prebiotic drink success

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yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 2/27/2008 4:28 PM (GMT -6)   
These are different than probiotics but have allowed me to come off my steroids and
colozal, does anybody have more info about these?


----------------------------

off prednisone and colozal!!!!! and hope to stay off

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 2/27/2008 8:54 PM (GMT -6)   
What kind of prebiotic drink did you have success with? Welcome to the forum, by the way.
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D)


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 2/28/2008 12:38 AM (GMT -6)   
Thanks for welcoming me to the site, there is a ton of great information here.
 
The name of the drink is Haldi, and it seems to work, at least what I have been told by decreasing inflammation at the cellular level and microscopic level and allowing a better environment for the whole gut and internal organs, and allowing the whole digestive tract, from esophagus to rectum, (my GERD is no longer a problem either),  to function at a more normal level.  Thats about all I know, but the bonus is that it tastes really good too, and I drink it daily.
 
 
 
 
--------------------------------------------------------
 
yuckygut
 
now off steroids and colozal

quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 2/28/2008 2:41 AM (GMT -6)   
Prebiotics are fibre (and sugar) that the digestive tract needs for certain bacteria to produce/thrive.

I can't say that's the reason you're off the meds, however...

Haldi is turmeric from what I've read...didn't read it was a prebiotic, however. there are a few members taking turmeric.

Welcome to the forum....where in the colon is your UC ..limited or throughout? How long have you had it?

quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 2/28/2008 10:42:43 AM (GMT-7)


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 2/28/2008 8:23 AM (GMT -6)   
Where can I find that prebiotic?
diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 3/3/2008 3:54 PM (GMT -6)   
I have been dealing with u.c. for almost 10 years now, but have been off
my meds now for about 6 months, and last months scope showed my colon
inflammation much less than last years, now just in the lower 1/2 of dec.
colon, and much less "grumpy" as my gastroenterologist told me. I found
the Haldi drinks at Whole foods stores when I was in D.C., and in New York
City on business. I actually ate ice cream and salad in the last month for
the first time in a long long time. They have a web site on the bottle
that says haldi4health.com

--------------------------------------------

yuckygut
diagnosed 1998
now off steroids and colozal

yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 3/5/2008 7:00 PM (GMT -6)   
On the Haldi website they actually do not say it is a prebiotic, just that it is good for diges
tive health, and that it is organic.  I think I will actually go ahead and contact them to get more info., but I wouldnt come off the drinks, because I truly believe they helped me come off my drugs
and go into remission.
 
Any other info out there on probiotics?
 
 
 
------------------------------------------------
yuckygut
diagnosed 1998
now off steroids and colozal tongue

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 3/5/2008 9:17 PM (GMT -6)   
There's a yummy drink called Synergy I've been getting into lately. It is kombucha, a raw food that has probiotics in it. You can get lots of different flavors, but I really like the raspberry one. They're kinda pricey, which is the only downside. I don't know if they're doing anything for my UC, but I like them anyway. It also has amino acids enzymes, antioxidants and polyphenols in it.

Many of us take a probiotic daily. I am currently taking Primadophilus Reuteri, 1 capsule twice a day. You can order it from iherb.com. It's reasonably priced and I think it's helped my symptoms. For a short while I was taking inulin (a prebiotic). It comes in powdered form and you can add it to drinks or food. I didn't keep up with it long enough to see if it helped or not because I got lazy/sick of remembering it everyday. There have been quite a few posts on probiotics here. If you do a search in the blue box at the top of the page you may find something. Or google probiotics and ulcerative colitis.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


winni
Regular Member


Date Joined Jul 2006
Total Posts : 179
   Posted 3/5/2008 10:18 PM (GMT -6)   
sara 14
kombucha also has tons of probiotics, and you can actually brew it at home if you want. those synergy koimbuchas are usually about 4 bucks a bottle. I brew my own and it really takes very little time/work, and the best part is you have tons of kombucha for almost nothing! all you need is sugar, tea and water and a culture. cultures live for about a week, so you can get one in the mail. let me know if your interested.
Winni, 24

Diagnosed UC july 2006.
medications: colazal 9 daily, cortifoam 2x daily, 30 mg pred
supplements:calcium, aloe gel, pro-biotics
osteopenia from all this prednisone.
http://www.myspace.com/harshrealmbro


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 3/6/2008 12:37 PM (GMT -6)   
I guess my question is do these probiotics help you by decreasing your symptoms after eating, or have they helped you come off of any meds, which by the way, I was loosing my hair and feeling miserable with my previous treatment of steroids and colozal. And at least for me my saving grace was the Haldi drinks, which when I stopped drinking them about 3 months for a week I immediately relapsed. I have been maintained on 1 a day. I figure I am going to buy a drink daily anyway, might as well drink something that is beneficial to me.


