Husband and I are "supposed" going to the New Orleans Jazz festival this April/May.
The last time I went, Immodium was a magic pill for me, but now days, I can't always count on it.(how many can I safely take? I usually only take two the night before a trip and two the morning I am leaving.
The festival is held in a very large area and the bathrooms are not scattered all over, but in very specific places. As I'm sure you all understand I am very worried. Plus the trip there goes through an area of I think it's Kentucky with no rest stops for miles.
I am on 9 asacol a day and the suppositories 1/2 every other day. and I have another appointmeny April 2.
This meds are not working at this time, and the blood is a biggest problem.
If I am in a mall, and I feel I have to go, and run to the bathroom, usually all I do is pass bloody gas.
But it is making me paranoid to go anywhere that I can't account for every bathroom around.
I am hoping he will try something new, but I refuse to go on Pred. I would almost be willing to live like this than what I have read and seen about Pred.
I have many enemas left and was wondering if I should try 2 weeks of those again, as he pretty much told me the last time I was there, to experiment with my meds.
But getting back to travel. What do you all do about that? Any suggestions?
Thank you all. It's so helpful to have place to ask questions that are otherwise so embarassing.