i hate prednisone

ThePostmodernIrony

Regular Member

Joined : Feb 2007

Posts : 344

Posted 3/2/2008 1:08 PM (GMT -7)

I'm so tired today and got a good nights sleep. I'm all over the place emotionally. My doctor says that I tapered too fast last time, prednisone is the only thing that keeps me able to do my job. grrrrr. i know people are suffering much worst....but just wanted to let out some frustration. be well all.

UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax

tjf

Veteran Member

Joined : Dec 2005

Posts : 3238

Posted 3/2/2008 1:55 PM (GMT -7)

Vent away!!! That's why we are here. How quickly did you taper this time? Pred. gave me HORRIBLE insomnia.

Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

https://www.healingwell.com/donate
Co-Moderator UC Forum

ThePostmodernIrony

Regular Member

Joined : Feb 2007

Posts : 344

Posted 3/2/2008 2:07 PM (GMT -7)

tapering really slowly...i'm at 15 after doing a week of 15-20 every other day... now i'm going to stay at 15 for a while....so frustrating because i feel like i treat people in my personal life all crazy even though i tell them whats going on

jujub

Elite Member

Joined : Mar 2003

Posts : 10416

Posted 3/2/2008 3:13 PM (GMT -7)

I think we all hate Prednisone, but sometimes it's a necessary evil. Vent all you want, pretty much everyone here knows what you're going through. Between 4 hours of sleep a night and the Pred edginess, I become a completely different person on Pred.

Judy

Moderate to severe left-sided UC (21 cm) diagnosed 2001.

~~Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine~~

Colazal, Remicade, Nature's Way Primadophilus Reuteri.

In remission since April, 2006. Remicade has been my wonder drug.

Co-Moderator UC Forum

LWW1993

Regular Member

Joined : Oct 2006

Posts : 90

Posted 3/3/2008 6:09 AM (GMT -7)

Count me in as part of this club right now. Just started 60 mgs of prednisone last week. I take 30 mgs in the morning and 30 mgs in early evening and I'm up every night at 2 or 3 am. I am so tired until I get my next dose of prednisone in the morning to rev my system again. Do any of you take anything to help you sleep or deal with the insomnia or does it even make a difference?

Diagnosed UC - 1993
32 year old female

Current Meds:
Prednisone - 60 mgs
Soon to start 6-MP...
Colazal (3 pills three times a day)
Probiotic, Folic Acid, Lysine

Beth75

Veteran Member

Joined : Jul 2007

Posts : 2155

Posted 3/3/2008 7:03 AM (GMT -7)

I hate pred too! but it did help me.

I just got a couple of purple strech marks on the side of my chest, none of my bra's fit anymore and i have put on 15 pounds. I am losing hair, I spent saturday crying......hating all the bad things pred has done to me. I bought some jojoba oil to lube up my skin, so hopefully no more marks........

Beth, 32

Major Flare Sept/Oct 07 ~ no blood since Dec 07 ~ almost normal bm

UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)

Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.

Minimal Change Disease (Kidney Disorder) dx'd Sept 2007

Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday. Potassium 100mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

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