Tell me it will be okay, please...

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LWW1993
Regular Member


Date Joined Oct 2006
Total Posts : 90
   Posted 2/28/2008 5:30 PM (GMT -6)   
I'm home after three days in the hospital and am feeling so much better, but yet I sitting here and can't stop crying. Reality has finally set in as I'm faced with starting my fourth (fifth?) round of prednisone in the last 18 months and soon to start 6-MP in two weeks.

My GI had come to the conclusion last time that if the Colazal couldn't keep me in remission than it's time to move onto 6-MP, because I was becoming (I am) steroid dependent. So when I was sitting in my doctors office three days ago at my weakest about to be admitted to the hospital and heard all the reasons why I should/need to try something else (6-MP), and how even all the latest research shows it's okay to get pregnant and stay on 6-MP throughout pregnancy I sat there nodding my head and gave in. And I've done my research on here, other sites, talked to other GI doctors (multiple), talked to OB's (multiple), and a perinatologist, so I'm well aware of all the information out there, but yet it doesn't make me feel any better. The reality of having to take a drug where you get your blood tested every few months for as long as you are on it (indefinitely at this point) really hits home the fact that I have CHRONIC DISEASE. You would think I would have understood that by now after 15 years, but I feel like I'm too young and have too much at stake for me messing with my health.

Please, I don't mean this to be a pity post, because I know there so many others in this world who have far worse situations than I do. But that doesn't change the fact that I still want to make my life the best one for me and my family, and right now I don't feel like I'm being the best me.

I just don't know what to do any more....Sorry for the typos, my eyes are blurry.
Diagnosed UC - 1993
32 year old female

Current Meds:

Colazal (3 pills three times a day), but flaring again and need to go back to GI
Probiotic


PaloPalo78
Regular Member


Date Joined Feb 2008
Total Posts : 42
   Posted 2/28/2008 5:36 PM (GMT -6)   

Hi there

Ive recently had to take on azathiprine which is very similar to 6mp and also had my first infusion of remicade due to prednisolone not working anymore .. I also had a year or more of yoyo ing with pred , i lost count of how many times i almost stopped but then had to go back up to a higher dose and try tapering down again. It didnt use to bother me much but recently ive been in hosptial and was very scary , but there were soo many other sick people around it made me think about life etc. Im sure things will work out for you soon , just hang in there and enjoy every other possible thing in your life , at least we can see and speak etc . i went into remission for 8 years and im hoping i can get another stint like that very soon .. I hope you and everyone else can enjoy the same


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 2/28/2008 6:05 PM (GMT -6)   

Hi...

I started Azathioprine/Imuran 2 months ago and it was a tough decision for me too.  I've always been healthy and never had to take any medication before being diagnosed with UC, so starting long-term medication sounded extremely drastic.  But, after seriously considering all the pros and cons I felt that getting on Azathioprine was the right step for me.  It's true that getting regular blood tests done can be a bit of a hassle, but I'd rather deal with that and just get healthy and stay healthy. 

Don't get disheartened; azathioprine and 6MP have worked well for many people.  Stay strong and I hope this works well for you.


Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone taper from 60mg - Now on alternate days of 20mg and 10mg; 2/08: added 1 Pentasa x 1mg.


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 2/28/2008 6:12 PM (GMT -6)   
I know how hard of a decision it is to go on 6mp. I was in the same boat as you. I was steriod dependent & Colazal alone wasn't doing the trick. I even remember staring at the pill bottle for a couple of days before I could take one. I think it is great you are doing your research. That is important. You have to make an informed decision that works best for you. I have been on Imuran (similar to 6mp) for almost 2 years. I have bloodwork done every 3 months. I don't think it is a bother at all. Just something I have to do.

You vent away. That is why we are here! You hang in there and keep us posted!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/28/2008 6:38 PM (GMT -6)   
I know just how you feel. It will get better and you will be okay. Lots of us have been through this and come out just fine on the other end. You're just as smart, just as tough and just as resilient as any of us, and so you will also. Give yourself permission to grieve. Every new treatment we have to move to slaps us in the face with reality again, and we have to grieve and accept all over. Never apologize for venting here, that's what we're here for.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 2/28/2008 7:44 PM (GMT -6)   
It will be okay! You will make it through this. You and your doc have a plan.

