first colonoscopy

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Eva Lou
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Date Joined Sep 2006
Total Posts : 3442
   Posted 2/26/2008 9:49 AM (GMT -6)   
hi there! Believe it or not I have never had a colonoscopy, only a bunch of flex. sig's. I have one scheduled for next Friday. We finally decided to do one cause my GI is pushing me to get in touch with the surgeon again, but until I see the "whole picture", so to speak, I'm not doing anything. I'm totally freaking out about the scope & the prep- I am going to use half-lytely, which my GI tells me is not harsh. I guess it just flushes you out, lavage style, as opposed to the other stuff which draws water into your colon & is very corrosive. I'm in a minor flare right now, so will this stuff & the scope make me flare even more? And I've been on Culturelkle fow about 2 months now- will the prep flush out all the good bacteria & put me back to square one? And honestly- will I feel the scope? My doc uses Demerol & an IV, I think it's verset, versed, something like that... I'm totally nerved out! Help!!!!
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Iron supplement
Culturelle
 


GardenerJames
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Date Joined Jan 2006
Total Posts : 616
   Posted 2/26/2008 10:00 AM (GMT -6)   
Don't worry Eva, it's something you need to do and something that millions of people have done before you. It's for the betterment of your health in the long run, even if it causes some problems in the short term. Doing the prep is definitely unpleasant, but not that different from a flare except you know why it's happening :P
Assuming you're knocked out for the scope you won't feel it. My dad actually awakened during one and just watched it on the tv screen, so he didn't really have any discomfort.
James
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
12th Remicade infusion End of March


MicheleV
Regular Member


Date Joined Sep 2004
Total Posts : 233
   Posted 2/26/2008 10:25 AM (GMT -6)   
Its not my FAVORITE way to spend a few hours, but it is a necessity with this disease.  Honestly, its not that bad, and I haven't ever had it make my colitis ultimately worse.  You might have some bad gas...or some D after, but your prep sounds better than many of mine, and you likely will sleep through it all.  I have them A LOT!  :-)   I have never woken up or had any pain. I usually get demerol and verced as well. 
 
It will be fine.
 
Currently in remission since September 2004!!!  I am on Imuran 150 mg and am LOVING life!


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 2/26/2008 10:30 AM (GMT -6)   
It is really not too bad, the prep is worse than the procedure, maybe its the good drugs they give you, lol.  I didn't start mine until evening, but next time I will start in the afternoon as it took about 6 hours to finish.
 
I didn't have a problem after the procedure with my digestion, it actually made my colon feel better.
 
Good luck.
 
 
Dx:  UC Proctitis 2006
 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence.
 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 
Added: tumeric and probiotics.
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/26/2008 10:42 AM (GMT -6)   
It's a piece of cake :) The prep is the worse of it but you won't feel a thing during the scope. If anything, the prep and scope might stir things up a bit in there for a few days but should go back to normal. And if you should see any bleeding after the scope, that's normal especially if they take biopsies. And that should resolve too within a couple days.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 2/26/2008 10:52 AM (GMT -6)   
it's not a big deal, after the first one it's easy.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 2/26/2008 10:56 AM (GMT -6)   
thank you so much, everyone! I know it'll be ok, I've talked with a bunch of people who've had them, but..... yikes! I looked up versed on the Net- it's one heck of a powerful benzodiazepine!!! So I'm edxpecting to be in La-La land for a while.... that's fine with me. I am actually looking forward to it in a weird way- when you're flaring, you know how it's all blood/mucous, etc. & very little stool that actually passes? So I'm hoping the prep will get me cleaned out once & for all, then I can start fresh. How bizarre...

