I am sooo annoyed at all of my family, friends, any one i meet. I feel like my UC is ALWAYS the topic of conversation. Everything we do deals with food. My friends say lets go out and get a pizza, then its oh wait Liz can't, or Liz what CAN you eat, why can't you eat THAT. And it even seems like some of my friends like to tell people about
it, and will start talking about
me as if I am not there. Or i go over to my boyfriends house and its a meal planned around me, which is very sweet, but she makes it KNOWN and everyone else makes a big deal about
it. I feel like my boyfriend has stopped inviting me becuase its such a pain for her! I just really feel like i can not take it any more. And the prednisone side effects are all i can think about
, i'm always hungry (although i am managing still to loose weight) but then i will complane about
my face being huge due to the pred. and i feel like people just stare at me. I even had one person ask if i had gotten my wisdom teeth removed! And of course doctors don't make it any better by pointing it out during appointments "your face looks swollen from the pred." UGGGH And the not drinking concept is not understood in College. I can't even go out any more with out the entire party knowing i can't drink. I have asked my really close friends to stop asking me about
my eating, and quizzing me on my choices. I told them that i understand that they are trying to be helpful, and want to understand it better or more, but that i just can't take it! I know what I can and can't eat, and ever time we sit down for a meal I don't want to be asked if I see somthing i can eat or walking around the super market!
okay sorry. I just feel like i but on such a happy face all the time, and I just needed some place to spill out all this frustration. Normaly i have a very positive outlook on my UC, it is getting better and i have a great support system. Maybe its just one of those mood swing days (my boyfriends hates that i use it as an excuse). Thanks for listening or reading if you read this far, i don't mean to be annoying. But that does feel better.
age 20, diagnosed december 2006
meds: Asacol 4 pills 3x a day; 6-mp 75mg MWF, 50mg SSTTH; iron supplament; protonix; prednisone 25mg for one more week! (in the middle of a tapper, down from 40mg started 1/1/08)
Remicade????--pondering, next step