone, Omeprazole 20mg, 2 x Calcium Adcal D3

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 2/26/2008 3:23 PM (GMT -6)   
It's common with IBD to feel tired, read this...

Fighting fatigue

DEAR DOCTOR: I’m a 53-year-old male who was diagnosed with Crohn’s disease in 2000. My intestine was blocked and 12 inches of my bowel was removed. My biggest problem now is that I’m always tired. My only medication is a B12 shot every three weeks. Should I be taking anything else?

DEAR CCFC MEMBER: Fatigue is a common complaint of patients with Crohn’s disease, even when they are in remission. In general, fatigue can be explained by nutritional deficiencies from either active disease, previous surgical resection or bacterial overgrowth. This includes vitamin B12 deficiency or iron deficiency.

Many patients with a chronic disease (especially chronic inflammatory diseases) will experience fatigue because of the underlying chronic inflammation and the struggle of your body to try to control this inflammation, thereby expending “internal” energy.

Other causes of fatigue, which may not be directly related to Crohn’s disease, such as depression, thyroid problems and hematological problems should be explored.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined May 2007
Total Posts : 646
   Posted 2/26/2008 5:59 PM (GMT -6)   
Interesting about the Imuran . . . I have correlated my exhaustion with that. I used to be an exercisaholic and had to stop due to tremendous lack of energy.

Diagnosed April 1998 - Pancolitis
Currently on (per day):
Pentasa 4 gms
Imuran 100 mgs

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 1:15 AM (GMT -6)
There are a total of 3,005,796 posts in 329,263 threads.
View Active Threads

Who's Online
This forum has 161803 registered members. Please welcome our newest member, nadadot.
216 Guest(s), 1 Registered Member(s) are currently online.  Details