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Iron supplement
Culturelle
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/26/2008 11:52 AM (GMT -6)   
I get the versed cocktail too and believe it or not, after the scope is over I wake right up! I'm still groggy all day but not conked out.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 2/26/2008 12:05 PM (GMT -6)   
Hi Eva. I've had 2 c-scopes and don't remember a thing from either of them. I think I had versed and something else. The worst part is doing the prep and only eating clear liquids the day before (I get super hungry!). I think the HalfLytely would be an allright prep. I've done the GoLytely (twice as much liquid as the HalfLytely). My doctor said the GoLytely is the safest prep to do, so I would guess the one you're doing is safe, too, since I think its the same stuff, just less liquid. Someone here suggested drinking the prep through a straw so you can't taste it as much and that really helped me. Also, make sure it's really cold. That helps a lot, too! I actually felt pretty good UC-wise for a few days after my last c-scope, but my flare did get worse after a sigmoidoscopy.
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/26/2008 5:21 PM (GMT -6)   
My doc uses Versed also. I conk out as soon as they put the needle in my IV, it seems. Actually, Versed causes amnesia, or no memory, of what happens while you're under its effect. So that explains why we don't remember. Versed plus a good pain reliever should allow you to go to sleep, have the procedure and wake up quickly after.

Plan to have someone drive you, and they suggest you not make any important decisions, operate machinery, etc. for at least 24 hours. I'm still a little less alert the day after, so I just rest.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


Eva Lou
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Date Joined Sep 2006
Total Posts : 3442
   Posted 2/26/2008 5:56 PM (GMT -6)   
luckily my appt. is for a Friday afternoon- my husband is driving me, & he better plan on taking care of our daughter the rest of that day & Saturday too! See, that thing about versed being an amnesiac- I read that & it sort of bothered me. So it's this awful experience but we just don't remember it?!?!?! Or are you really knocked out, asleep? I suppose it doesn't matter, either way. But I'm still a little nervous. I swear it's from all the flexible sig's- worst test ever done with no meds!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Iron supplement
Culturelle
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5165
   Posted 2/26/2008 6:32 PM (GMT -6)   
Some of us prefer to have light doses of Versed so that we can watch the scope monitor. It's interesting to see! With lighter dosing you drift in & out of reality, like snoozing-- as opposed to deep sleep. I like to know what's going on the whole time! At one c-scope I heard my doctor say: "There's a polyp." I made an extra effort to stay awake & look at the monitor & actually saw the snare cut the polyp off: neat! A trickle of blood appeared, but I didn't feel a thing-- thanks to the Demerol. The prep is the worst, most boring part of the whole process-- unless you also get some dumb questionnaire to fill out at the last minute once you arrive at the clinic. But, yes, your hubby should be drafted for childcare duty so that you can rest for at least 24 hrs post-procedure, especially if you're already fighting off a flare. Best wishes! Let us know how you're doing. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

sodbuster19
Regular Member


Date Joined Sep 2007
Total Posts : 343
   Posted 2/26/2008 8:17 PM (GMT -6)   
Don't worry. I had my last one done on Jan.2 2007 with NO drugs. I watched the whole thing. The worst part, other than the flushing the night before was having my colon pumped full of air, that was not a good feeling, but I was done in about 20min. Then I just drove myself home. But, all the air was comming out, and my drive home was with my windows down most of the way!! lol

<FONT color=#0000ff>Bad flares Guniess & hot wings

Generic Colazal, 2 3xday
Acidophilus Probotic 3 times/day


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 2/26/2008 8:54 PM (GMT -6)   
Eva - If your experience turns out to be anything like mine, the c-scope will be one hundred times better than the flex. sig. My flex. sig. experience was pretty miserable, but the c-scopes really weren't that bad. Yeah, the amnesia aspect of Versed kind of bothered me, too when I first read it, but then I realized I really didn't want to remember what it was like. They call it "twilight sedation" -- you're not completely knocked out, like with anesthesia (sp?) for surgery.
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D)


