Active UC but few symptoms?

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barnsbury
Regular Member


Date Joined Jan 2006
Total Posts : 479
   Posted 2/27/2008 10:36 AM (GMT -6)   
Hi everyone
 
Is it possible to have moderate or even severely active UC but little in the way of symptoms?
 
I am flaring but my symptoms are not too bad right now.  But a recent scope showed that my UC was severe.  I was pretty shocked.  Has anyone else experienced similar?
 
Thanks
Back on Pred - 7mg - Steroid Dependent :-(
Azathioprine 175mg
Colazide x3
Actonel 35mg
Predfoam Enema
EPA Fish Oils, Various Homeopathic meds
Asacol x 9, Lialda (Mezavant)
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 2/27/2008 10:49 AM (GMT -6)   
I have had this experience as well.

I had a scope in aug of 2006 that said I was in a severe flare. I was shocked. He also said my UC had spread and was much worse than ever. I had very few symptoms. I thought it was under control with rowasa and asacol. I was so busy that i think i must not have noticed the symptoms becuase in Jan07 it was like a faucet turned on. My symptoms exploded. I don't want to scare you with my experience, it doesn't mean your symptoms will get worse, just thought i'd share.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, started at 60 mg 1/07, 15 mg pred, down to 10 mg 1/11/08...down to 10/5...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08 now at 150mg imuran
waiting to be scheduled for remicade.
Prontonix once daily for acid reflux, zofran twice daily for nausea, darvocet for pain
antispasmodics didn't work.


quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 2/27/2008 1:33 PM (GMT -6)   
Hi..is your UC throughout or limited? It's possible the pred has something to do with it? are you tapering at this time?

My doc did state to me there were some patients who had obvious active flares visually through a scope...but felt "fine". On the other hand, there have also been patients who have extreme symptoms but visually they had very mild inflammation.

Very frustrating indeed for both patients and doctors I would think....and it could be why some patients have spreading of their disease, few symptoms and then whammmmo!


KSU..did you have biopsies done and the results of them yet?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 2/28/2008 12:21 PM (GMT -6)   
I feel I am one of the lucky (haha) few to have minimal symptoms and hardly ever felt I had UC except for of course tremendous amounts of blood, mucus and Diahrea and weight loss. Although my entire colon was inflamed when I had colonoscopy 2 months after my UC started I never had gas, bloating, pain, discomfort or anything, just Bloody D every everytime time i went. I only had horrible pain for 2 months during my UC and that's when I took amoxicillen an antibiotic.
                                                                                         
28/M/TX
Severe Colitis (pancolitis) since January 9, 2005
currently:  I must say Under Control, 1 formed BM/day
RX/day:  Tapered Prednisone completely January 2008. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
(believe me I know my body and do not recommend doing this!!!)
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it. For Lent I gave up peanuts, sweets, and fried foods...
 

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