psorisis along with UC

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pinkyb
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 3/2/2008 7:15 PM (GMT -6)   
does any one have psorisis along with their colitis . I was diagonsed with psorise 7 years ago and after that 5 years got UC. Is there any relationship between the two.
 
I am taking Asacol

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 3/2/2008 8:18 PM (GMT -6)   
Both can have a fungal etiology. Natural antifungals may help the psoriasis (skin conditions in general), as well as reducing grains and sugar. My UC symptoms disappeared after following an antifungal program.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/2/2008 9:02 PM (GMT -6)   
It's common for IBDers to suffer with psoriasis/eczema, they are also autoimmune diseases and usually if you suffer with one you'll have at least another.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 3/2/2008 10:33 PM (GMT -6)   
when i got uc, in 99, about two weeks later, i got this stuff wrong with my hands, where they get really really dry and crack open and get leathery like. Drs say it isn't psorasis or excemas they just don't know what it is. But it is surely connected, or at least you would think so. It is worse in the winter, or when i was flaring, I had thought that when i got my colon out, it would go away, and it has gotten some better, but it still is there.

pinkyb
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 3/3/2008 5:09 AM (GMT -6)   
Thanks, what are some natural anti fungals? how much of grains and sugar in take should you reduce. do you eliminate it from you diet totally or take like one slice of bread and 2 tea spoons of sugar in a day?

pinkyb
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 3/3/2008 5:12 AM (GMT -6)   
Summerstorm what did the doctor tell you to take or apply for those leathery hands. I have the same problem on my hands. any diet variation help.

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/3/2008 12:42 PM (GMT -6)   
Hi, welcome to Healingwell :) I have had psoarasis for many years, even before my Uc diagnoses. Though at the time, I didn't know that is what it was. But when I would flare with my Uc so would my psoarasis. I had it along my hairline and when it got real bad, it would creep down my forehead and down the sides of my face by my ears. One of the things they use for psoarasis sufferers, if conventional creams don't work, are immune suppressing medications. Because psoarasis is an auto immune condition. Luckily, since I've been on 6mp, I haven't had any trouble with my psoarasis - except when I flare and even then it's not that bad really.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


MitzMN
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Date Joined Feb 2007
Total Posts : 648
   Posted 3/3/2008 5:06 PM (GMT -6)   
Hey, Sherry:

Do you believe, then, that your psoriasis has been alleviated, your outbreaks are less frequent or less severe, since you've gone on Imuran or 6-MP (whatever you are on)? Or do you think it's just stopped being as much of a problem for you?

My poor twin brother has a nasty, nasty outbreak of psoriasis right now, and he's going to a new dermie doc tomorrow. He had his first outbreak probably eight years ago, and he had a few good years between that and his next one. He's probably in his fourth outbreak right now, maybe fifth. They do the usual pred and steroid creams. I feel like immunomodulators like we take, 6-mp and Imuran, might be of assistance to him, but I'm unsure (and haven't found evidence on the net) whether they are given for psoriasis.

Do you have any suggested sites like HW for psoriasis where I might get some more info?

Thanks, Sherri.

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/3/2008 5:41 PM (GMT -6)   
Hi Mitz :) They use a variety of medications to help treat psoriasis one of them are DMARDs such as Enbrel, Remi, and Humira if other options don't work. Your poor brother! I don't know of any forums for such a thing but he or you can do a search for them. Or maybe you can try here: http://www.psoriasis.org/home/
This site has a community but I'm not sure how active they are.

I know for a fact that my PS has lessened considerably due to the 6mp and I couldn't be happier! :) I very rarely get any outbreaks now. Maybe when I start to flare with my Uc but my PS is only minimal and only last but maybe a few days. I've been suffering from PS now for nearly 25 years so I don't think that it would just stop for me - though I wish it was so!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


MitzMN
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Date Joined Feb 2007
Total Posts : 648
   Posted 3/3/2008 5:54 PM (GMT -6)   
Thanks, Sherry. I've done a little looking, but haven't found exactly the same kind of place as HW -- and I'm spoiled! Plus, doing the research for someone else, I'm not completely clear on all of his symptoms or the history of his symptoms. The previous outbreak before this one, approximately a year ago, I called and made an appointment for him at Mayo Clinic, but the pred cleared things up so he canceled the appointment. He's now had another long course of pred, and almost as soon as he stops, he breaks out again. His hands are just a mess; his back and trunk and legs are a mess, too. His wife the other day said she was washing the sheets very often because they become bloody from all of his scratching. He won't shower at work anymore, either, because of embarrassment over his plaques. I feel just awful for him because he is without a doubt the nicest man on the planet.

I'll do some more poking around, Sherry. Thanks for the tips. I was surprised to read that Enbrel is an injection. Yikes!

