Hi, Charmin. I'm glad you finally got to the specialist. Asacol sometimes causes abdominal pain at first. For most people this will ease after a week or two. If not, you will need to talk to your GI, as there are other drugs to use. For some of us who can't tolerate Asacol, Colazal (Balsalazide) has been very effective. If at any time the pain becomes really sharp, like a knife, you need to get to the emergency room right away. In rare cases, the colon can rupture and this is a life-or-death emergency. But all-over, grinding pain goes with UC flares.
The dosage of Asacol isn't figured based on weight as many drugs are. It really acts more as a topical medication - like a cream you put on your skin - in that it works by direct contact with the walls of the colon. Hence the need for the rectal medication in addition, as it doesn't get all the way to the end in an effective dosage.
You are hoping for remission, which mean no blood, more solid and fewer stools, although some of us never get back to one a day. For the short term, you're looking for any reduction in bleeding and frequency of stools.
We're all different about
diet. At this point, I'd start out eating a light diet. No fatty foods, no spices, low on fiber. Keep a food diary and compare this to your UC symptoms as you add new things to your diet. If you consistently see, over five or six times, that every time you eat something you get worse a day or two later, you may want to avoid that. Be aware, though, that you may not be able to tell at this point. In a bad flare, I ate whatever I wanted because I was just as sick whether I drank Ensure or ate enchiladas.
Some people have specific intolerances. Lactose intolerance is more common in those of us with UC, for instance. If you suspect something of this sort, ask your GI to test you.
I don't think I had yet welcomed you to Healing Well, so welcome! I hope you'll find the support and ideas here that will help you get through this.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal, Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
Co-Moderator UC Forum