Repeat this to yourself. Vent to us!

It will be okay. It will be okay. It will be OKAY.
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/28/2008 7:49 PM (GMT -6)   
It will be okay.  I am steroid-dependent too.  Perhaps you will do well on 6-mp.  If you are looking for an alternative read my signature.

 

 

Edited for excessive signature length. I'm sorry, Blue Class Ring, but only you can shorten your signature. The moderators can only delete it when it is more than ten lines.

Post Edited By Moderator (Judilyn) : 2/28/2008 7:57:09 PM (GMT-7)


LWW1993
Regular Member


Date Joined Oct 2006
Total Posts : 90
   Posted 2/28/2008 9:20 PM (GMT -6)   
Thank you all very very much. It's very reassuring to hear these words from you. I have the most amazing supportive family and friends who want nothing but for me to me healthy, but it's hard for them to fully understand my fears and struggles I think. I suppose that is true of anything, until you personally of had to deal with it, it's hard to fully relate to someone else. But, I sure all of you have had the same frusterations, highs, and lows that I have had.

After a few hours I've calmed down, and now that I'm back home in my house with my beautiful baby girl for the first time in the past two nights, I know what really matters and that is for me to healthy, however I must get there. And it seems that 6-MP is my path for now.

Thank you again for replying and for the reassurance. You are all right...I (we) will all be okay.
Diagnosed UC - 1993
32 year old female

Current Meds:

Colazal (3 pills three times a day), but flaring again and need to go back to GI
Probiotic


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 2/28/2008 9:27 PM (GMT -6)   
My heart goes out to you. I sobbed when I had to put my son on one of these drugs, then by the time I had to put my daughter on, I was a tiny bit more okay with it. With my son, we really needed to do something as he had been sick for over a year and was fading away. With my daughter, I just knew I didn't want her on steriods very much. They are both doing very well and I hope you will, too.

It is okay to throw a pity party from time to time - don't feel bad about it if you need to. {{{{{Hugs to you}}}}}
Julie

Mom of Son 16 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Vit/Min

Daughter 9 UC dx 08/07 Colazal, 6MP, Iron, Vit/Min., Culturelle


ithurtsmom
Regular Member


Date Joined Nov 2006
Total Posts : 289
   Posted 2/28/2008 9:33 PM (GMT -6)   
LW, My daughter was diagnosed last year (age 5). It broke my heart to see her in such pain and to find out this is for the rest of her life. It's over a year now and learning to dealing with a cronic life long disease is a process. It does get better.
Joan
 
Daughter 5, UC
Pentasa 2X2 daily
Omega 3
Folic Acid 1000mcg.
Fiber
Probiotics
 


LWW1993
Regular Member


Date Joined Oct 2006
Total Posts : 90
   Posted 3/1/2008 11:16 PM (GMT -6)   
Keylime and Ithurtsmom - I can't imagine what it must feel like having to see you children be in pain and to put them on so much medication. I'm happy to hear that they all doing well. I pray that there continues to be research and development for this disease so that their adult lives can be more enjoyable than when they were first diagnosed.

I have been feeling a bit better the past few days (both physically and emotionally). I've still broken down a couple of times at the thought of what lies ahead for me, but then I stop and remember that 6mp is just another option for me and I should give it a try to see if it makes my life better. I will talk to my GI next week and I go in to see him again on the 11th. I imagine that's when I will start taking the 6mp.

Thanks again to everyone for the support.
Diagnosed UC - 1993
32 year old female

Current Meds:

Colazal (3 pills three times a day), but flaring again and need to go back to GI
Probiotic


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 624
   Posted 3/2/2008 9:31 AM (GMT -6)   
It really is a process. Since I was diagnosed with my first (and more serious) chronic illness (depression), I've been on medication. That was about 20 years ago. Now I'm on Imuran, too. It was something I railed against (depression meds) and something that I was terrified about (Imuran), but both have allowed me to have a close to a "normal" life as possible, so I've attempted to, over time, accept that this was necessary for a normal life, and tried to compartmentalize it and not think about it except in the morning, when I take my pills.

