Update on Bratcat's brother

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 2/25/2008 9:34 PM (GMT -6)   
Bratcat's brother had his colonoscopy today. The doctor says he definitely thinks it's Crohns. He gave him a prescription for Asacol. He is going back in 2 weeks. My son still has a bit of an abcess, although the doctor says it is getting better. He wants him on Flagyl for 2 more weeks.
 
The Miralax prep went pretty well. His colonoscopy was scheduled for 1pm. The doctor's office called about 8:30 this morning and asked if he wanted to come in earlier. Of course he was sleeping (couldn't eat so he figured he would sleep as late as possible). He ended up having his colonoscopy around 11:30.
 
I guess I have to start reading up on Crohns. Bratcat's brother has none of the same symptoms as Bratcat. And so it goes.
 
By the way, we're working on a nickname for my son. Bratcat's brother just doesn't cut it.
 
--Mom of bratcat (16 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 3 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone.


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 2/25/2008 10:46 PM (GMT -6)   
I'm so sorry to hear of your sons diagnosis Bennie! I already know that he is in good hands with you and think he is lucky to have such an involved and caring mother.
Hopefully it has been caught soon enough that you can get it under control quickly. Keep us updated!
James
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
12th Remicade infusion End of March


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 2/26/2008 5:51 AM (GMT -6)   
I am so sorry to hear of your son's dx! I had a second child dx'd this summer and for some reason, it hit me harder than when the first one was dx'd.

I also read/post over at: http://www.dragonpack.com/ibdsupport/parents/ It is really a great place to learn about issues in parenting and issues kids face with IBD and is a great supplement to this site.

How did your daughter react to your son's dx? When my son learned that his little sister had it, too, he just went in his room and sobbed. He never really cried for himself, but it broke his heart for his sister.

Again, so sorry to hear about your son!!
Julie - Mom of Son 16 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Biotin, Vit/Min
& Daughter 8 UC dx 08/07 Colazal, Prednisone, 6MP, Iron, Vit/Min.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/26/2008 5:53 AM (GMT -6)   
Awww Bennie, I'm so sorry! I know how as a parent it tears us up when our children get sick, but your son already has an advantage - you by his side!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/26/2008 8:08 AM (GMT -6)   
Wow, sometimes the universe isn't fair, is it? But he's very lucky to have a mom and family who understand what he's going through and are willing to walk with him every step of the way.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 2/26/2008 9:01 AM (GMT -6)   
(((hugs to you all))) How devestating. However, now he has an answer to the "what's wrong with me" question.

Just let us know if there is anything we can do to help him out!

Can't wait to hear his nickname ;-)
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5175
   Posted 2/26/2008 10:42 AM (GMT -6)   
What about "Bravebro"? (For brother) Sorry to read that he seems to have CD. At least you can deal with it from a more knowledgeable perspective than those who have never even heard of IBD when they get hit. Good to hear that he's making progress combatting the abcess. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 2/26/2008 10:48 AM (GMT -6)   
We have a very active CD forum. I'm sure you could pop over there for lots of good information. I hate he has Crohns but at least now you know what is going on. Please keep us posted!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 2/26/2008 10:26 PM (GMT -6)   
Bennie - I, too, am sorry to hear about this. I do agree with what everyone else has said, though. Your son is obviously in good hands with such a knowledgable mom. My best to you and him.
Proud new mom of a beautiful baby boy!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 2/26/2008 11:26 PM (GMT -6)   

Thanks all. It's funny. With all I (kind of) know about UC, I feel like I am in the dark about Crohns. And he doesn't seem to have the symptoms I expect someone with Crohns should have. I guess we will learn more when he goes back to the doctor.

I am not sure how Bratcat really feels about this whole thing. This is her older brother. Of course, I feel responsible since it is my aunt who we know had Crohns. Of course I also tell my husband that's only because we know very little about his family!

Still working on a nickname. He usually goes by our last name (even the teachers have always called my kids by it--it is a great last name). And his nickname on other forums that he goes on includes our last name also. Not sure if I am ready for that yet. So Bratcat and I told him to start thinking of a nickname for here.


--Mom of bratcat (16 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 3 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/27/2008 7:09 AM (GMT -6)   
Bennie, Crohns is not so different from Uc. I'm not talking about physcial manifestations because yes they can be different, I'm talking medication wise. Most of the meds we take for Uc is also used in Crohns. But when a new med comes on the market, Crohns seems to get the first approval so your son actually has a step up on your daughter - if that's any sort of consolation. Physical wise, Crohns can affect the entire digestive tract but it doesn't mean that it will happen. With Uc, we have varying degrees of inflammation. Some only limited to the rectum and others have it thru out their colons. The same can be said of CD. Some Cd'ers may never have more then rectal/colon involvement and lead perfectly happy healthy lives with minor blips here or there.

But definately have your son get involved with HW on the CD forum. Or even here on the Uc forum too.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, May 23, 2018 2:57 AM (GMT -6)
There are a total of 2,965,205 posts in 325,221 threads.
View Active Threads


Who's Online
This forum has 162941 registered members. Please welcome our newest member, haohanfan3.
225 Guest(s), 0 Registered Member(s) are currently online.  Details