Posted 3/1/2008 7:11 PM (GMT -6)
Judy,I'm so sorry about your mom,I really wouldn't condescend to have empathy for that.I'm lucky to have both parents alive and dealing with me back at home(at 36!),but I realise I'm fortunate for their love and understanding,to allow me back.Right now,I think I'm on a Pred high,with a complimentary component of Pentasa.To elucidate;the Pred is making me a little "wacky",but the Pentasa is really "kicking in".

In fact,I'm really feeling better with the passing of each minute.I know this seems nutty,but I really do feel the Pentasa is "washing" over me(taken from a Pearl Jam song!).

Sorry if I seem to ramble,but the pred is spacing me out a little and the Pentasa really seems to be making a difference,after only two short days!
Posted 3/1/2008 7:20 PM (GMT -6)
SL..you should also be using rectal meds. Please remember that the excuse that some docs and others have sometimes stated (doesn't go high enough to treat the whole colon) shouldn't be accepted. They're not used to treat the whole colon (that's why the use of both oral and rectal meds to cover both ends), and since UC starts at the rectum, it will always be inflamed (sometimes even more) if the whole colon is involved.

Ask your doc for both oral and rectal treatment (if you can tolerate the Rowasa..good thing to use)..you can taper the enemas to a maintenance dosage and hopefully that will work for a long while for you.

You'll eventually be able to treat flares earlier and earlier....and with the coverage of an oral 5ASA and using the rectal meds to treat flares (increase and taper process)...it just may be a good insurance to help wonky cells from increasing (as in colon cancer).

Many of us don't know if we'll get colon cancer, but the fact that we're tested regularly is a huge plus. I strongly believe that keeping the colon quiet for long periods of time helps lower the risk of it as well as use of the 5ASA meds.

Try not to worry too much about some of the things you don't have control over. I know your new diagnosis is a lot to take in (I felt the same way when I was diagnosed with Primary Sclerosing Cholangitis which now increases the risk of colon AND liver cancer..oh joy!), but eventually learning what works for you and maintaining that regimen goes a long way in how you'll feel emotionally as well as physically.

Happy to hear you've had a good few days.

quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 3/1/2008 5:23:51 PM (GMT-7)

Posted 3/2/2008 5:32 AM (GMT -6)
Quincy,I've only just been thinking about using a steroid enema again.I fully agree with you about the benefits.Now I have full Colon involvement I'm going to have to have to get all bases covered,so to speak.I also don't agree with the excuse that rectal meds don't go high enough,there's a reason they're called RECTAL meds!
Posted 3/2/2008 2:45 PM (GMT -6)
Definitely the common sense part of it..lol!

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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