new member & in need of some advice!

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love in a mist
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 2/27/2008 6:52 PM (GMT -6)   
Hello everyone,

I found this site a couple of nights ago and have been reading and reading and reading. So much useful information on here. I wondered if I could pick your brains for some advice, my story is that I have not yet been properly diagnosed with UC, but it looks very likely that this is what I have. I have for a few years (how I hate to have to say that) had bleeding & mucous in my stools, sometimes just blood. Misdiagnosed twice as being piles, I finally had a sigmoidoscopy in December where a biopsy was taken. The biopsy came back showing nothing abnormal, but the dr commented that my colon is inflamed and bled easily. From there, I have had a long wait to see the gastroenterologist. I finally saw him on friday of last week, and he is going to call me in at short notice within the next two weeks for another sigmoid, but this one will go part way up the large intestine. I'm eager to get a proper diagnosis and get on with some healing!!!

Over the last few days I am having some very noticable pains around my tummy area and a lot of swelling - I have been prone to bloating problems with this ailment and am consequently careful about what I'm eating. Anyway, I've also been a bit constipated for the last couple of days which I assume is not helping the swelling tummy. I also have noticable pains in various parts around my tummy (i assume this is around the large intestine) where it actually feels like pressure is happening at certain points (ulcers perhaps??), I just wondered if anyone recognises these feelings? I'm in the UK and did take some nurofen tonight to see if it would help with the inflammation. I'm a little worried about taking it (not sure why), I know pred is a much stronger anti inflammatory (my partner takes it as he has sarcoidosis). I am just feeling so bloated, my stomach feels like a football, and I am so paranoid that my intestines are just going to split...am I being a hypochondriac? If I wake up like this tomorrow, I'm definately going to go back to my doctor in the morning. Just feeling very worried, which is probably not helping I know... any advice I would really welcome.. I've been drinking chamomile tea too...

thank you for reading xx

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 2/27/2008 7:08 PM (GMT -6)   
Your colon lies around the perimeter of your "tummy" area. Bloating could be caused by imbalanced gut ecology, food reactions, gas, water retention, constipation, inflammation or any combination of these. Do you notice if certain foods make the situation worse? I'd definitely avoid carbonated beverages and high fiber foods for the time being.

Not sure what Nurofen is, but if it's ibuprofen, you shouldn't be taking it if you suspect you have UC. Tylenol (aceteminophen) is the only pain killer I know pretty much universally approved by gastros. A heating pad or warm water bottle may provide some relief, too.

Needless to say, no one here can really diagnose. You definitely need to see your doctor asap.
Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 


love in a mist
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 2/27/2008 7:17 PM (GMT -6)   
Hi,

Thanks for replying so quickly. Yes, nurofen is ibuprofen..I have been really monitoring my food intake for the last few months (i finally got referred in April last year but it's taking so long to get seen). I eat pretty bland foods and only drink water and peppermint and chamomile teas... i think the bloating is a mix of inflammation and some constipation, though I have had 3bm today, it's just been slow to move around and out . I'm not sure what's made it all go nuts in the last few days at all, but the painful areas around the colon is really worrying me as this is a new symptom for me. I have not had problems with diarrhoea or alot of other symptoms that alot of people seem to have, but the bloating has been quite a common one..alot of people have commented that I look pregnant which has been somewhat embarrassing (more so because I work with children).

Thank you so much for replying...this looks like such a good forum and i have a feeling it's going to be somewhat of a haven for me over the coming months.. i'll lay off the nurofen too. .

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 2/27/2008 7:38 PM (GMT -6)   
Welcome! I have painful constipation when I am in a flare. Usually it is due to the inflammation in my rectum. The Ibuprofen is definitely a no no for anyone w/ tummy troubles.

When did you say you head back to the doctor? You are seeing a GI this time right? If you are that bloated it sounds like you need to call your GI.

Sorry you are having a tough time! This is a great site w/ lots of wonderful people. Hang in there!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/27/2008 10:16 PM (GMT -6)   
Love in a mist, Ibuprofen, Naproxen, aspirin and other NSAIDS are generally forbidden us because they can cause GI bleeding. The safest thing is to stick to acetamenophen (Tylenol,) which doesn't have this side effect.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 2/28/2008 2:20 AM (GMT -6)   
Hi..welcome to the forum.

Did the doctor take some biopsies to be sent away before you have your next scope done?

