I was on Remicade for months before I saw a big improvement. I think the reason was that the ulcer I had was soo bad, so even though it was healing on the Remicade, it was still open and causing problems. I probably would have given up on it but I had a colonoscopy right before I started it and then 3 months later, and my 1 inch deep ulcer was down to 1/4 inch! Eventually I started having more normal bms finally. The anti-spasmodic I take is Lomotil. Sometimes I am so grateful for it but I try not to use it too often. I do bleed a lot, it has gotten better since I have been taking Proctofoam but bleeding has always been a problem for me. Last blood test I had, I think my sed rate was 60? One thing I noticed is your daughter is taking fish oil. It's supposed to be great for inflammation, but I got more diarrhea while taking it. Has she tried not taking the fish oil to see if it helps? I hope she finds some relief. I was diagnosed when I was 15, it has been a long road so far and I hope your daughter has better results than I have. At least there are some better meds out now.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15, Tried: Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Anamantle, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds:
Remicade 700mgs every 6 wks (had reaction, will start Humira Feb 11) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil, Tylenol pm, Lyrica for Fibromyalgia started 1/17/08