Can I ask about vacations and traveling?(sorry long)

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Regular Member

Date Joined Jan 2008
Total Posts : 362
   Posted 3/4/2008 5:08 PM (GMT -6)   
Husband and I are "supposed" going to the New Orleans Jazz festival this April/May.
The last time I went, Immodium was a magic pill for me, but now days, I can't always count on it.(how many can I safely take? I usually only take two the night before a trip and two the morning I am leaving.
The festival is held in a very large area and the bathrooms are not scattered all over, but in very specific places.  As I'm sure you all understand I am very worried. Plus the trip there goes through an area of I think it's Kentucky with no rest stops for miles.
I am on 9 asacol a day and the suppositories 1/2 every other day. and I have another appointmeny April 2.
This meds are not working at this time, and the blood is a biggest problem.
If I am in a mall, and I feel I have to go, and run to the bathroom, usually all I do is pass bloody gas.
But it is making me paranoid to go anywhere that I can't account for every bathroom around.
I am hoping he will try something new, but I refuse to go on Pred.  I would almost be willing to live like this than what I have read and seen about Pred.
I have many enemas left and was wondering if I should try 2 weeks of those again, as he pretty much told me the last time I was there, to experiment with my meds.
But getting back to travel.  What do you all do about that?  Any suggestions?
Thank you all. It's so helpful to have place to ask questions that are otherwise so embarassing.

Veteran Member

Date Joined Aug 2007
Total Posts : 2202
   Posted 3/4/2008 5:14 PM (GMT -6)   
If you're determined to make the trip and not be miserable and uptight the entire time, you might want to reconsider on the pred. For some folks, it works very well and very fast. If you're not on an extremely high dose or on it for a long amount of time, side effects will be minimal. It's at least worth discussing the option with your doctor.

I personally wouldn't put myself in the position you describe if I was in a really bad flare. Some things just aren't worth the stress. But if you're determined, you could always get some Depends as a safe guard.
Diagnosed with ulcerative colitis spring 1999.
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.

Regular Member

Date Joined Oct 2007
Total Posts : 486
   Posted 3/4/2008 6:32 PM (GMT -6)   
I think it's great that you want to go on your trip and find a way to make it work.

I would go with steroid rectal meds (either enema or foam) before going on prednisone. If you start with cortifoam in the AM and cortenema at night, and do that religiously for a week or two, I bet you will stop the blood and a lot of the urgency.

I've travelled w/a flare and I got through it OK every time. Once you get to the festival, you should try to scope out the bathroom locations. Hotel lobbies are great. We usually go to a hotel bar, make friends with the people who work there, and then get free access to their bathrooms for the whole time we're in town. It's worth a few big tips.

For the drive: You can use the website to find bathrooms in every state. It's fantastic.
Also, for the drive, I would pack some plastic bags, extra underwear, and good quality TP. It will be good to have them with you just in case you need them.

If you think that anxiety about not making it to a bathroom is part of the problem, you could ask your doctor for an anti-anxiety med in a low dose just for comfort.

Definitely experiment with the rectal meds. You can find so much good info about that here on the boards.

Good luck! You will have a great time at the festival.
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)

Forum Moderator

Date Joined Mar 2003
Total Posts : 10407
   Posted 3/4/2008 6:38 PM (GMT -6)   
Joylu, if your primary problem is gas and/or small amounts of stool or blood, you might try using a sanitary napkin to "catch" any accidents. You'll have to position it slightly differently, but it probably would keep you from an embarrassing show-through until you can get to the bathroom to change. Carry wet wipes with you also.

The rectal pred sounds like a good suggestion. Also, short courses of Pred can provide you with relief without causing many side effects. Also, my GI told me I could take up to four Imodium a day when needed. One of our other members says she has much better luck with Lomotil, which is a prescription medication.

Then relax and enjoy your trip. Many of us find that our D.D. tends to take some time off when we travel, so hope this will happen for you.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
Co-Moderator UC Forum

Veteran Member

Date Joined Nov 2006
Total Posts : 731
   Posted 3/4/2008 11:08 PM (GMT -6)   
i do hope that you can make it on your trip!
maybe talk to your doc about anxiety meds, that helped me with certain travel situations, although made me very tired.

for the car, get a portable toilet. they make several for camping and some that even flush and store the waste in a sealed container. not too sure how or where you would empty it... but better than going in a diaper!

i was flaring and we went to maui and i made myself take a walk on the beach at sunset, so i wore a depends for that. it was worth it and much better than staying in the room the whole time. and i didn't even need to use it.

many times for me, the bloody gas would be a stress thing. and having my porta-potty in the car or taking other precautions eases that stress for me a lot.

good luck and hope you're feeling better soon!!
28, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Asacol, probiotics, ground psyllium husk, fish oil, prenatal

may you live all the days of your life.

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