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CheesePuff
Regular Member


Date Joined Oct 2007
Total Posts : 92
   Posted 2/26/2008 11:27 AM (GMT -6)   
It's time to rant again ! I don't post here often, but do read the posts on a daily basis to help me cope with the UC.
 
I had another GI visit this morning, which once again didn't go well. They are adamant I should be on Imuran (Azamun) as my colitis is so severe. I have been off it now for 4 months as we're trying for a baby and would prefer to be without any of the "strong" medication. He doesn't see any problems me being on Imuran while pregnant and even said that latest research showed that it is not harmful to the baby. I also asked about breastfeeding and he promised to check that out for my next visit. Anyhow, they asked me to really think about it and go back in 6 weeks time to re-visit the idea.
 
All of the above is fine, but I couldn't believe when the doctor mentioned that it might take a long time for me to get pregnant, because of the UC !! I never heard that before... Has anyone any ideas?
 
Also, I was also diagnosed with gallstones to add to the misery...
 
Sorry for the long post :)

UC since 1995
Pan- Colitis diagnosed May 2007
100 mg Imuran TTC early next year
3 * 800mg Asacol
Iron Supplement
400 mg Folic acid
Multi vitamin supplement


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 2/26/2008 12:44 PM (GMT -6)   
Although I have not heard of this specifically it sure makes sense to me. Whenever your body is having to use all of its resources to combat disease it's not able to do more. Taking on a pregnancy while in the midst of more than a mild flare is probably asking too much of your physiology. I think there are many women who have had successful births and healthy babies while staying on 6mp or Imuran. Maybe they will see your post and comment.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/26/2008 12:51 PM (GMT -6)   
you can search this site for imuran and pregnancy, there is some good info. I plan to be on azathioprine when pregnant, however, I have researhed it's not safe for breastfeeding.........I have not a clue on why it why only being pg with it is ok and bfing is not???

I have not heard of fertility problems with UC (unless your colon is removed), but can only guess that if your body is not in remission it makes sense that it would be more difficult to get pg.
Beth, 32
Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday.  Potassium 100mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 2/26/2008 10:24 PM (GMT -6)   
This is not what I was told when we were trying to conceive. According to my GI and OB, it is not harder for UC patients to conceive. The issue comes in maintaining the pregnancy if you are in a flare. There is a higher risk of miscarriage for UC and Crohn's patients who flare during the pregnancy.

Good luck to you! It took my husband and I several years of trying before we became pregnant, so I know what the wait feels like. Hang in there... because when it does happen, it is absolutely wonderful and well worth the wait.
Proud new mom of a beautiful baby boy!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/27/2008 12:58 AM (GMT -6)   
Consider trying the Specific Carbohydrate diet. Several pregnant women have tried it with success. Do a search for it on google.
Pharmacy Student
Class of 2009, MWU

Diagnosed 8/99.  Suffered for almost 10 years.  I am currently on the Specific Carbohydrate Diet and am nearning remission.  I feel fantastic!  My next goal is to gain the 15 lbs I lost 6 weeks ago and start living life again.  I have lost so many years to this disease. 


I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.  My goal is to open up a pharmacy and take care of my patients(particularly explaining what the drugs do to you), compound special medications, and have a great practice. 

3200 mg Asacol, 5 mg prednisone
HAVE YOU CONSIDERED THE SCD DIET? IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!


CheesePuff
Regular Member


Date Joined Oct 2007
Total Posts : 92
   Posted 2/27/2008 2:47 AM (GMT -6)   

Thanks for the replies ! I know I need to decide myself regarding th eImuran, but it's always good to hear your inputs :-)

I will give this mild flare another week and see what happens. If there is no improvement, I probably will go back on the Imuran, just for my own sake.

Let's hope it doesn't take too long for us to get pregnant, as I'm an impatient person cool

 


UC since 1995
Pan- Colitis diagnosed May 2007
100 mg Imuran TTC early next year
3 * 800mg Asacol
Iron Supplement
400 mg Folic acid
Multi vitamin supplement


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 2/27/2008 2:20 PM (GMT -6)   
If you're in a moderate to severe flare with weight loss, that could certainly make it difficult to become pregnant. In my first two miserable years, my weight and bodyfat fell low enough my periods stopped altogether for several months.
Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 


tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 2/27/2008 3:52 PM (GMT -6)   
I had my first flare with UC when I was 32 weeks pregnant w/ baby #2.  At the time I didn't even know I had UC-got my first colonoscopy and diagnosis 3 days after the baby was born at 35 weeks.
Anyhow, I have been doing a LOT of research on pregnancy and UC, as I'd love to have another child but am terrified of flaring again like that-I really truly almost lost the baby and was so, so sick...  I'm at work and don't have access to any of the research I've found, but will do my best to find it later today or tomorrow, but here's what I have learned, from OB's, from internists, and from GI's, plus from my own research:
-your UC has no bearing on your ability to conceive, provided you're in remission.
-women who are in remission at the time of conception are likely to stay in remission throughout pregnancy.
-women who are in mild flares at the time of conception are more likely to flare during preg.
-even if you flared first when preg, you're not likely to flare again if in remission at time of conception.
-it is MUCH, MUCH safer for you to be on ALL mts meds (imuran, remi, etc) during preg than to risk a flare when pregnant. 
-It's recommended that you be in remission for 3-6 months prior to conception.
Moral of the story: a UC flare is the most dangerous thing to your baby when pregnant. Much more dangerous than any of the maintenence meds are.
I truly wish you the best of luck here, I'm in the same boat with hoping for another pregnancy some time this year or next.  I know you want what is very best for your baby and your health and will make the right choice!
Sorry for the long post!
Erica, 31
Pancolitis, diagnosed July 2006, at age 29
Imuran, Asacol, Rowasa*(new!)
Experimenting with diet, live culture yogurt and probiotics


uc_free
Veteran Member


Date Joined May 2007
Total Posts : 646
   Posted 2/27/2008 8:23 PM (GMT -6)   
I had two perfectly healthy babies after taking Imuran for both pgs in their entirety.  The only problem I faced was not being able to breastfeed after the kids were born.  There is not much research in this area so they are still advising against. 
 
 
Tara

Diagnosed April 1998 - Pancolitis
Currently on (per day):
Pentasa 4 gms
Imuran 100 mgs

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