------------------------------------------------------------------

yuckygut
diagnosed 1998
now off steroids and colozal

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 3/6/2008 1:21 PM (GMT -6)   
winni - Yes, I am very interested in brewing my own. Yeah, the drinks are $4 a bottle here, too...really adds up after a while. You can email me if you have time/want to. My email is in my profile. Thanks!

yuckygut - Taking probiotics seemed to lessen the number of BMs I was having and helped decrease my bleeding, in conjunction with my meds. I can't tell how much they helped vs. how much my meds helped.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 3/8/2008 11:06 AM (GMT -6)   
winni, can you talk about the basics of brewing your own probiotics, do you do it in your own kitchen? Are they ok to take with the Haldi drinks, which act as a prebiotic/anti-inflammatory?

--------------------------------------------------------

yuckygut
diagnosed 1998
now off steroids and colozal
drink one Haldi drink daily

Leelin
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/8/2008 5:34 PM (GMT -6)   
Are any of you familiar with "Digestive Advantage" for Chrons and Colitis? I think it is fairly new and over the counter from what I understand. I had one person recommend it that has Chrons.

winni
Regular Member


Date Joined Jul 2006
Total Posts : 179
   Posted 3/8/2008 7:12 PM (GMT -6)   
Uh, kombucha is chock full of probiotics, so i guess brewing your own kombucha is basically brewing pro-biotics, but its not the exact same thing.
Yes I do it in my kitchen. I have a 2 gallon glass jar that is covered with a piece of cloth with an elastic around it. The kombucha needs to breathe. So you get a culture, if you actually just pour a bottle of unflavered synergy in the jar and leave it, it will grow in a couple days.
So then you take a gallon of spring water and boil it, and steep tea in it. I use pu-erh because its supposed to be good for digestion but you can use whatever you want. Then you add 1 cup of sugar and boil it again for 5 minutes or so. then once the mixture is room temperature you pour it over the culture in your jar. Then in about 2 weeks start ladleing out the kombucha and drinking it, you can add a splash of juice to each cup if you want. The longer it ferments the more acidic it becomes, so if yoou drink a lot then you just pour a new batch on every week or so and continuously ladle and drink from the jar, or you can ladle it all out into bottles and re-brew. just google brew kombucha and you will find all kinds of sites with pictures and things.
i just got some of those drink things in the mail, but im nervous about them because they have a lot of sugar. maybe ill try one tomorrow.
Winni, 24

Diagnosed UC july 2006.
medications: colazal 9 daily, cortifoam 2x daily, 30 mg pred
supplements:calcium, aloe gel, pro-biotics
osteopenia from all this prednisone.
http://www.myspace.com/harshrealmbro


sodbuster19
Regular Member


Date Joined Sep 2007
Total Posts : 343
   Posted 3/8/2008 8:57 PM (GMT -6)   
My last flare was over a yr ago. It was bad, and I went out and bought Digestive Advantage. Once I started using it, within 1 week, I was doing sooooo much better. I used it for about 8 weeks total, then stoped because my flare was over. Then, I just kept taking my 12 asacol a day(that's what I was on) and have been in remission ever since. Since I had some problems with changes with my health ins, I am now on Colazal(generic) and take 4 a day, and a few months ago discoverd probotics and take them as well. So far so good. But I would recomend Digestive Advantage. I took 2 pills a day for the first 2 weeks, then cut it down to 1 time a day. I think it might help you as well. Give it a shot. It's pretty cheap cost wise too!!

<FONT color=#0000ff>Bad flares Guniess & hot wings

Generic Colazal, 2 3xday
Acidophilus Probotic 3 times/day


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 3/11/2008 4:31 PM (GMT -6)   

winni

 

Do the bacteria from the probiotics get destroyed from the acidity of gastric contents?  Is there a smell from it being in your kitchen, I am sensitive to foul smelling  odors? 

 

------------------------------------------

yuckygut

diagnosed 1998

drink 1 Haldi daily

now off colozal and steroids tongue


Leelin
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/11/2008 4:56 PM (GMT -6)   
Sodbuster: Thanks for the reassurance. I think I will give the Digestive Advantage a try. I took myself off the Asacol the past couple days. I was feeling so nauseaus, dizzy, just lousy. I'll try the Dig. Advt. for a while and see how I do.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 3/11/2008 8:13 PM (GMT -6)   
yuckygut said...

