Posted 3/1/2008 5:18 PM (GMT -6)
I have been off Prednisone for more than a year. So it is not that. I still take Acecol, but I have taken that for years. I am actually trying Accupuncture, Chinese Herbs and about 10 Grams of fish oil a day, and things are improving somewhat. Only 2 BMs a day for the last week and controlled urgency. I did 6 infusions of Remicade, and while it made things slightly better, the UC didn't go into remission. The skin outbreaks are really annoying, and while no where near as bad as UC. It is still not something I want to go through.
Thanks for writing. I am new here and it seems like a great forum. Another question I have is have you heard of anyone having major flares after a colonoscopy? A year and a half ago I went in for my routine colonoscopy and within 6 weeks had the most severe flare of my life. This is after 13 years of very controlled UC. It is what led me to the Remicade, after Prednisone and Immuran were ineffective.
I appreciate your comments,