Hi. My 17 yr old daughter started flaring at the end of Dec. Her flares are always bloody dir. She was dx in 2003 with Crohns/Colitis. This is her 2nd flare since dx. Tried 40M Pred (didn't seem to help) Put her in the hospital for 4 days on IV steroids (didn't help). Started Remicade in the hospital, seemed like a miracle drug the first week and then down hill the second week. Last weekend she was up every hour in the bathroom. She had her 2nd Remicade two days ago. Since then she is still up in the night about
every 2 hours in the bathroom. Not always with a bowel movement but always blood/gas. Her sed rate a month ago was 10, in the hospital it was 35 and two days ago it was 45. She has had blood every day for two months. Her tummy is also hurting alot and she was kind of nausous this a.m. Besides the Remicade she also takes Fish Oil, Nexium, Prednisone 30M, Multi Vitamin, Allegra. My questions are:
Is this all normal for a flare up?
Is there still hope for the Remicade?
Is there other people out there who bleeds everyday for this long?
It is just really hard to see you child suffering and you cannot do anything about it and you don't know what it is going to take to finally get better.