c-scope tomorrow, prepping all day today, wish I had some encouraging words

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

UC since'76
Regular Member


Date Joined Dec 2006
Total Posts : 77
   Posted 3/4/2008 3:38 PM (GMT -6)   
Tomorrow is my every-two-years c-scope.  First scope with this new GI, best in town, but he scares me. He is real gruff. I saw him two years ago for a slight flare. He said never stop Asacol, but I had to because of my sorry insurance. It made him mad and I am a real coward and mad people scare me. He put down c-scop, no rush on my record and sent me off. I said I needed to get it done as soon as possible because it terrifies me. Well, THAT made him mad. He said, meanly, "Well, I can't do it tomorrow." But they did have a cancellation the next day. I told him it took 10 years to ever get up the nerve to see a doctor and another 10 years to ever have a scope and it took psychiatrists, and I need to be OUT. No amnesia, OUT. He said "OK. Stick to your guns. Tell me that every year." He called it phobic. 
 
 He did a flex-sig while I was in the hospital 2 yr ago. I told him all this. I was OUT and I understand I slept in recovery for an hour-and-a-half. For a 5 min. procedure. I guess I trust him that I will be OUT
 
We moved once for a year and that guy would not listen. He said "I have something that -one-half milligram and you won't remember the afternoon. I begged him to put me OUT but he said no. Well. 16mg. later, I was awake and screaming. He was screaming back "we can't give you anymore." and "Be still, it is hard to get around this corner." Every GI I have told that to since has put me OUT. So, it occurs to me, they don't WANT you screaming and especially moving.
 
I am so terrified, it completely overrides the fact that they are looking for cancer and if they find it, it will mean a total colectomy and permanent iliostomy. That is pretty terrified.
 
This disease terrifies me. GI's terrify me. Being examined terrifies me. Why THIS disease. I could have handled something else.  
 
Please tell me I will be OUT.
Ulcerative Colitis since about 1976
Pan colitis since at least 1994
 
Never had a flare until MD gave massive dose of Magnesiun while hospitalized for bronchitis.
 
During subsequent hospitalization for the flare, GI looked me straight in the eye and said "don't ever stop using Asacol."
Insurance company thought otherwise so I'm on no meds.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/4/2008 6:07 PM (GMT -6)   
I'd suggest you find another gastro. Why see someone who frightens you and has zero bedside manner?

In the meantime, talk to your anesthetist when you go in for the procedure. Make it clear you've had problems in the past and they'll take care of you. Any doc that's doing a scope and the patient is awake enough that they're screaming in pain should have enough sense to abort the procedure.

Regarding the insurance, your doctor ought to be able to make a case with the insurance company for you needing to be on medication. I'm puzzled as to why insurance would deny you what's a standard med for UC.
Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 


Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 3/4/2008 7:26 PM (GMT -6)   
People here in the UK slate our NHS system.This really angers me,especially after reading of the plight of so many of our friends across the pond.If I need a med(not to be confused with want though!),I get it.I can't imagine having to "shop" for my own healthcare.Your insurance system seems like a real lottery to me.

I had a C-Scope on Friday,that revealed my distal disease is now Pancolitis.I told the Gastro doing it,that I'd stopped Asacol as it made me feel sick.He immediately switched me to Pentasa.No forms to fill out,no need to justify to a third party,just the standard UK script charge,which is about ten dollars(1 months supply)to you guys.I left the Hospital with a 6 week taper of Pred and Calcium/Vit D combo tablet too.Both scripts the same price as the Pentasa.

However,I'm now waiting for a PPC,which I pay the equivalent of 150-200 dollars for and covers unlimited meds for a year.

Sorry for digressing slightly,although this does relate to the "no Asacol" thing,and sorry even further for not being able to help.But I really hope that a few back here in the UK,that knock our health system,will see this and take some notice.

As for your GI.........easy,switch.At which point does this pious,condescending *hole,put the CARE into healthcare?

