Since being diagnosed the longest remission i have had has been 4 months. I also had one 3 month remission, and a couple of 1 month ones. I have had UC for about a year and 7 months now, and have been flaring for about 10 of those months, and in remission for maybe 9. I had that 4 month remission when put on colazal, and i really thought that was going to be my wonder drug, well it was for 4 months anyway. So i began flaring on jan. 6th this year, which is incidentally the same day i started flaring last year after my 3 month remission (weird huh?) I got on pred and was fine and tapering and all that, and then all of a sudden BAM when i was about to taper from 15 to 10 mg, the morning after i thought it would be a good idea to eat italian food and drink bloody mats in a restaurant I started bleeding again. Its been 3 weeks now. im back up to 30 mg of pred, being doing the cortifoam 2 x daily for 2 weeks, eating as carefullly as i possibly can, resting when im not at work, meditating.EVERYTHING and ANYTHING i can possibly do. And the bleeding just wont stop.
Im so scared. I feel like ive lost so much of my life, and myself to this disease, as well as the majority of my friendships.
its hard to feel like i have a future.
sorry this is not very uplifting. Does anyone have any advice?
Diagnosed UC july 2006.
medications: colazal 9 daily, cortifoam 2x daily, 30 mg pred
supplements:calcium, aloe gel, pro-biotics
osteopenia from all this prednisone.