questions/ blood color

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braillegirl
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 3/5/2008 7:10 AM (GMT -6)   
Does the color of the blood/mucus mean different things?
Pink tinge, brownish tinge, red?
 
First I never have D during a flare. I have lots and lots of blood and mucus and constipation.
 
I started Prednizone 13 days ago at 40mg. with taper every 5 days. I have been on 20mg for 3 days now.
 
I was going 20+ times to the bathroom now it is down to about 10 or so. No poo...well not much. just blood and mucus, and that amount has gone down.
 
The color has changed from red, to pink, to brownish, and now back to red/pink.
 
BUT NOW
 
I find I am having more mucus and a few more times to the bathroom with more urgency since I started the 20mg.
Do you think the pred. is working? Why would it get worse with a taper? Will it get better as the taper goes on?
Is this normal?
thanks jan
 
 
 
 
 
 DX: 1993: sulfasalazine
1998: Pancolitis UC. asacal 2 2X daily, cortifoam, ?
2003: Protitis UC severe flare. asaca 2 2X daily, canasa, cortifoam, cortenema
2008: Proctosigmoiditis severe flare. asacal 3 2X daily, canasa/discontinued while on pred, cortifoam/discontinued, Prednisone 40 mg to be tapered each week
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 3/5/2008 9:25 AM (GMT -6)   
The higher it is, the darker it is....but for UC, it's not necessarily true if you're going multi times a day. Usually that's when blood has a longer time to sit in the colon during its journey downward or when it's pooled a bit when having very few bms.

Since you're on pred, healing and decreasing pred...you'll have bleeding....some darker because it's sitting longer in the colon from higher up and some from just sitting in the colon from less bms.

It takes a while for it all to heal and remember that the tissue is very fragile. With inflammation, you'll have more mucus, less bms will still create the mucus and if that's what's in the rectum..that's what will come out.

Why aren't you on the rectal meds as well while you're tapering. You have the urgency and that could be helped by them.

Maybe the cortifoam could be considered or you should go back on the canasa

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


braillegirl
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 3/5/2008 9:36 AM (GMT -6)   
I see my GI next week. I think he wanted to see what the Pred would do. He said he wanted to try one thing at a time. I don't know why. I will ask when I see him though!
Thanks for the blood explaination. I kinda thought that the brownish blood was from sitting in the colon.
I just started to have the urgency again since going to 20 mg of Pred. For a while that was mostly gone!
Thanks
 DX: 1993: sulfasalazine
1998: Pancolitis UC. asacal 2 2X daily, cortifoam, ?
2003: Protitis UC severe flare. asaca 2 2X daily, canasa, cortifoam, cortenema
2008: Proctosigmoiditis severe flare. asacal 3 2X daily, canasa/discontinued while on pred, cortifoam/discontinued, Prednisone 40 mg to be tapered each week
 


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 3/5/2008 9:38 AM (GMT -6)   

Jan,

I think the prednisone may have worked for you initially but not sure that you're tapering it correctly - and I say this from my own experience of doing things the wrong way.  It's true that you need to taper pred and get off it as soon as you can, but the goal is to get into remission, and maybe you should have stayed at 40mg slightly longer - as it seems you were still flaring when you began tapering after being on it only 5 days.

From what I understand, the aim should be to have no symptoms and then begin tapering at a slow rate so that your body gets time to adjust.  If you're in a flare-up and still tapering prednisone by 10mg every 5 days then it shouldn't be surprising for things to get worse. 

Have you spoken to your GI specialist about this? 

Things got under control for me quickly when I began my current cycle of pred, but below 20mg I have been having a slight flare-up.  Sometimes, it is recommended to increase the dosage back up slightly to get things under control again and then begin to taper again - or supplement the treatment with rectal meds such as cortenema to see if that helps (which is what I'm trying).


Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone taper from 60mg - Now on alternate days of 20mg and 10mg; 2/08: added 1 Pentasa x 1mg.

Post Edited (Rio in Maryland) : 3/5/2008 8:41:48 AM (GMT-7)


braillegirl
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 3/5/2008 10:28 AM (GMT -6)   
Well...I am learning a lot. I really NEED to ask more questions of my GI!! I do see him next week, but by then I will be on 10mg. I have some canasa...I am going to start using this today. I really don't know why he didn't want me to use it while on Pred. My thoughts are it wouldn't hurt me...I guess.
I am definitely not in remission.
thanks
 DX: 1993: sulfasalazine
1998: Pancolitis UC. asacal 2 2X daily, cortifoam, ?
2003: Protitis UC severe flare. asaca 2 2X daily, canasa, cortifoam, cortenema
2008: Proctosigmoiditis severe flare. asacal 3 2X daily, canasa/discontinued while on pred, cortifoam/discontinued, Prednisone 40 mg to be tapered each week
 


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 3/5/2008 11:55 AM (GMT -6)   

Yes, you should ask your GI specialist a lot of questions to make sure you're doing things the right way.  Even though you have an appointment next week, is it not possible to give him a call and discuss the situation over the phone? 