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/4/2008 7:32 PM (GMT -6)   
If your GI is rude to you, he isn't "the best." The best GI for you is one who will listen to your individual needs and work with you to try to get you well. I also don't understand why your insurance wouldn't cover the Asacol, unless you don't have prescription medication coverage?

Like most companies, the maker of Asacol has a program to help people who need their drugs but can't afford them. Proctor and Gamble makes Asacol, and here is the link for information on their Asacol Patient Assistance program:

http://www.aegis.org/factshts/network/access/pa/mesa.html

If the insurance truly won't cover your meds, try asking P&G for help.

Good luck with your scope. I get IV sedation and go to sleep, wake up after it's over. You're right, they don't want you moving around and resisting during the procedure.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


UC since'76
Regular Member


Date Joined Dec 2006
Total Posts : 77
   Posted 3/4/2008 7:57 PM (GMT -6)   
It's not that they outright deny Asacol, it's just that I have a yearly dollar amount I have to stay under. Asacol is expensive and if I use up most of my "allowance" and then get really sick in say November, I will not have the money for the drugs I need then. It is agonizing to have to make these decisions about whether to take a drug or not.

What I really need is a crystal ball.
Ulcerative Colitis since about 1976
Pan colitis since at least 1994
 
Never had a flare until MD gave massive dose of Magnesiun while hospitalized for bronchitis.
 
During subsequent hospitalization for the flare, GI looked me straight in the eye and said "don't ever stop using Asacol."
Insurance company thought otherwise so I'm on no meds.


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 3/4/2008 8:21 PM (GMT -6)   
I don't know if you have tried Colazal or not...it just went generic. Much cheaper.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


bluepurl
Regular Member


Date Joined Feb 2008
Total Posts : 56
   Posted 3/4/2008 9:28 PM (GMT -6)   
good luck to you, and I agree it might be time to find a new doc. you're the boss and can fire docs if necessary. I trust that he will put you out -- keep reminding and talk to the anesthesiologist if needed.

our health system is a joke - it's just not right what these companies do to people. i think there is a coupon for asacol right now since lialda just came out. my docs in the past have given me samples of some drugs... maybe your gp can help?

not sure what your sense of humor is, but I usually go to cuteoverload.com or icanhascheezburger.com to have a good laugh -- take a break from the seriousness every once in a while :)

UC since'76
Regular Member


Date Joined Dec 2006
Total Posts : 77
   Posted 3/5/2008 7:24 PM (GMT -6)   
Just got back from my colonoscopy. Told everyone I saw I needed to be OUT. Found out it is called MAC. Monitored anasthesia care. Boy was I ever OUT. didn't even get to enjoy the drugs. They came to the holding area and all of a sudden Whomp! it was over and a nurse was saying complete remission, come back in two years. GI Talked to my son but no immediate follow-up appt mentioned. I know he took biopsies and they are microscopic. Will call in the AM to see if I need to make an appt. Never even saw my Doc except by chance I passed him in the hall. He just kind of nodded. They say he is nice, but he still scares me.

Now I hope my insurance company doesn't start trouble the way they did with some sleep studies.
Ulcerative Colitis since about 1976
Pan colitis since at least 1994
 
Never had a flare until MD gave massive dose of Magnesiun while hospitalized for bronchitis.
 
During subsequent hospitalization for the flare, GI looked me straight in the eye and said "don't ever stop using Asacol."
Insurance company thought otherwise so I'm on no meds.


KKubin
New Member


Date Joined Mar 2008
Total Posts : 7
   Posted 3/5/2008 7:26 PM (GMT -6)   
I agree with most everyone, I think you should find a new GI...But you'll be fine. Good Luck!
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, August 17, 2018 6:13 AM (GMT -6)
There are a total of 2,993,584 posts in 328,054 threads.
View Active Threads


Who's Online
This forum has 161237 registered members. Please welcome our newest member, Julian2193.
231 Guest(s), 8 Registered Member(s) are currently online.  Details
She 1, JayMot, csorthofeet, Gemlin, lotuslight, Crazyick, Robertmp, ljimd