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/3/2008 6:04 PM (GMT -6)   
Awww the poor guy! I truly feel for him because even though mine is limited, it still drives me insane........I couldn't imagine having that on my torso. If he doesn't know about the DMARDs maybe you should bring that up to him. He sounds like he would be a good candidate.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/3/2008 10:26 PM (GMT -6)   
i found this stuff called glysomed, that i use during the day, it helps ALOT, then i have this other stuff, calle O'Keefes working hands, i use it at night, it's too greasy to use during the day, but it really clears them up ALOT!
i tried everything else i could think of i even put crisco on my hands for a while, and mayo, and all kinds of stuff,
i hear that ultraviolet light therapy works really well, so i am thinking of going to the tanning bed and just putting my hands in when theyget really bad.  but those lotions do help a whole lot, i got them off the internet and drugstore.com

MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 648
   Posted 3/4/2008 7:41 AM (GMT -6)   
Thanks, Summerstorm. I'll pass that info along to my bro!

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/4/2008 3:09 PM (GMT -6)   
Hopefully part of my message I just typed isn't here or elsewhere.....my husband had terrible roseacea due to the prednisone. Finally off the prednisone and as promised by the GI Dr it was clearing up - very slowly but clearing nevertheless. He needed to see the dermatologist for a mole (which was removed and came back abnormal and he has another deeper surgery scheduled soon - always something!) and the dermatologist also commented that although the roseacea was clearing up there was a seborrhea situation developing. He prescribed a special bar soap ZNP he gave us a sample of as I think it is about $7 a bar and a different cream Desonide Cream 0.05% which really helped.

However coincidentally we were on a 2 week anti biotic regimine to get rid of H Pylori and maybe the anti biotics really helped to clear everything up??? Not sure but I seem to think it helped a lot.

However the darn prednisone just keeps affecting the complexion it seems when you are on that medication and all the dermatologist stuff out there just doesn't seem to clear it up as long as you are taking it.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


pinkyb
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 3/5/2008 4:17 AM (GMT -6)   
Thanks Summerstorm I shall definately look into the ultra violet light therapy.
Pinkyb

IndianaUC
Regular Member


Date Joined Feb 2007
Total Posts : 212
   Posted 7/30/2008 9:40 AM (GMT -6)   
I have had psoriasis all my life on my scalp. Sometimes it was so bad that my skin was flaking away and taking some of my hair with it. It would even weep a nasty orange stuff. Since I have been on Sulfasalazine I haven't had a single bit of psoriasis. I think psoriasis is a lot like UC. You never know when it will show up or when it will go away. My mother always has psoriasis on her arm and she started putting a lotion with juniper berry and shea butter on it and in a few months it went away. It has never returned. So who knows what caused hers and mine to really go away, but my husband swears it's the sulfasalazine for me.
- DXed with "left sided" UC in 1998. DXed with "proctitis" Oct. 2007
- Sulfasalazine 4 500mg tabs twice daily
- 500mg Vitamin C, 1 Multivitamin, L-Glutamine
- Max Acidophillis EC Capsules 350Mg(7 types of bacteria with over 42 billion viable cells) with 50 Mg colostrum & 50 Mg FOS(fructo-oligosaccharides)
- Experimenting with this or that on occasion. Always open to new ideas.
- Colonoscopies - 2 (Due for my next one ASAP)


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 7/31/2008 1:41 AM (GMT -6)   
i have had psoriasis since i was in 5th grade.
i have it on my scalp and all over my body.
i have the kind that are little dots rather than big patches.

its on my arms, legs, torso, scalp, knees, elbows, and around my nose on my face.

when im on pred it completely goes away.
its worse in the winter.
cocoa butter lotion put on like twice a day or more has always helped me unless it was really bad.
stress causes breakouts as does getting sick of any kind (cold, flu etc)

it was under control for quite a while and then came back with a vengence. 2 years ago, i saw a doc who prescribed methotrexate (immunosuppressent like imuran etc) and it went away miraculously.

then i had the worst flare up of my life right after that. like during my last week of methotrexate. (which is sometimes prescribed for UC).
that flare lasted year and 4 months (which you all know already since i talk about it so much)

but while sick with UC, my psoriasis goes away.
pred clears it up nicely.

then when i got better in december, the psoraisis came back all over the place (just in time for summer and bikini season darn it)

now i started flaring at end of may and started pred, now my psoriasis is gone again.
all gone. completely.

i either feel like crap and look fabulous
or
i feel great and look like crap.

sucks.
but most of those expensive cure creams for psoriasis are a hoax.
ive tried them all and they dont work.

the best thing i have found is :
-sunlight
-tanning beds
-cocoa butter lotion
-swimming pools
-ocean

dont know why, but summer time and water are a good combination for getting rid of it.
and keep your skin lubed up with good ol' cocoa butter.
very cheap and has worked for most people i recommend it to.
i say most cuz, again, like UC, everyone is different.

but try the simple cheap stuff before you spend a fortune on a teeny weeny jar of "cure' cream for it.

hope that helps.
been living with this for most of my life.
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


Ouchie2
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 8/1/2008 5:49 AM (GMT -6)   
Very interesting thread.....I gave up smoking a few years ago and all of a sudden I got psorisis on my hands which came and went on occasions, then was diagnosed with UC in 2006 then last week I was diagnosed with Iritis......no more psorisis.......sim sure smoking masked these problems...hate to think what comes next
HELLO FROM NEW ZEALAND

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