I'm Mark. I'm 27 and living currently in Austin, TX, but grew up in Colorado (too skinny to take too many more CO winters). I work as a coordinator of a ethical review board (mostly pharmaceutical research studies). I am single and live alone in my apartment in downtown Austin. I love my job, which is good cause lately I don't have the energy for much else it seems. I love music, and I have learned to love cooking as my combination of dietary restrictions and picky eating habits have made me learn.
I first came down with crohn's disease in 93'. I was 13 and my family had just moved to Aspen, CO from Boulder. Despite my excitement about
moving to Aspen (I loved to ski and snowboard), I had a hard time adjusting socially, and kept it mostly to myself. I came down with my symptoms w/in 4 months of moving, and after much soul searching, I think that anxiety and stress played a major part in the onset of my condition. I was hospitalized for severe dehydration, and upon diagnosis was given prednisone and told to ween off when I could. Nothing about
my diet, or probiotics to combat the antibiotics that I was given when they thought I had parasites, or the side effects of the prednisone. Eventually I learned that certain foods (dairy, fried foods, sweets) upset my condition. I learned that stress had a huge impact, and I learned to relax through deep breathing techniques. I graduated from high school in 98' and after traveling for a bit in New Zealand, and working in a couple of kitchens as a cook, I enrolled at CU Boulder's Kinesiology and applied physiology school with the intent of becoming a physical therapist. Four years later I was not ready to head back into school, and I got an opportunity to do some research with a classmate for a small naturopathics company. It was fun, but I wanted to move to a warmer climate and to a larger city, and I knew that if I didn't get out of Colorado then I never would. i was seeing a woman at the time and she wanted to move as well so we chose Austin.
I have taken almost everything under the sun, mostly in my early days of Rx. about
3 years ago I went au' natural and went off the entocort, and started on a combination of exclusion diets, probiotics, aloe vera (body balance), and massage every month, and relaxation techniques. After realizing some of the affects that the drugs i had taken had on my body I was very disillusioned with the medical establishment. I didn't get worse, but I wasn't getting any better either. Recently I've come to the conclusion that what I have to gain is much more that what i have to lose, because at this point my quality of life is not all that good. I started on Humira about
3 weeks ago. I'm still having most of my symptoms, but my diarrhea has completely stopped. Unfortunately my inflamed ilium makes passing solid BMs very uncomfortable. Sorry, but this is the only place I really feel like I can tell anyone and they will understand and not just pretend not to be grossed out. I hope that as my treatment continues I will start to feel better and can start to have less pain. Reading some of the stories about
the people that have gone on Humira and into remission...I don't know why I always still have hope. Every time I try something new, I think maybe this will help. I'm not even looking for a cure anymore. I just want to make it a little better. I f I can find enough small things to piece together, maybe I can live a halfway normal life.
Wonderful to meet all of you. I'm very excited to have found the site today, and plan to utilize it frequently.
I took out your last name for security purposes :)
Post Edited By Moderator (Red_34) : 3/9/2008 6:45:17 AM (GMT-6)