No one said life was going to be easy, though I never imagined it would be as difficult as it has been at certain times. Those times have caused me, however, to appreciate more fully when life is easier -- and it will be for you again.

Hugs,
Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


SIRPOOPSALOT
New Member


Date Joined Feb 2008
Total Posts : 6
   Posted 3/2/2008 2:01 PM (GMT -6)   

Well i started Lialda 1 week ago and it seems that is not going to do the trick. I am still on 30mgs of pred. I think i am allergic to mesamaline, everytime i try these drugs my symptoms get worse. I am going to talk to my GI about the Remicade tomorrow. I know he will give me a song and dance about it, and if he does i will just try someone else..I don't get these drs. they want to guniea pig you until you have lost your mind. Why not try something that works very well with others. I know they try to exhaust every means with the most potent drug last, but come on, i have to work, they never seem to understand that. I know there is no miracle drug but it's as close to it as you can get..wish me luck...Oh and by the way my kids were sick 3 weeks ago with a stomach virus, which i got, now yesterday my oldest who is 4 got mild pnuemonia, which i picked up some sort of bronchitis from it, which i get everybodies sickness due to the prednisone.......just venting....that's pretty much it...and how is everybody else out there doing?


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 3/2/2008 3:48 PM (GMT -6)   
LWW -- Hang in. I've been on 6MP for about 2 years and it really has made a difference. It took a while to kick in, though. You have to give it months.

I still have some mild flares but I can get them under control with rectal meds. 6MP, I believe, has raised the bar for me -- I don't think I'm going to ever be as sick as I was before I started taking it. (I just knocked on wood!) I know the doctors make it seem like it's a huge decision, but after reading about it, I think they are obligated to give us the big disclaimers. The risks of this drug seem pretty acceptable to me. The trade off is having a good quality of life. And maybe after being on it for a while more, I'll feel like I can go off it and see how I am. You never know. It might not be the drug you take forever. There are always new drugs coming out.

Just curious -- how bad have your flares been? Are you running to the bathroom 10+ times a day? Blood? Have you tried steroid enemas instead of prednisone?
What about DiPentum or some of the other forms of 5ASA drugs? After Colazal, I tried Pentasa and then DiPentum before going to 6MP. At least then I felt that I had really exhausted the other options.

Have you tried any alternative treatments in conjunction with your current treatment? If you're really averse to trying 6MP, I bet we could all come up with some other ideas to try first. :)
-------
UC for the last ten years
Current Meds: 6MP since 2006
Past Meds: You name it; I've tried it.


LWW1993
Regular Member


Date Joined Oct 2006
Total Posts : 90
   Posted 3/2/2008 10:18 PM (GMT -6)   
Thanks Mitz - I appreciate hearing your perspective. You are right that this is a process and how I am today is not necessarily how I'm going to be in a year, five years, or ten years from now. It's good to hear that Imuran and 6-MP do help give people that "normal" life again. Hopefully, I'll fall into that camp too.

SIR.P - I too have had bad reactions with the 5-ASA drugs (Colazal excluded so far). The more Asacol I took, the runnier, the more liquid, and the more urgent I had to go to the bathroom. Lialda did the same thing. I haven't had the problem with Colazal though. I hope you don't catch your kids colds. Stay well.

Julee -My flares have been pretty bad. Well they started getting bad after I had my DD at 6 weeks postpartum. At the time my DD was having some health issues and the stress of that coupled with the drop in pregnancy hormones likely caused me to flare. Ever since then, my UC has never been the same. Partly because, my UC used to be just on my left side of the colon and then it affected my entire colon because my previous GI waited too long before really doing anything (she just kept increasing my Asacol even though I kept telling her I felt worse the more I took). This was the first time I experienced the horrible cramping, liquid D, sweats, up all night, racing to the bathroom for three months. Up until that point I had NO idea that UC could be that bad, because I had always managed mine with minimal medication, diet, and exercise. I was LUCKY up until then. I finally got a new GI and ever since then, he and I have been battling to get it under control. I've tried all the enemas, suppositories, Asacol (see above, bad reaction when taken in high doses for me), but mostly have been getting by on Prednisone. I had a few months of GREAT remission post prednisone and just on 9 Colazal a day, but then I was experiencing joint pain and my GI wanted to make sure it wasn't the Colazal. He switched me to Lialda and all my symptoms came back and I had to start the prednisone cycle all over again, but this last time the Colazal wasn't/isn't able to hold me in remission, which is why my GI thinks I need to step it up to 6-MP. I'm all for quality of life and wouldn't be so scared if I didn't want to get pregnant again. I just don't know how I will be able to live with myself if something happened to a baby of mine because of a drug I took throughout pregnancy. Oh, I used to have acupuncture and had food sensitivity testing done. Both were great and I felt made a difference, but again this was before my UC was really bad. I'm actually looking into acupuncture and massage therapy again at my hospital. I haven't fully tried the SCD, but always thought if I just ate healthy (avoid refined sugar and red meat mostly) and in moderation that I would be okay, but now I'm wondering if I should give the SCD a try?
Diagnosed UC - 1993
32 year old female