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5165
   Posted 2/26/2008 9:09 PM (GMT -6)   
I agree that flex-sigs can be the pits! The worst I ever had made me cry because the scope felt like fiery sandpaper passing thru-- this was during a severe flare. / Old Hat

serendipity24
Regular Member


Date Joined Jan 2008
Total Posts : 56
   Posted 2/27/2008 3:17 AM (GMT -6)   
Dude, I freakin love the Demerol/Versed combo! I've said some ridiculously funny things on the drive home! It's like taking the best, deepest sleep, going home giggly, and then passing out again for hours (after eating something, of course)!
Rachel

23 yrs old
Diagnosed with UC: March 2004 with probable IBS component

Currently taking:
Asacol 4pills 3x/day
Prograf 5mg/day
(Prograf is my miracle drug! It doesn't seem to be well known, but it's fantastic!)

Previously Tried:
Prednisone (works, but such awful side effects!), 6-MP (gave me acute pancreatitis), Entocort, Cipro (antibiotic), Bentyl, Canasa suppositories, a couple different enemas


Tethya
Regular Member


Date Joined Nov 2007
Total Posts : 27
   Posted 2/27/2008 8:01 AM (GMT -6)   
I had demerol/versed and it was HORRIBLE. I would never do it again. I woke up in the middle of the procedure, unable to move or open my eyes, but feeling this horrible painful scraping sensation in my colon. I also had mild anterograde memory loss for the next few days, and given that I was temporarily taking over for our office manager (I was a legal assistant in a prosecution office for a year) it made an already stressful situation moreso. Ugh.
Diagnosed summer of 2006 with ulcerative proctitis. In remission again, woot!
Daily:
1x 500mg 5ASA suppositories
2x ~500mg DHA (algal source)
2x 600mg curcumin
1g glutamine
probiotics


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 2/27/2008 9:16 AM (GMT -6)   
I've actually gotten anesthesia for almost all of my colonoscopies. Maybe the hospitals in Florida like to do that to get you to pay more for having the anesthesiologist standing there.
But really, as much as I hate doing the prep, I wish I could get a colonoscopy every year to see how things are looking in there. I haven't had one in three years now though.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
10mg Lexapro (for depression/social anxiety)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
10meq Potassium
 
 


bk1579
Regular Member


Date Joined Sep 2007
Total Posts : 100
   Posted 2/27/2008 9:39 AM (GMT -6)   
I had my first colonoscopy at the end of last year...Before that, I had a flex-sig done which was by far without a doubt, worse!!!If I can help it, I will never have another flex done...The c-scope was a piece of cake...I barely remember anything...I do remember watching some on the sreen as my dr. made his way through my intestines with the scope...I saw them take biopsies and didn't feel a thing...I felt no pain, but at one time I felt a little pressure, but didn't hurt at all...I guess that was them filling my intestines with air...My point being, I had much rather have a colonoscopy than the flex-sig any day...You will be fine!!! Oh, I'm not sure what sedative I had, all I know is that I didn't feel anything and it felt like I was only in there for about 5 minutes, but my husband assured me, it was much longer than that...Good luck and let us all know how it went...

28 Yrs old
Dx UC 3/07
4 Asacol 3x/day (when I remember to take them)
5mg Prednisone
Remicade (only had three infusions)
Fish Oil supplements
Multi-vitamine
 


Bigphule
Regular Member


Date Joined Dec 2007
Total Posts : 137
   Posted 2/27/2008 10:20 AM (GMT -6)   
The prep is far far far worse than the procedure. You're out cold for the procedure. They told me that the drugs would make me feel sleepy... yeah I don't even remember the Dr. comming in, or the procedure, or talking to me for about 20 mintues, or the drive home, or calling into work telling them that I wouldn't be there the next day. If I could get more days like that without the prep or the actual procedure I'd be in heaven!
Diagnosed UC 12/2007
 
