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hollybob
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/3/2008 4:01 PM (GMT -6)   
I was recently put on complete bowel rest, and am on a TPN feeding tube. I can have ice chips and that is all, no food or drinks. This could be for months. I wonder if any of you have gone through this? Is it really that bad to sip water occasionally? I have been in the hospital 2 times this month for over a week each time. I've never had a flare up like this. I'm on all kinds of medicine, and have been really weak for a while. A stomach bug is what brought all this on. I caught the flu over the weekend, and haven't left the house in over a month. I feel so discouraged, I need some advice, tips, and support.

lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 3/3/2008 4:14 PM (GMT -6)   
Oh my, so sorry to hear that you are not feeling well. I have never been on bowel rest, but I think others have. I can't imagine that water would be bad for you, but definately check with your doc. You may also want to check if you can chew gum. Just to have the feeling of actually getting to chew something and to have a taste in your mouth. Hang in there, get plenty of rest and I will be thinking about you and praying for your fast recovery.
diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female


hollybob
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/3/2008 4:19 PM (GMT -6)   
Thank you, I can chew gum. Thank goodness!!!!!

basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 3/3/2008 4:55 PM (GMT -6)   
My first flare was huge and nothing I tried worked for me so my mom suggested to my GI that I try a bowel rest. I was on TPN for 6 days and on the 7th I think is when the started me on mushy soft food. I wasn't allowed to chew gum, suck on mints or drink water. However at the end bowel rest they did a colonoscopy and I was completely healed
If I were you I wouldn't go a do anything without talking to your doctor first. The whole point is that nothing is supposed to be digested by your digestive system so it can heal. But I wouldn't definitely ask because it would make the situation a little better.
Sam
19 years old
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


hollybob
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/4/2008 8:14 AM (GMT -6)   
Thanks a bunch great suggestions!!!!! Was it hard to retrain your system after 6 days? I'm projected to be on this for 2 months minimum, and am scared to death to learn all over again.

basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 3/4/2008 9:32 AM (GMT -6)   
I was soo hungry the first couple days but you get used to it after a while. The only thing that sucked a lot was after you stop eating and you excrete all of your poo you body keeps trying to get rid of stomach bile so you have weird poop for a while. I don't know how to explain it!!
Good luck. I hope it helps you like it helped me
Sam
19 years old
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


hollybob
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/4/2008 10:28 AM (GMT -6)   
I'm not really hungry, but I'm so thirsty!!!!!!! The poo, do you mean tar like liquid?

basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 3/4/2008 1:07 PM (GMT -6)   
It was almost two years ago so I'm a little fuzzy. All a remember is that my stomach would gurgle, I'd go into the bathroom and it would just shoot out, and it burned like a mother. I think it was an awkward shade of yellow and smelled awful. I shared a bathroom with another patient and I would always have to use the bathroom without warning and patients mother would always be in the bathroom doing her make-up. I was pissed!
Did you talk to your doctor about liquids? Even though the banana bag has enough nutrients for your body, I can't imagine that not having water or anything in your mouth is good for it.
Sam
19 years old
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou

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