I'm wondering why the doctor didn't at least put you on some medications such as Salofalk or asacol enemas at least to help with some of the inflammation.

Did the doctor do any stool samples so that you can be tested for parasites or wonky bacteria that could possibly mimic UC?

Regarding prednisone...please know that it's a medication that many doctors prescribe very frequently, but it's not really a first-line medication if you do indeed have UC.

Please do a lot of homework before you see him and write down questions and maybe take some notes when you see him as to what options are for what you have..what meds, etc.

Oh, did he send you for blood tests as well?

I hope you don't have it...but I hope you don't have to suffer for too long before getting some treatment.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


love in a mist
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 2/28/2008 3:51 AM (GMT -6)   
Hi

I've not had any stool samples taken or any further biopsies dones, but have had blood tests done. I think the GI is waiting for those to come back before doing the second sigmoid. Plus, I have very recently had a miscarriage and I saw him just over a week since that happened. So the consensus was that I needed a bit more time to heal from that before anything is done. I really wish I was seeing him this week though. The waiting is a nightmare. He said he didn't want to put me on anything until it's properly diagnosed.

Would parasites cause bleeding and mucous? My stomach has deflated this morning thankfully, but I'll see how it goes in the day. Prob is I don't yet have a direct number for the GI. Thanks for the advice on nurofen, i've been to the states a few times and know what tylenol is, but we don't have that in the UK. I think probably paracetamol is the closest any other Uk peeps on here know??

Rachel.

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/28/2008 8:45 AM (GMT -6)   
Rachel, paracetamol is the same thing as Tylenol and should be safe for you to take.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


Supernurse
Regular Member


Date Joined Aug 2006
Total Posts : 96
   Posted 2/28/2008 10:01 AM (GMT -6)   

Hi Rachel,

I'm in the UK too.My consultant told me not to take Nurofen or anything similar....just paractemol based painkillers.

I hope you get your diagnosis soon so that you can start any medication as soon as possible, if thats what is recommended.Good luck.

Lynn


Diagnosed May 2005- left sided UC.Diagnosed with iritis in my Right eye March 2007
On Pentasa 8 tabs a day
Also on Pentasa enemas one daily to treat current flare.

Plus Aloe vera, probiotics, multi vits, turmeric,bromelain.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 2/28/2008 12:51 PM (GMT -6)   
Hi Rachel...condolences regarding your miscarriage. You'll have lots of hormonal surges and that will definitely have an influence on your symptoms...so I agree that more time would be needed to allow your body to settle a bit more.

I think stool samples would be in order, however...you could call and ask if he'll do them to make sure there isn't anything else going on...but if he took biopsies, that should tell as well.

I guess patience and taking the paracetamol to ease the pain a bit until your next appointment is what you can do.

You could also call the doc and request a mild antispasmodic such as dicyclomine 10mg...that will help.

keep us posted as to results, how you're feeling..etc.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 2/28/2008 8:51 PM (GMT -6)   
Since the advice above has been good and you're stuck playing the waiting game, I would also suggest a heating pad on the abdomin to help with the pain.

You may also want to look up a picture of where the colon is in the body. I find that I have specific pains where the left colon turns to the transverse colon - basically in my left ribs. I also find that a gentle rub along the colon helps things to feel better for a moment at least.

Good luck!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


love in a mist
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 2/29/2008 6:04 AM (GMT -6)   
Thank you for all your good advice. I have been taking paracetamol and drinking quite a lot of chamomile tea too. At the worst points I used a hot water bottle and did massage the area to try and move things along!!
 
Feeling much better today thankfully and just playing the waiting game for the appointment to come through.

malka
Regular Member


Date Joined Apr 2006
Total Posts : 171
   Posted 2/29/2008 10:08 AM (GMT -6)   
Awhile ago, someone on this forum suggested boiling two cinnamon sticks in water (about one and a half cups) and drinking the water. Apparently, cinnamon reduces inflammation. I tried it and found it helpful - and it tastes good. I don't believe there is any downside - so it is worth a try.

M
Diagnosed UC 1975. 
Azulfidine Entabs 500 mg. 4 twice a day
Azathioprine 100 mg per day
Colocort - as needed
Folic acid, vitamins C and D, multivitamin, metamucil, fish oil, turmeric 
 
Hospitalized 1997 - intravenous cyclosporine.

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