I gave my speech

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momhatesuc
Regular Member


Date Joined Sep 2006
Total Posts : 78
   Posted 3/1/2008 10:31 AM (GMT -6)   
Some of you may remember that I was chosen to address a group of pharmaceutical sales reps to give a patient testimonial of what it is like to have UC.  I got back a few days ago, and I wanted to share that I think it went very well.  I'm not a public speaker by any means but I figured I could give it a try for the cause of furthering UC awareness!  I was very nervous but luckily the lights were so bright that all the people in the audience just looked like a blur :-) .  I spoke for about 15 minutes, sharing about how UC has affected both major milestones and everyday life.  After it was over you would have thought I was a celebrity.  So many people thanked me for sharing my story.  These particular reps sell Lialda, which I don't take.  And no they didn't even try to convince me to switch. :-)   
Something else I just found out about:  The company, Shire,  is putting together free informational seminars for patients with UC and their families (including a doctor, psychologist, nutritionist, etc) and they will be starting up around the country in a few weeks.  I can give you the website so you can see if there is one in your area, but can someone let me know if I can post it on here?
Leslie, 30~ left-sided UC diagnosed in 1999
9 asacol x day
nightly rowasa (as needed)
multi-vitamin, calcium


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/1/2008 10:46 AM (GMT -6)   
Posting information about seminars are fine, as long as it's not promoting fund raising of any sort.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/1/2008 10:47 AM (GMT -6)   
Oh, forgot to add - congrats on the awesome speech! Thank you for taking the time to help spread awareness! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 3/1/2008 5:37 PM (GMT -6)   
Congatulations and well done on your speech.It takes a hell of a lot of courage to speak about your own personal experiences to a room full of strangers.Well done for letting all these strangers know what we go through!!
Marty
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/pred/colofac


       
            http://www.myspace.com/martybuzz1<FONT]


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/1/2008 5:45 PM (GMT -6)   
Congratulations on a successful speech! How good you must feel now, knowing that you increased the understanding of all in your audience.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 3/1/2008 6:42 PM (GMT -6)   
Congrats on the speech!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 3/1/2008 7:26 PM (GMT -6)   
Awesome to hear your presentation went well and that it was readily accepted by those who attended.

You might be called upon again....keep your speech!!

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


momhatesuc
Regular Member


Date Joined Sep 2006
Total Posts : 78
   Posted 3/3/2008 1:05 PM (GMT -6)   
Thank you all for your congratulations!  The information for the seminars I talked about can be found at roadtouclearning.com.  I'm going to try to make the one in Philadelphia if anyone wants to join me.  I'll probably post info on this again later.  I think it's going to be great!

Leslie, 30~ left-sided UC diagnosed in 1999
9 asacol x day
nightly rowasa (as needed)
multi-vitamin, calcium


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/3/2008 1:26 PM (GMT -6)   
It would be funny if you paused in the middle of your speech, said um, I gotta go to the bathroom, brb, and walked off stage LOL!!! Then came back on and said anytime I make a presentation, this is what I have to worry about happening....

I'm sure your speech was amazing!!
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 

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