Posted 2/26/2008 6:04 PM (GMT -6)
Hi blueclassring..

Could you explain what is Specific Carbohydrate Diet?
Diagnosed with UC on 2007. Undergone Fistulotomy on 2005. Taking Generic Asacol 400mg 3X a day... "HEALTH IS WEALTH"

Posted 2/26/2008 6:52 PM (GMT -6)
Hi and welcome to HW?sOUNDS LIKE THE START OF A FLARE TO ME.Thin stools mean inflamation normally.Sometimes flares just come out of the blue like this unfortunatly.Hopefully you can get into your docs and try another med to get it sorted
Marty
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/pred/colofac


       
            http://www.myspace.com/martybuzz1<FONT]

Posted 2/27/2008 2:00 AM (GMT -6)
do a search on google for the specific carbohydrate diet. it has worked for many including me!!
Pharmacy Student
Class of 2009, MWU

Diagnosed 8/99.  Suffered for almost 10 years.  I am currently on the Specific Carbohydrate Diet and am nearning remission.  I feel fantastic!  My next goal is to gain the 15 lbs I lost 6 weeks ago and start living life again.  I have lost so many years to this disease. 


I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.  My goal is to open up a pharmacy and take care of my patients(particularly explaining what the drugs do to you), compound special medications, and have a great practice. 

3200 mg Asacol, 5 mg prednisone
HAVE YOU CONSIDERED THE SCD DIET? IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!

Posted 2/27/2008 4:10 AM (GMT -6)
what happens if you really scale back the diet? like just cut down to easily digestible foods...not necessarily the BRAT diet, but close? And a drug not many know about it Prograf (Tacrolimus). It's in the same family as cyclosporine, but for me has no side effects and has kept me in remission for almost a year now! And don't be afraid to call your doc! It's SO much better to catch it and start medicating early than to wait! You beat the odds once before, and your doc knows it, so don't be afraid to face it again! Good luck!
Rachel

23 yrs old
Diagnosed with UC: March 2004 with probable IBS component

Currently taking:
Asacol 4pills 3x/day
Prograf 5mg/day
(Prograf is my miracle drug! It doesn't seem to be well known, but it's fantastic!)

Previously Tried:
Prednisone (works, but such awful side effects!), 6-MP (gave me acute pancreatitis), Entocort, Cipro (antibiotic), Bentyl, Canasa suppositories, a couple different enemas

Posted 2/27/2008 11:59 AM (GMT -6)
Hello again,

The following are medications that we have tried:
Asacaol up to 12 pills per day-worked for a years until this recent flare
Salofalk supp- same as Asacol worked great until this flare

During my serious flare we tried:
Prednisone-up to 40 mg day-have been on that 3 different times during this flare. My GI used it only as a last resort. She hates the drug! Yes it works but has affected my joints.

Betnesol enemas-a steroid that works really well -after the third enema I could not believe the difference it made.NAd this was during the very worst of my flare.

Azathirorpine-made me violently ill 1 hr after taking it
Methotrexate- now on 25 mg per week and was doing awesome

Remicade is not approved in Canada for use with UC but is approved with Chrohn's-so legally my GI cannot prescribe it to me.

Something occured to me last night. The "pain" which I am having is very different than anything I have felt before. Its not crampy at all or intense. Its just uncomfortable for a few seconds then gone. Then it occured to me that I helped a friend move the other day and since then I have been having this weird "pain". Could there be a corelation or just coincidence in timing?
Today my BMs definately on the softer side and am gonna call my GI doc today. :(````
Posted 2/27/2008 3:19 PM (GMT -6)
ORnurse, I'm pretty sure Balsalazide (Colazal) is approved in Canada, I think we have some other Canadians on it. It's helped some of us who either couldn't tolerate Asacol or who it stopped working for. You might ask about that.

Also, consider a good probiotic. VSL#3, Culturelle and Primidophilus Reuteri are some of the ones several members here take, but there are a lot of different brands on the market. They can help replace the normal intestinal flora that get overwhelmed by the disease, and sometimes are very helpful.

I hope you and your doctor are able to come up with a plan that works. Steroids are no way to live, as my anoxic necrotic shoulders can tell you. Let us know how you're doing.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

Posted 2/27/2008 3:29 PM (GMT -6)
Yujin said...
Could you explain what is Specific Carbohydrate Diet?

 
It's a diet developed for IBD that eliminates certain carbohydrates that are difficult for a compromised digestion to break down and absorb. These improperly digested food particles go on to feed bad gut flora, which increases symptoms... hence the title of the book "Breaking the Vicious Cycle."
 
Here's a link to the book
 
and here's a link to the official SCD Web site.
 
To the original poster, I'd encourage you to check out alternative and supportive healing options that may decrease your need for meds. Jini Patel Thompson's book Listen to Your Gut is a comprehensive look at everything from dietary manipulations to oriental medicine.
 
http://www.caramal.com/ltyg/ltygdescription.asp
Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 

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