how much pain do you all have when you are flaring?

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Regular Member

Date Joined Dec 2007
Total Posts : 354
   Posted 3/2/2008 4:03 PM (GMT -6)   
My lower back on the right side has been hurting really bad and I had convinced myself that I had a kidney infection. So I went to urgent care and they said my kidneys and all are fine. As soon as I said I have IBD he said oh that was it is then and that I need to learn the difference between IBD and other pain. He kind of acted like I was wasting his time. And the next day I started having loose stools and some blood.:( I had similar pain before when I flared but never this bad. And then after I start flaring the pain goes down a bit. How much pain are you all in from day to day when you flare? Do you have more pain when you start flareing?
Jessica 26/F
Asacol 4pills /three times a day(from 2 pills/ three times a day)
Prednisone 40Mg/day taper every 5 days(at 5 mg currently every other day)
Culturelle once daily
Tried (Entorcort EC 9ml/day)

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 3/2/2008 5:20 PM (GMT -6)   
Jessica, it's hard to compare pain with another person because it's highly individual and subjective. You and someone else could have exactly the same thing going on physiologically, and experience completely different amounts of pain.

Low back pain (I describe it as a horse standing on my back) always comes with any degree of flaring for me. It's similar to the pain I used to have with bad menstrual cramps, but worse. I'll also get what I refer to as "square poop in a round colon" syndrome. That's where I can feel it moving all the way through, and it feels like it has corners that are scraping my colon all the way. Then, of course, there's the always-popular "barbed wire poop."

I don't know how long you've had UC, but most of us do learn to differentiate after a while. I've been really lucky, having only one urinary infection in my life, and that pain was in a completely different place for me - up higher toward my waist.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
Co-Moderator UC Forum

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 3/3/2008 12:47 PM (GMT -6)   
I agree with Judy that once you've had this for a while, you can tell the difference between the different kinds of pains. We can't use a standard pain scale since we are all different. But when I'm starting to flare, the first thing that hurts are my knees and hips. When they start acting up I know a flare is coming. Once the flare hits, I get a lot of cramping, sharp shooting pains in my left side. And then of course the pain upon going. For me, this is my Uc flare "normal" but every now and then, a mysterious pain will pop up that I get concerned about and then it turns out to be something other then my Uc.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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