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BMmachine
New Member


Date Joined Jun 2007
Total Posts : 10
   Posted 2/29/2008 9:28 AM (GMT -6)   
I have been on 6mp for about 3 months now and I am still having the same symptoms I had when I originally went on it.

I take Pentasa 2 pills 4x a day for a total of 4g and I am on 100 mg of 6mp.

I feel as if my symptoms have gone down a little bit but I am still experiencing some urgency, blood, and mucus. I've been told that it takes about 3-6 months for the affects of 6mp to truly kick in and I am wondering if there are any other medicines that I could take that would help me with my problems. I had a colonoscopy in September and it showed that my rectum was a problem area. I've taken some cort enemas in the past and they've worked wonders but the longest I was on them was 2 weeks at a time. I just called my doctor with an update an I will hear something next week as the DR is out of town.

Does anyone have ideas that might help me out?
4g - Pentasa per day
100mg - 6-mp per day
1 multi vitamin per day


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/29/2008 11:02 AM (GMT -6)   
Yes, it takes a while for the 6mp to work. Is there any way you can call a doctor that is on call to have him/her call in a script for Rowasa or Salofalk that you can use until your doc gets back?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/29/2008 1:48 PM (GMT -6)   
i have heard 3 months is common for the drug to kick in.
Pharmacy Student, Class of 2009.  Diagnosed 8/99.  Suffered for almost 10 years.  I am currently on the Specific Carbohydrate Diet and am nearing remission.  I feel fantastic!    I have lost so many years to this disease.  I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.  My goal is to open up a pharmacy and take care of my patients(particularly explaining what the drugs do to you), compound special medications, and have a great practice. HAVE YOU CONSIDERED THE SCD DIET? IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!  (In remission since 2/15/08)
Meds 3200 mg Asacol, 2.5 mg Prednisone.  Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications!  For me, diet works...


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 5046
   Posted 2/29/2008 2:46 PM (GMT -6)   
It took me a little over 5 months for the 6-mp to kick in for me and then it was like a light switch was turned on and I was in Remission.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May 2007
 
Current Meds:  50 mgs 6-mp, Colocort, Oral Cyclosporine (250 mgs), Hyoscyamine .375 mgs
Supplements:  Forvia multi-vitamin
 


eliztopp
Regular Member


Date Joined Feb 2008
Total Posts : 46
   Posted 2/29/2008 2:53 PM (GMT -6)   
My docs had me on prednisone while i started taking my 6mp. And as i tapered down the pred. the 6mp would be taking effect was his logic. It seemed to be alright. Although i have abnormal liver test which he says kept me from being able to be on a tharaputic dose (he said this in jan. after a bad flare), althought i am still taking the 6mp. So if you want a "quick fix" ask your doc about pred. although the side effects are killer. I am always placed on pred. during a flare for the "quick fix", becuase i end up lossing so much blood and need transfusions or i end up fainting and sleeping all the time.
 
{[lizzielu]}
age 20, diagnosed december 2006
meds: Asacol 400mg 4 pills 3x a day; 6-mp 75mg MWF, 50mg SSTTH; 2x iron supplament; 250mg v-C; one-a-day; protonix; prednisone 25mg for one more week! (in the middle of a tapper, down from 40mg started 1/1/08)
low residue diet
Remicade????--pondering, next step


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 3/1/2008 3:59 AM (GMT -6)   
It took nearly 8 months for the 6MP to kick in for me. I was very close to giving up in month 6 but decided to keep on it. I'm glad I did. I treated symptoms in the meantime with cortifoam and levsin (an antispasmodic). I had taken prednisone for the first 4 months but then tapered off it. I continued the taper and stopped taking the pred even though I was still flaring because I didn't want to be on pred for too long again. I was able to get some of my symptoms under control with the cortifoam and levsin. (Levsin is good for urgency, at least for me.)
-------
UC for the last ten years
Current Meds: 6MP since 2006
Past Meds: You name it; I've tried it.


jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 3/1/2008 8:31 AM (GMT -6)   
my daughters dr put her on rifaxamin antibiotic at the same time she began 6mp, that is about a month ago, and almost right away she began to feel better, she is taking the antibiotic 2pills 2x daily, and i don't know what the plan is for this, we will see the dr next week-but i know that 6mp takes a long time to work so it must have been the antibiotics - she is on a whole lot of other things, but she seemed to turn the corner when she started the antibiotics-i can't believe i'm saying this since i believe antibiotics may have started this nightmare-but rifaxamin is designed for travelers diareah - i believe also diligence with the enemas was very insrumental and i don't know if she'll ever be off them, but it would be great if she can cut back
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily-discontinued
colazal 3 3x daily/switched to 4 4x daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
canasa suppostiories 3x daily /switched to court supp 1-2x daily
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed time 6mp50
xifaxan antibiotic 400mg 2x day


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 3/2/2008 4:33 PM (GMT -6)   

Hi Please,

Is you daughter going on her spring break trip? Just wondering what you decided :)  My son is going to try 6mp too.  We are waiting for a blood test to come back.  He is still on Prednisone, but it has been a miracle drug.  He does not seem to have any side effects at all.  He has been on it for a little over a month and is slowly tapering down.  I was so stressed about the Pred, but it is like I have my child back. Only more hungry, and he wants to put on weight, so that is fine too.


UC Mom
Son diagnosed 10, 2006 at age 15
Prednisone
Culturelle Probiotic
Multi Vitamin


BMmachine
New Member


Date Joined Jun 2007
Total Posts : 10
   Posted 3/3/2008 1:14 PM (GMT -6)   
Red,

What is Rowasa and Salofalk? I have actually calmed down a bit since I made this post but I still need to have some remedy in the mean time. I really don't like playing the guessing game of what my BM will look like.

I plan on sticking out this 6mp for the long haul, so I appreciate the feedback about how it just kicked in like turning on a light switch. I had been wondering if it would happen overnight or gradual. I know everyone is different but it makes me wonder how it will happen for me.

Thanks everyone, you make me feel better.
4g - Pentasa per day
100mg - 6-mp per day
1 multi vitamin per day


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/3/2008 4:45 PM (GMT -6)   
Rowasa or Salofalk (depending on what part of the country you're in) is a liquid 5-ASA (Asacol or Pentasa). It's an enema that reaches up to the sigmoid colon, maybe a bit beyond.

For me, 6mp started working about 7 weeks in but didn't truly work for 3 months. I had a gradual improvement of symptoms but then at 3 months it was like bam! No more symptoms literally overnight. So I had that switch thrown too! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 

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