Those with rare pred side effects-pls share

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

heen
Regular Member


Date Joined Apr 2004
Total Posts : 256
   Posted 3/3/2008 5:16 PM (GMT -6)   
Just wondering how many of you have had the same kind of side effects I do when on Pred.  My dr says it's rare, but it's known to happen.
 
I go through withdrawals like alot probably do when you taper.......anxiety, fatigue, brainfog, shakes, night sweats, sleeplessness.  I sometimes flare back up with bleeding for a few days then it evens out.  which I guess is normal.
 
But.....
 
The weird thing is that at @ 25mgs, I go through withdrawals every day on and off through out the day.  Like an anxiety attack, hyperventilating, crying and shakes so bad. and also the side effects I mentioned in the first paragraph.  It's really a toll on my body.  I can't really function normally and my thought process is just not very good.  My dr says its like a drug addict going through withdrawal.  I cannot work at this time and I really feel uncomfortable around people, unless they know what I'm going through.  I don't get mean but a bit moody and frustrated.
 
I just wonder how many people aren't able to function on this drug.  I take ativan and when really bad kolonapin.  Which I hate taking but it works until I get off the evil drug. 
 
 
 
 
Remicade- 7th infusion Jan 10,2008
Dx with UC In Mar 2004. Mainly Left sided, at times has skipped through the whole colon. Also have IBS.
50mgs of Imuran, Asacol 3/3x's day, Bentyl as needed
Holistic approach- supplements- fish oil, probotics, gut repair, allergy enzyme, paleofiber
 
 
 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 3/3/2008 6:59 PM (GMT -6)   
I have had anxiety problems since about 20 mg or so. It was really bad at 5mg. Now I am doing 5 mg every other day and I am doing much better. My only thoughts are that my body is probably producing natural corticosteroids again. I kindof have anxiety problems anyway although I don't take anything for it so far. It sounds like you might also. Maybe thats why it is worse for us. Hopefully you wont have to take it again if you are on the remicade.
Jessica 26/F
Asacol 4pills /three times a day(from 2 pills/ three times a day)
Prednisone 40Mg/day taper every 5 days(at 5 mg currently every other day)
Culturelle once daily
Tried (Entorcort EC 9ml/day)


heen
Regular Member


Date Joined Apr 2004
Total Posts : 256
   Posted 3/3/2008 8:25 PM (GMT -6)   
unfortunately my last remicade didnt work and i had to do the pred...................
I'm still on for my next dose of remi on mar 6. not sure if it will take...........

I really held off from taking the pred until I couldn't stand the pain any longer. Oh well.......
 
 
Remicade- 7th infusion Jan 10,2008
Dx with UC In Mar 2004. Mainly Left sided, at times has skipped through the whole colon. Also have IBS.
50mgs of Imuran, Asacol 3/3x's day, Bentyl as needed
Holistic approach- supplements- fish oil, probotics, gut repair, allergy enzyme, paleofiber
 
 
 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 3/5/2008 11:00 AM (GMT -6)   
Good luck I hope it works for you!
Jessica 26/F
Asacol 4pills /three times a day(from 2 pills/ three times a day)
Prednisone 40Mg/day taper every 5 days(at 5 mg currently every other day)
Culturelle once daily
Tried (Entorcort EC 9ml/day)


UC Wife in MD
Regular Member


Date Joined Aug 2007
Total Posts : 63
   Posted 3/5/2008 7:41 PM (GMT -6)   
My Husband went through (and is still going through) horrible Prednisone side effects. I saw him cry maybe once before he was on steroids. On 60 mg he was crying every day for no reason at all. He's got really bad water retention because the steroids lowered his Albumin. He has trouble sleeping, wakes up in a pool of sweat - I mean almost literally, the bed is wet.

If you look up on the list of "rare" side effects with Prednisone my husband has probably had 90% of them. It's a nasty drug.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 11:28 PM (GMT -6)
There are a total of 3,006,697 posts in 329,380 threads.
View Active Threads


Who's Online
This forum has 161845 registered members. Please welcome our newest member, StanInCA.
154 Guest(s), 8 Registered Member(s) are currently online.  Details
Tim G, Admin, Girlie, Cashed Out, Alxander, DJBearGuy, three 5's and a jack, jwebb