what is in everyones "emergency" kit

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ljf01
New Member


Date Joined Feb 2008
Total Posts : 18
   Posted 3/2/2008 11:16 AM (GMT -6)   
Hi again,
 
I'm going to make an "emergency" kit for Hailey to carry in her backpack when she goes back to school. I know the obvious things like a change of clothes, underware, wipes, baby powder, but am wondering if there is anything I'm missing. Any ideas? I want her to be prepared just incase of an accident as the urgency she was getting only left her barely 30 seconds from the time she felt she had to go until the time she actually couldn't hold it anymore.
 
 
Thanks!
 
Laura
Mom to Hailey....she was just diagnosed with ulcerative colitis mid Feb08
Currently on 500mg pentasa 3x/day and 16mg prednisolone (liquid-it says subsituted for orapred) 2x/day, working a little but not a lot


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 3/2/2008 11:35 AM (GMT -6)   
I would add a small bottle of body splash spray for the odor while changing in the bathroom. Or can she wear pads? I assume that you've already spoken with her teachers to explain her situation so she can leave immediately if needed.

I hope that she adjusts back in school with no problems, I know how kids can "over stress" about little things and I really feel for your daughter having to deal with this huge issue at such a young age. Hopefully being so well prepared will give her comfort.

How many times have us girls in school gotten their period during school without anything and had to go the whole day worrying about someone noticing. Or started throwing up without warning in class or on the bus and had to go home. Maybe hearing stories like that will help your daughter realize that accidents happen in school with other kids that are perfectly healthy will help her not feel so alone.

I hope that she is on the road to recovery and doesn't have to worry about accidents!
Theresa

Originally diagnosed with CD in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying "Undetermined Colitis"
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008

Post Edited (tbraz) : 3/2/2008 9:40:17 AM (GMT-7)


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 3/2/2008 11:42 AM (GMT -6)   
In addition to all those things, we keep a portable potty in the trunk of our car. Just in case we are somewhere where we can't find a place in enough time. We also keep a blanket in the car to cover up with. That way, nobody has to know what we are doing. We got ours at REI.com, or any camping store. Wish your daughter the best and hope she feels better soon.
diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female


chicagoatc
Regular Member


Date Joined Sep 2006
Total Posts : 133
   Posted 3/2/2008 11:58 AM (GMT -6)   

  You may have already thought of it but put in a few ziploc bags so she has a place to put the old clothes/unders.  I like the freezer ones (they are like blue tinted) because they seem a lot thicker than just regular bags.

Becky


29 years old; diagnosed since 1997 (but I've had it forever)
Current meds:
-Prednisone 7.5 mg!
-Re-trying Imuran; I'm at 100 mg now...but it's making me so tired!
-Asacol 12/day
-Failed Remicade (8/06-8/07)
-Calcium + Vitamin D(for my steroid-affected bones)
-Prenatal vitamins (for the extra stuff, not for pregnancy)
 


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 3/2/2008 1:17 PM (GMT -6)   
it might sound silly, but is there a little comforting object (or even a note) that you could slip in the kit. that way, if she does have an accident there will be something that calms her down, makes her feel a little less ashamed, etc. just a thought...good luck!
katie
23
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
gastritis

VSL #3
Amitriptyline to slow gastric emptying
Forvia
compazine


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 3/2/2008 2:07 PM (GMT -6)   

I've been putting an emergency kit together whenever I'm traveling (I've not had to use it......as yet!). 

Apart from the things already mentioned I also have: a Depends (disposable underwear, just in case I have got to be out and things flare up really badly) travel-size antibacterial hand gel, travel-size pack of antibacterial wipes (just in case, the toilet doesn't look too clean), a bottle of Ensure, Tylenol.


Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone taper from 60mg - Now on alternate days of 20mg and 10mg; 2/08: added 1 Pentasa x 1mg.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/2/2008 2:23 PM (GMT -6)   
Feminine napkin (pads) there's nothing wrong with her wearing them on a daily basis, it could save her the hassles of having to completely change undies and pants if it's a small enough accident.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Winter
Regular Member


Date Joined Sep 2005
Total Posts : 210
   Posted 3/2/2008 7:40 PM (GMT -6)   
I wear the Always overnight pads. They are very slim & extra wide in the back.

Asacol 6 tablets twice daily
Remicade every 8 weeks
Folid Acid daily
Methotrexate 3 times a week
Iron supplements
 


ljf01
New Member


Date Joined Feb 2008
Total Posts : 18
   Posted 3/2/2008 11:16 PM (GMT -6)   
Thanks for the great ideas!!!!!
 
This will be good for school, travel, and everyday life just "incase"
 
Laura
Mom to Hailey(age 9)....she was just diagnosed with ulcerative colitis mid Feb08
Currently on 500mg pentasa 3x/day and 16mg prednisolone (liquid-it says subsituted for orapred) 2x/day, working a little but not a lot starting to work hopefully!!

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