Posted 2/25/2008 12:31 AM (GMT -7)
OH MY GOODNESS, Judilyn, I literally just snarfed a piece of my peanut-butter sandwich onto my desk after reading your post. You can't ever go wrong with the "Sorry, but I have bloody diarrhea" line when people are being ridiculously annoying!
Co-moderator - IBS Forum

Posted 2/25/2008 6:42 AM (GMT -7)
I had the same issues with my parents and my in-laws. I got the true guts DVD and made them watch it. I think it really helped. My parents still "joke" around about me always being in the bathroom, but at least they don't make me eat things I don't want to, and they don't complain anymore when I am late or cancel plans. Showing pictures of your most recent colonoscopy (with bleeding ulcers) helps too. THAT is great dinner conversation.
diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female

Posted 2/25/2008 7:30 AM (GMT -7)
Both my family and my in-laws are fantastic about my condition. They always make sure that they let me know the menu (i've asked them to stop preparing food escpecially for me, my mom still refuses that one) so i can plan accordingly. Either I bring my own or eat before.

My problem is my dad. My parents eat out more tha anyone i've ever met. My dad lives to go out to lunch. (both retired) inevetably he asks if I want salad with my meal. Or soup. Ten years he's been asking me this. Also he asks me if I want popcorn almost every time i see him. I know he is being nice and just wants me to know I can have whatever I want but even before UC i never ate popcorn or soup. Two of my least favorite foods. And yet he asks me if I want them ever time I see him.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, started at 60 mg 1/07, 15 mg pred, down to 10 mg 1/11/08...down to 10/5...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08 now at 150mg imuran
waiting to be scheduled for remicade.
Prontonix once daily for acid reflux, zofran twice daily for nausea, darvocet for pain
antispasmodics didn't work.

Posted 2/25/2008 9:15 AM (GMT -7)
quincy said...

The next time you cook with her breathing down your neck....add the garlic and tell her that you'll stop when she stops making foods that you cannot eat.

q

quincy,
 
I love, love, love your no nonsense approach... tongue tongue
 
NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.

Posted 2/25/2008 9:26 AM (GMT -7)
I've been lucky in that my parents understand what foods I can't eat... In fact when they caught me eating something I wasn't supposed to, they'd always give me that "Edie! You KNOW that's not good for you". Sometimes they think a little bit too much into the food aspect though and also seem to think that my UC is caused by my diet but they don't harp too much on it.

It really is frustrating though when people don't understand. Especially when you feel like hell but don't "look" sick and they give you a hard time when you don't feel like doing anything. Sometimes I wish I had an xray machine that could show my insides and I can say "LOOK, I am sick, see the blood? The ulcers? Now leave me alone!" Haha.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
10mg Lexapro (for depression/social anxiety)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
10meq Potassium
 
 

Posted 2/25/2008 10:14 AM (GMT -7)
Thanks for the support! I especially like the post about adding garlic in front of her (have thought of that) and basically telling her "a gut for a gut!"

I also like the idea of the X-Ray machine - isn't that the truth!!!!
Tara

Diagnosed April 1998 - Pancolitis
Currently on (per day):
Pentasa 4 gms
Imuran 100 mgs

Posted 2/25/2008 10:22 AM (GMT -7)
I'm very blessed in the fact that my parents understand my condition. My in-laws have a good idea about it. My good friends understand. I rarely have any problems with people close to me and my UC. In fact many of them will often ask how things are.

Someone at work asked about going to a Chinese buffet - I just said - I'm SO not interested. They then mentioned something about it "building up immunities" in a joking way.

But I LOVE Judy's bloody D line! I'd love to see some of the shocked looks on peeps faces with that one.
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate

Posted 2/25/2008 2:11 PM (GMT -7)
I agree totally with PB4.well said, i couldn't put it better.
Marty
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/pred/colofac


       
            http://www.myspace.com/martybuzz1<FONT]

Posted 2/25/2008 3:22 PM (GMT -7)
Yep, the "bloody D" line stops them in their tracks. No more nosing into my business, urging me to eat or do something I shouldn't or making catty remarks about my coming in late or leaving early. They simply don't want to hear any more, and they never question me again.

Of course, I only use this for repeat offenders or people who don't know me well enough to be prying into my affairs. Most of them don't comment on my health at all now. :-)
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

Posted 2/25/2008 8:57 PM (GMT -7)
Anti-spasm meds rule!!!!!! It really helps make my symptoms so much more manageable. Urgency isn't as urgent when I am taking anti-spasm meds for my colon; the only side-effect is a slight dry mouth.

I have the exact opposite....when ever anyone sees me eating something "risky" they always ask me if I can eat that because they think it will bother me. It is so annoying.... I want to eat what I want to eat and I don't care if I have to pay the price for it later on. I am used to suffering and it really isn't that big of deal to me anymore after 3 years.

The only thing my GI told me not to eat is pop-corn and nuts when I am flaring because that can be dangerous to the intestines.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May 2007
 
Current Meds:  50 mgs 6-mp, Colocort, Oral Cyclosporine (250 mgs), Hyoscyamine .375 mgs
Supplements:  Forvia multi-vitamin
 

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