Current Meds:
Prednisone - 60 mgs
Soon to start 6-MP...
Colazal (3 pills three times a day)
Probiotic, Folic Acid, Lysine


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/3/2008 11:24 AM (GMT -6)   
To make that leap from conventional Uc meds to something heavier IS scary. I've been there myself. And like Tjf, I stared at my bottle for a couple days before I took my first dose. I can honestly say that I am (sort of) glad I did because I got my life back and I feel more in control of my Uc. Sure I still flare, but not as intense or for long as before. It's easier to get it under control more quickly.

Please know that we are here for you 24/7 and never be afraid nor apologize for a vent. As for the SCD, this is a highly restrictive diet but many people have had success with it. It wouldn't hurt to try right?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


MicheleV
Regular Member


Date Joined Sep 2004
Total Posts : 233
   Posted 3/3/2008 11:25 AM (GMT -6)   
I literally could have almost written your exact post a few years back..except that I knew I didnt want more kids again.  I've been facing this disease head on since the age of 1.
My first life threatening flare came at the age of 10.  I was told I would die before I was 21 if I didnt get my colon removed. My mother fought to keep my colon where it was..and I got a GREAT pediatric gastro who gave me pred for a few years, and a a few other drugs that were considered to be experimental from Cananda (I dont know what???).  Well..Im still here.  yeah
 
I have had flares my entire life pretty much...making me bone thin and moon faced at the same time. I sacrificed much of my college life to Colitis.  Hospital stays were routine for me, and eventually all drugs that usually worked, werent working anymore.  I was given Imuran, and told this was my last chance likely.  Now there are a few other options..but I remember sitting in my kitchen and crying like a baby for a few hours with my husband about how I was never going to be a normal mother, wife, and enjoy my life.  My little boys were 3 and 4 at that time.    Imuran settled in for me in a few months, and without visiting this board, its very easy to forget that I actually have a disease.  The blood tests are a small blip in a wonderful life at this point.  I had NO side effects and enjoy a life pretty much as normal as anyone without a chronic disease.
 
My scopes went from awful to the best my gastro of almost20 years has ever seen.  Loads of scar tissue, but a very pretty color (not red!!) :-)    I wish I had started on this drug years ago...  I dont ever wanna see prednisone in my house again!!! 
 
Anyway....I have high hopes for you.  I am 36 now, and will take Imuran as long as my blood tests are good.  3 1/2 years so far with no flares or drug side effects. 
 
Good luck!!!
 
Michele
Currently in remission since September 2004!!!  I am on Imuran 150 mg and am LOVING life!


LWW1993
Regular Member


Date Joined Oct 2006
Total Posts : 90
   Posted 3/3/2008 6:29 PM (GMT -6)   
Michele - I can't imagine dealing with this since you've been 10 years old. I was pretty lucky through my college years. My first year, I was on a lot of prednisone, but the following years, I finally got the prednisone fully out of my system and did okay with just maintaining a healthy diet (or as healthy as you can be in college) wth exercise. I swore I would never take prednisone again that it was an awful drug, and not look at me for the past 18 months. Ugh. It's encouraging to hear how good or "normal" your life has been for the last 3 1/2 years. I want to get to that point again. I really would like to have another child and I have to have faith that if I'm healthiest, even if it's on 6-mp, then the baby will be healthiest too. Thanks for the input.

