Welcome to HealingWell, Memorytheatre. I'm so sorry you have reason to be here. You must be frantic with worry. Actually, ulcers in the stomach are not consistent with UC, so you might want to ask the doctors about
that. It could mean that what your little one has is Crohn's or some other, completely unrelated, problem.
Have they checked for lactose intolerance? It's much more common in IBD, and can really thwart efforts to get things under control.
As far as steroids, they have some really bad effects when used long-term, but for short term use they can sometimes get things under control quickly then be tapered off. It's hard to think of giving a baby steroids, but if he's so sick he needs transfusions, it might be time to consider it.
I'll be praying for you and your precious son, that a quick diagnosis will be found as well as an effective treatment.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal, Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
Co-Moderator UC Forum