Since most of the people who post are flaring, and leave once they're in remission, I haven't seen (and I did search) any topics on what people do when they're in remission.
I should probably ask my GI, who I haven't actually seen in over a year, but he's out of the way to get to (1:15 by bus each way).
When I was flaring, he prescribed 2x (1g) Salofalk suppositories and 4g oral Salofalk daily, but I eventually ended up only taking the suppositories, because the oral 5ASAs don't do much for me. Cost was also an factor in that choice.
Generally, I think people have said that they take oral meds for remission, and only add suppositories (or enemas) when they're flaring, is that an accurate generalization? Is it a bad idea to take only suppositories, even though it's just proctitis? I've also cut back to using supps only once a day; maybe that's not enough, but I HATE them.
I also plan to keep taking probiotics (5 billion CFU), as well as avoiding oil, sugar, sulphites, and any other high-fat or processed foods (not that I generally eat any of those anyway, except on special occasions). I've started eating ground flax on my salad again, and eating eggplant and apples without peeling them, although I still peel potatoes because of the higher solanine/glycoalkaloid levels in the skin.
I'm going to keep taking curcumin, since it is an all-round great anti-inflammatory, and may help prevent colorectal cancer. I'm also trying to fit more cardio into my life, since exercise is also a powerful anti-inflammatory. I'm undecided about
continuing to take aloe gel... it may have helped a bit when I was flaring, but I don't know if it can do anything for me while I'm in remission.
Just wondering what peoples' thoughts are on my plan??
Thanks in advance