Steroid Enemas???

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Regular Member

Date Joined Jan 2008
Total Posts : 60
   Posted 2/29/2008 10:12 PM (GMT -6)   
Well, after a c-scope last week my daughter still has active UC--after 2 doses of Remicade 4 weeks apart--had been going about 6 weeks prior.  A bit discouraging, but now a reason for the pain.  Had levels tested a month or so ago, and they looked good, so maybe a mild flare?  She was perfect for about 4 months, and recently has had lots of pain and we were hopeful that amitriptyline would help because of perhaps a hypersensitivity.  The scope showed mild active disease on the left side, and prior to Remicade 8 months ago was moderate/severe pancolitis, so the Remi is working.  Because she has already failed so many medications, the latest amitriptyline due to scary side effects, her GI said about all we have left are steroid enemas.  Sounds like a good plan, with the left-sided inflammation, right??  Try explaining that to a teenage girl!!!!  UGH!!!  We have only done it 2 nights, and the second was worse than the first!  She gets so worked up she can't relax.  Anyone have any tips to pass along?  WAIT!  That didn't sound good, did it??   nono   No pun intended!  tongue   The good news is that today was the first time in quite a while she had no pain!  Can one dose work that well?  I really think this could be the answer if only it could be easier!! 
On a good note, the biopsies from the right and transverse colon showed NORMAL mucosa!!  Not "inactive chronic colitis" as it was pre-Remicade.
Don't worry about TMI--any advice would be appreciated!! 
Kelsie--mom of teen with UC, currently Remicade and 2 doses of Cortifoam!  Previously:  Asacol, prednisone, imuran, bentyl, amitriptyline.

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Date Joined Apr 2004
Total Posts : 23551
   Posted 3/1/2008 7:09 AM (GMT -6)   
Yes the steroid enemas can work that fast. I had great results in as little as one day. I'm glad that she is doing better. Do you help her with the enemas or does she do them herself? Do you do them at night? What if you were to have her watch tv while administering the med?
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
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Forum Moderator

Date Joined Mar 2003
Total Posts : 10407
   Posted 3/1/2008 8:00 AM (GMT -6)   
Kelsie, I work a lot with teens. You may have better luck if you're helping her learn to do it for herself. Teens need to feel in control, so any choices you can give her will help.

Try having her breathe through her mouth, that will keep her from bearing down. Coach her through Lamaze breathing if you know that - deep breath in, feel it fill your lungs clear to the bottom, out slowly. You can even try the "pant, pant, pant" part when you insert the tube. The breathing may or may not help her physically, but it will give her something else to concentrate on.

Yes, they really can work that fast. Help your daughter make that connection, and today celebrate having no pain. Good luck!
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
Co-Moderator UC Forum

Regular Member

Date Joined Nov 2007
Total Posts : 382
   Posted 3/1/2008 8:11 AM (GMT -6)   
hi-my daughter has to use the enemas, but they are what helped her alot! she is 19 and does them herself, she uses ky to slide easily, but when things were too painful she used lidocain-a brief descrption of finding the most comfortable position is all she would listen to and the rest she figured out, the key was to find the right time when she could lay down and not have to get up, so for her the mesalamine is eary a.m. and she gets back into bed to sleep some more, and the cortisone enema at night right before bed. last time she checked, it had healed a lot as a result of these what i call "inserts" not easy for anyone especially a teen! i'm sorry for her, as i am for my own.-good luck
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily-discontinued
colazal 3 3x daily/switched to 4 4x daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
canasa suppostiories 3x daily /switched to court supp 1-2x daily
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed time 6mp50
xifaxan antibiotic 400mg 2x day

Regular Member

Date Joined Jan 2008
Total Posts : 60
   Posted 3/1/2008 9:30 AM (GMT -6)   
Thanks so much for your replies!!  I really appreciate it. 
I think the breathing is a good idea.  Oh, and I am going to use driving priviledges as leverage.   Moms gotta do what a moms gotta do!  tongue
We do them at bedtime and so far she has managed to not have to get up at all until the next morning. 
I do them for her.  She has NO interest in doing them herself.  I too, just hope that she will see how much better she feels and then realize it is worth it.  Also, no headache yesterday--first time in a week.  Not sure if that is UC related or possibly the amitriptyline side effects subsiding?  Good thing nonetheless!!! 
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