Obviously, any advice offered on this forum should be discussed with your GI specialist before you make any changes to your treatment.


Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone taper from 60mg - Now on alternate days of 20mg and 10mg; 2/08: added 1 Pentasa x 1mg.


braillegirl
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 3/5/2008 12:22 PM (GMT -6)   
You are right Rio. I have thought I would call him today after work and see what he wanted me to do.
thanks
 DX: 1993: sulfasalazine
1998: Pancolitis UC. asacal 2 2X daily, cortifoam, ?
2003: Protitis UC severe flare. asaca 2 2X daily, canasa, cortifoam, cortenema
2008: Proctosigmoiditis severe flare. asacal 3 2X daily, canasa/discontinued while on pred, cortifoam/discontinued, Prednisone 40 mg to be tapered each week
 


bgmyk
New Member


Date Joined Mar 2008
Total Posts : 2
   Posted 3/5/2008 1:48 PM (GMT -6)   
Hi Jan,

I'm having very similar problems at the moment I have a question for you.

What's your diet like? What have you been told to eat or have you been?


Thanks,

Mike










I was going 20+ times to the bathroom now it is down to about 10 or so. No poo...well not much. just blood and mucus, and that amount has gone down.

The color has changed from red, to pink, to brownish, and now back to red/pink.

braillegirl
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 3/6/2008 7:16 AM (GMT -6)   

Hi Mike, I eat pretty much what I want. No popcorn or nuts tho. Salad is rare...but I get hungry for it. But for the most part I have found that what I eat doesn't affect me.

My GI 5 years ago told me food had nothing to do with UC. So I have always eaten what I want.

Right now I am having a hard time withdrawing from the pred. I am on 20mg and I am a basket case. My hubby walks on egg-shells around me. It's sad. confused

jan


 DX: 1993: sulfasalazine
1998: Pancolitis UC. asacal 2 2X daily, cortifoam, ?
2003: Protitis UC severe flare. asaca 2 2X daily, canasa, cortifoam, cortenema
2008: Proctosigmoiditis severe flare. asacal 3 2X daily, canasa/discontinued while on pred, cortifoam/discontinued, Prednisone 40 mg to be tapered each week
 


uc_free
Veteran Member


Date Joined May 2007
Total Posts : 646
   Posted 3/6/2008 8:48 AM (GMT -6)   

Wow, I could have written your post describing my flares!!  I hardly get loose stools - just lots of blood and mucous.  I describe mine as tomato soup as that's how it looks!! 

Anyway, I haven't read others posts, but that taper seems to be waaay to fast to me.  When I go on steroid I am usually on them for six weeks minimum (starting with 40 mgs).  In fact, I had a severe flare of my asthma in the fall and my allergist wanted to put me on a quick "burst" of steroids.  When I spoke to my GI, he said "no way!"  Needless to say, the falre of my asthma was long over before I got off the steroids eyes  !  To his defense though, I have been in and out of a flare since may with no extended remission.

One other thing - have you tried suppositiores?  When I get the bleeding that you're describing it is often limited to that rectal area and the supps might also help.  Just a suggestion!

 

 

   



Tara

Diagnosed April 1998 - Pancolitis
Currently on (per day):
Pentasa 4 gms
Imuran 100 mgs


braillegirl
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 3/6/2008 12:55 PM (GMT -6)   
I have canasa suppositiores...but GI said to hold off using them to see what the Pred would do. I feel much better today with the bathroom trips. But my emotions are off the wall. No sleep either. I don't know why it was such a short taper, but I am sorta glad because if a short term on pred will do the trick then thats what I want. I see my GI next Wednesday. I have lots of questions for him...I am writting them down, I am also going to ask for a copy of the scopes that were done on me.
 DX: 1993: sulfasalazine
1998: Pancolitis UC. asacal 2 2X daily, cortifoam, ?
2003: Protitis UC severe flare. asaca 2 2X daily, canasa, cortifoam, cortenema
2008: Proctosigmoiditis severe flare. asacal 3 2X daily, canasa/discontinued while on pred, cortifoam/discontinued, Prednisone 40 mg to be tapered each week
 

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