 
Folic Acid 1mg x 1/day ~ On going
Asacol 400mg x 6/day ~ Failed (Allergic)
Prednisone 30mg x 1/day ~ On going recent change 2/26/2008
Sulfasalazine 1g x 3/day ~ 2/26/08 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5165
   Posted 2/27/2008 10:27 AM (GMT -6)   
Ediekristen-- you are right that some hospitals are requiring colonoscopy patients to submit to anesthesia, not just in Florida, & it can add a whole lot to the total bill. It happened to someone I know with Crohn's who gets an annual c-scope at NYU Medical Center; he said the added charge was a couple thousand dollars! He was furious about it & so was his gastro. The hospital ambulatory procedures unit likely makes the explanation that a "committee of experts" decided the anesthesia is necessary-- then even your own doctor cannot overrule them. It's pretty outrageous! Recently I saw on one of the AGA Websites that Aetna has deemed total anesthesia unnecessary for c-scope & won't reimburse it-- so the AGA submitted a formal protest to Aetna, stating that they are robbing doctors of their right to decide on individual cases! (But when the hospital committee robs your own doctor of the right to decide on your case, it's o.k.-- double standard!!!!) This infuriates me because I had an IV-drip forced on me at my last c-scope even though my gastro argued that only an injected sedative was necessary, which was what I had been getting w/o problems for 20+ yrs. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 2/27/2008 4:07 PM (GMT -6)   
funny you mention the IV drip, Old Hat, cause that's what I will be getting! I think it's standard procedure at the hospital I am going to, because I can recall seeing patients getting them for a colonoscopy while I was lying there with nothing for the flex. sig's! Ok- so only one poster has had a bad experience with the Demerol/Versed combo, so I'm going to cross my fingers that I have a good one! I'm actually looking forward to the sleeping aspect, as the past few weeks have been up & down & up & down all night, due to the mini-flare. So frustrating! I have a remi infusion this coming Monday, so hopefully my nights will be better.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Iron supplement
Culturelle
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/27/2008 4:55 PM (GMT -6)   
I'm very grateful for the IV drugs. My first GI did a C-scope and hadn't given me quite enough medication. I was in a bad flare, and it was very painful when they put air into my colon. So now I'm happy to take the drugs. In fact, I've declined to have the sigmoidoscopy, and said "just schedule a colonoscopy for me instead."

To clarify, IV medications are not "total anesthesia." It is "conscious sedation," in that you can be roused from your sleepiness to move or whatever. You're not under nearly as deep, it's more like being given a big dose of Xanax for an MRI. In the past 15 years, they've started using monitoring equipment and keeping the IV in during this because in some cases people can have reactions and it can be life-saving. If a doctor wants to offer his patients procedures without sedation, he has the choice to go somewhere other than that hospital.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


Yujin
Regular Member


Date Joined Feb 2008
Total Posts : 55
   Posted 2/27/2008 5:00 PM (GMT -6)   
When i had my sigmoidoscopy.. im awake... and im watching my colon on a screen.. you will feel something a liitle bit especially when they're doing the suction... but it does not hurt...
Diagnosed with UC on 2007. Undergone Fistulotomy on 2005. Taking Generic Asacol 400mg 3X a day... "HEALTH IS WEALTH"


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5165
   Posted 2/27/2008 6:35 PM (GMT -6)   
Eva Lou-- you should do fine with Demerol/Versed. *Jen* posted last month that she was given Phenergan in addition to relieve anxiety prior to her 1st c-scope, but it apparently caused her some dizziness the day after procedure. So-- just beware of that drug! xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxJudilyn-- the doctors do not have the option to go somewhere else in my area. They have to use the institution where they are affiliated, unless they can afford to set up a private clinic, which the tight & pricey real estate market makes pretty much impossible. The hospitals mainly care about risk management-- except for the archdiocesan-run facility. There patients get toast + juice in the procedure recovery room! I much prefer that to a continuing IV drip! A GP neighbor of mine told me recently that he took his wife there for c-scope because of their patient-friendly environment, even though he himself is affiliated with 2 other general hospitals! / Old Hat
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