Hi, welcome to Healingwell :) You found a great forum where everyone can understand - truly understand! So if you should have any questions or concerns, don't hesitate to post.
As for the meds, usually the doc will start you off on a 5-ASA such as Asacol, Lialda or Colazal. This med is designed to keep the inflammation down in your colon. Did the doc happen to mention how far into the colon your inflammation was? What are your symptoms at the moment? Now, I am sort of biased when it comes to steroids because I truly do not like them. So if your symptoms aren't too severe, try to avoid Prednisone as long as you can. Yes, some it can be a miracle drug and it will help get their symptoms under control quickly but I have seen so many people on here that have had bad reactions to (side effect wise) or end up on high doses for long periods. Long term steroid use is so bad for the bones, not to mention the eyes. I don't mean to scare about
the steroid because if you need it, you need it - but you don't have to use it if you don't want to is what I guess I'm trying to say. Alot of docs throw their patients on steroids at the first sign of trouble instead of trying to let the conventional 5-ASA's do their work. Mainly because steroids are faster and with the 5-ASA's it takes patience.
Another med they use frequently are enemas either liquid 5-ASA (Rowasa or Salofalk), steroid foam or enemas - these work a bit differently then oral Prednisone and aren't as bad - side effect wise. Or suppositories (Canasa). It all depends on where the inflammation level is at in your colon. Liquid tends to reach higher up into the colon then the suppository.
But, since you are newly diagnosed, I also recommend you visit www.ccfa.org for more info. Once again, welcome to HW.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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Posted 2/25/2008 5:45 AM (GMT -7)
Sounds like you have already gotten some great advice....I just wanted to say hello and welcome!
100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexiumhttps://www.healingwell.com/donateCo-Moderator UC Forum
Posted 2/25/2008 6:28 AM (GMT -7)
Welcome, MathGeek. I really don't have anything to add to the excellent information above. Hang in there, and remember you're not alone. We've all been where you are, and there is light at the end of that very dark tunnel.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal, Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
Posted 2/25/2008 6:47 AM (GMT -7)
Just my experience. I was diagnosed and they immediately put me on the rowasa enemas and the asacal. I went into remission immediately and stayed there for quite sometime. The prednisone did not come until much later. good luck.
diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female
Posted 2/25/2008 12:08 PM (GMT -7)
The advice above is great, but just wanted to add that I know what it is like to deal with the new diagnosis as a teacher.
When I was diagnosed with severe UC I was a first-year teacher and terrified of losing my job. I muscled through the worst days and did end up hosiptalized, but funny enough, I joke that I only missed the five school days that I was in the hospital!!
Ten years later I still have the same job and the same disease!!
Diagnosed April 1998 - Pancolitis
Currently on (per day):
Pentasa 4 gms
Imuran 100 mgs
Posted 2/25/2008 9:17 PM (GMT -7)
I agree with Sherry check out the ccfa.org they have lots of great information on there.
If you are worried about
how your life will be affected by uc there is a cure (SURGERY) but most of us do not want to go for surgery until we have tried all of the meds out there..... other people opt for surgery right away.
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May 2007
Current Meds: 50 mgs 6-mp, Colocort, Oral Cyclosporine (250 mgs), Hyoscyamine .375 mgs
Supplements: Forvia multi-vitamin
Posted 2/25/2008 9:41 PM (GMT -7)
I have nothing else to add, but so say good luck with the treatments!!
Class of 2009, MWU
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearning remission. I feel fantastic! My next goal is to gain the 15 lbs I lost 6 weeks ago and start living life again. I have lost so many years to this disease.
I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD. My goal is to open up a pharmacy and take care of my patients(particularly explaining what the drugs do to you), compound special medications, and have a great practice.
3200 mg Asacol, 5 mg prednisone
HAVE YOU CONSIDERED THE SCD DIET? IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!
Currently it is Wednesday, January 16, 2019 11:15 AM (GMT -7)
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