Since most of the people who post are flaring, and leave once they're in remission, I haven't seen (and I did search) any topics on what people do when they're in remission.
I should probably ask my GI, who I haven't actually seen in over a year, but he's out of the way to get to (1:15 by bus each way).
When I was flaring, he prescribed 2x (1g) Salofalk suppositories and 4g oral Salofalk daily, but I eventually ended up only taking the suppositories, because the oral 5ASAs don't do much for me. Cost was also an factor in that choice.
Generally, I think people have said that they take oral meds for remission, and only add suppositories (or enemas) when they're flaring, is that an accurate generalization? Is it a bad idea to take only suppositories, even though it's just proctitis? I've also cut back to using supps only once a day; maybe that's not enough, but I HATE them.
I also plan to keep taking probiotics (5 billion CFU), as well as avoiding oil, sugar, sulphites, and any other high-fat or processed foods (not that I generally eat any of those anyway, except on special occasions). I've started eating ground flax on my salad again, and eating eggplant and apples without peeling them, although I still peel potatoes because of the higher solanine/glycoalkaloid levels in the skin.
I'm going to keep taking curcumin, since it is an all-round great anti-inflammatory, and may help prevent colorectal cancer. I'm also trying to fit more cardio into my life, since exercise is also a powerful anti-inflammatory. I'm undecided about
continuing to take aloe gel... it may have helped a bit when I was flaring, but I don't know if it can do anything for me while I'm in remission.
Just wondering what peoples' thoughts are on my plan??
Thanks in advance
Diagnosed summer of 2006 with ulcerative proctitis. In remission again, woot!
1x 500mg 5ASA suppositories
2x ~500mg DHA (algal source)
2x 600mg curcumin