It's likely she may want to do her own scope, rather than trust another's observations. Be sure to tell her about
the milk, because people with UC have a higher likelihood of lactose intolerance. She'll push on your belly and ask if it hurts, and ask you about
other illnesses you've had. Be sure to take a list of any medications you take regularly. Sometimes it's hard to remember things when you feel time pressure, such as in a doctor's office. So also take a list of the questions you want to have answered.
I'm glad you were able to get in quickly, MathGeek. Surgeons are indispensible for what they do, but sometimes when you go to see them, they're looking to see if you need surgery, and if not, they just drop you like a bad blind date.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal, Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
Posted 3/5/2008 3:50 PM (GMT -7)
Ok, so finally got some answers!! The GI doc was appalled at what the surgeon told me! And said no-no to the imodium (which I only tried once because the surgeon told me to). He took the pictures of the scope, so no need to do his own. He was disappointed in the lack of info on the colonoscopy report but did a lot of staring at the pics. He put me on Asacol and Rowasa and I'm supposed to call in 2 weeks to let them know if my erythema nodusm (bumps on my legs) are gone. He said they are linked to the UC. If not a quick burst of prednisone. So I finally feel like someone listened and now I'm actually going to get some treatment! :)
They also took blood for: Comprehensive Metobolic Panel, CBC with platelet and a c-Reactive Protein.
Any idea what they're looking for?
Thanks again for the replies!!
Posted 3/5/2008 3:55 PM (GMT -7)
That's great you are getting the necessary treatment now.
Here is a helpful Web site that explains what various lab tests, including the ones you asked about
, test for:
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv
Posted 3/5/2008 7:27 PM (GMT -7)
Your situation sounds very similar to mine, except I lost 50 lbs & didn't have much blood or D, just frequency (but I have been on pain meds, so maybe that firmed me up.) I went to a general surgeon for a c-scope after they thought I had colon cancer & he found ulcers in my colon, said it was mild & the biopsy came back active colitis too. The surgeon said I didn't have UC, and I was so glad. I was told it would probably clear up in a month of azulfidine. After the month, I lost more weight & got much more sick. Bugged my PCP, who later told me she was "hoping" it wasn't IBD. I ended up pushing to see a GI who once she saw me said I FOR SURE had IBD, she just wasn't sure which. (I personally think it's CD, but that's just my own opinion.) She was disappointed in my colonoscopy, too. She did say that my report had "crypt distortion" which means IBD, I guess. Grrr.... Why they couldn't have figured this out way back in October, I don't know. I am sure glad you didn't have the waiting I did. I still don't have a concrete dx or UC or CD. Instead, I am scheduled for ANOTHER colonscopy! (GI wants to look herself & needs biopsies & a look at my cecum & ileum because the general surgeon didn't go there but that is where my problem is showing on the small bowel series.) Be thankful you don't have to repeat the scope, it's such a bummer.
I don't have problems with milk. You need to look into lactose intolerance, that could be a big part of your problem. You should be tested for celiac also.
Don't be surprised if you have to do a small bowel series, too.
Watch the fiber, too. I am on a low-residue, low-fiber diet right now. It's no fun, but I was told once the inflammation goes down then I can re-introduce foods to see how they react with my guts.
I had a quick burst of prednisone, but it didn't work for me, so now I am on it for at least 6-8 weeks, which I am very bummed about. Be very glad that they have started you on good treatment, it seems that finding the right meds is the biggest hurdle to jump with IBD.
Keep us posted. I am very interested in your story as it has similarities to my own. Kindred spirit!! ; )
Live for today, for tomorrow you might just get hit by a semi.
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