Do the bacteria from the probiotics get destroyed from the acidity of gastric contents?

You can buy enteric-coated probiotics. The enteric coating is supposed to not let them release until they get to the intestines, protecting them from stomach acid. I don't know how the probiotics in things like kefir, yogurt and kombucha survive the acid, but maybe the prebiotics help them to do this...not sure about that.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


winni
Regular Member


Date Joined Jul 2006
Total Posts : 179
   Posted 3/11/2008 8:15 PM (GMT -6)   
yucky gut-
no, no smell in the kitchen, but the drink itself smells a little/tastes a little vinegary so i dont know youd like it. I love at and am obsessed with it. I drank it before the uc. my roomates were wary cuz they said it looked like i was growing aliens in the kitchen, but now i have to constantly rebrew because they are always raiding it. One claims its the perfect hangover cure, and another drinks it whenever he is tired and says it makes him feel instantly happy, awake and good.
When i first tried it i thought it tasted like beer and hated it, but ut always made me feel so good. Now i love the taste, but its definetly an acquired one...
Winni, 24

Diagnosed UC july 2006.
medications: colazal 9 daily, cortifoam 2x daily, 30 mg pred
supplements:calcium, aloe gel, pro-biotics
osteopenia from all this prednisone.
http://www.myspace.com/harshrealmbro


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 3/12/2008 4:52 PM (GMT -6)   

Thanks winni and Sarah for the info.  I like the idea of brewing them in my kitchen and will try that, and I will continue to do research on the probiotics, as I am interested if they decrease inflammation, not only in my colon, but throughout my whole GI tract, as I believe that is one of the ways the Haldi drinks work.  I did read how they assist in the immune system and chronic pain of people with fibromyalgia, it said the digestive tract has the largest amount of immune cells in the whole body, maybe it works in that way as well, and I also saw an article talking about runners and weight lifters using it as well to help them train, as some kind of recovery from inflammation thing.    thanks again for the new info,

 

----------------------------------------------------

yuckygut

diagnosed 1998

drink 1 Haldi daily

now off prednisone and colozal  


MisKay
Regular Member


Date Joined Jan 2008
Total Posts : 21
   Posted 3/16/2008 12:00 PM (GMT -6)   
Haldi is GREAT!

The green tea is good, I found the berry flavor gross.

Its cheaper to order cases on the website. I have turned others onto it because its full of anti oxidents as well.

If you go to the website you can order a 4 bottle sampler for the cost of shipping, I think it was $2.60.

As someone who takes too many pills that sometimes I give up, this drink is a good way to get the probiotics I need.

DK

CanMan
Regular Member


Date Joined Jan 2008
Total Posts : 27
   Posted 3/16/2008 4:07 PM (GMT -6)   
yuckygut, how long were you on Haldi before it helped you? I would like to give it a try but how long do you think I need to drink before I know whether it will work or not?

Chris 21/M
Diagnosed Sept. 07
Salofalk 500mg
Steroid enema
Prednisone
Fish Oil, Multivitamin
Status: 1-3 BMs a day. Each one D or lose and each one urgent!


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 3/18/2008 4:25 AM (GMT -6)   

Canman

 

I started drinking Haldi daily and after a about a week I noticed a improvement with less cramping and a decrease in my bloody stools.  After a month I started to wean myself off my steriods etc..  But I really didnt get it until after I had been off my meds for months and feeling great, I started to wean myself off the Haldi and immediately relapsed, it took me 2-3 weeks to calm it down from there.  Since then I have become a believer, weather it is a prebiotic or anti inflammatory or both, for me, and for my good friend with IBS, it has been a life saver.  A bottle a day helps me keep the gastroenterologist and surgeon away.   An added bonus is that I enjoy drinking it because it tastes good and is organic certified, which I think is important.  

-----------------------------

yuckygut

diagnosed 1998

drink one Haldi daily

now off steroids and colozal tongue   


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 3/21/2008 12:45 PM (GMT -6)   
winni/sarah,

as i am getting closer to trying and brew my own probiotics, and since you have both taken them for a while, I was curious if the probiotics will increase, or give me more gas?

-----------------------------------------

yuckygut
diagnosed 1998
drink one Haldi daily and
now off steroids and colozal

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 3/21/2008 1:14 PM (GMT -6)   
Probiotics can increase gas for some people during the first week or two that they take them. I didn't have that happen personally. If it happens to you, it should go away in a couple weeks. It might also help to increase the probiotics slowly.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv

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