I went after I was unable to even keep liquids down. Generally, my blood pressure would be very low and pulse very high. I was always bleeding heavily, was living in the bathroom, not eating..then throwing up anything I did eat. I also tended to be feverish at this point.
I have a huge tolerance for my disease, and may have waited too long by the time I went. But....I would finally go after the symptoms I described. My last hospital stay had my intial blood pressure at 60/40. Im lucky I even made it!