Sherry - How long have you been on 6-mp? Did you ever try the SCD and have any luck? I swear I bought the book a few years ago, but I think it's packed away while we are remodeling our house. Maybe I'll just start with the yoghurt. When you go to the site, it looks so yummy and creamy. Can you hear the 60 mgs of prednisone talking? LOL. I have a huge appetite right now.
Diagnosed UC - 1993
32 year old female

Current Meds:
Prednisone - 60 mgs
Soon to start 6-MP...
Colazal (3 pills three times a day)
Probiotic, Folic Acid, Lysine


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/4/2008 5:52 AM (GMT -6)   
I've been on 6mp now for 1 1/2 years. As for the SCD, yes I tried it but I didn't last because I've NO willpower! lol So when I flare now, I avoid things that I know are triggers for my symptoms.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 624
   Posted 3/4/2008 12:23 PM (GMT -6)   
Been on Imuran for at least six years. No problems. Keeps the plumbing in (mostly) working order!

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


LWW1993
Regular Member


Date Joined Oct 2006
Total Posts : 90
   Posted 3/11/2008 8:41 PM (GMT -6)   
I thought I would follow up and let you all know I saw my GI again today, exactly two weeks after being admitted to the hospital. I'm feeling MUCH better than when I first saw him (new GI and on the first time meeting him two weeks ago, I break down in tears and sent off to the hospital - great first impression). I was pretty down the week getting out of the hospital, but because I'm feeling better I can think more clearly and not be so emotional about every decision in my life. As I suspected, we decided that 6mp was the next course of action for me and I just got back from the pharmacy and will take my first dose tomorrow. I'm trying to stay optimistic and think about the better quality of life I might have. I would still like to get pregnant in the near future and we talked about possibly trying in the fall depending on how I respond to the 6mp. Until then, I am thankful that I'm in a better place than I was two weeks ago.

Thank you all for your support and kind words.
Diagnosed UC - 1993
32 year old female

Current Meds:
Prednisone - 40 Mgs
6-MP - 50 Mgs
Colazal (3 pills three times a day)
Probiotic, Folic Acid, Lysine


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 3/11/2008 10:07 PM (GMT -6)   
because we are on the topic of the scd diet, i would recommend doing it the right way.  check out pecanbread.com for the details.  i did it the wrong ways for weeks and wasn't getting anywhere.  today i'm on cloud 9 and loving remission.
 
 
Pharmacy Student, Class of 2009.  Diagnosed 8/99.  Suffered for almost 10 years.  I am currently on the Specific Carbohydrate Diet and am nearing remission.  I feel fantastic!    I have lost so many years to this disease.  I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.  My goal is to open up a pharmacy and take care of my patients(particularly explaining what the drugs do to you), compound special medications, and have a great practice. HAVE YOU CONSIDERED THE SCD DIET? IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!  (In remission since 2/15/08)
Meds 3200 mg Asacol, 2.5 mg Prednisone.  Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications!  For me, diet works...


LWW1993
Regular Member


Date Joined Oct 2006
Total Posts : 90
   Posted 3/11/2008 10:20 PM (GMT -6)   
Blueclass - Okay, thanks. I think I'll check out the website tonight. It can't hurt to try. If nothing else, I will be eating healthy right.
Diagnosed UC - 1993
32 year old female

Current Meds:
Prednisone - 40 Mgs
6-MP - 50 Mgs
Colazal (3 pills three times a day)
Probiotic, Folic Acid, Lysine


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/12/2008 10:19 AM (GMT -6)   
If you start the 6mp, remember it's best to take it before bed. That way if you get any side effects it won't be as noticable. What MG's are you starting at?


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Mellie
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 3/12/2008 5:53 PM (GMT -6)   
LWW, I am also facing the choice of stepping up the ladder from Azulfidine pills to Humira shots. I am waiting for the shots to arrive from mail order rx and I feel the familiar questions popping up in my head, 'do I really want to go on the stronger med'. I can remember breaking down in tears 4 yrs ago when I was told I had to take 6 Asacol 2 xs day. Each step to a different med is scary, but going to using self injectibles makes it scarier. I am hoping the Humira will help me. Hang in there!
Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD.

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