I am in the middle of the worst flare I have ever had. I have been off my meds since August, when I gave birth to my son. I am adamant about not taking the drugs while nursing, but am now worried that I made the wrong decision. In January I began holistic treatments. I am being patient with the treatments, as I know that it will take a while to find the right mix of suppliments and diet for me. I recently found out I have a soy allergy and stopped eating anything with soy (which is basically all processed foods). I also do not eat red meat or poultry, which basiocally leaves me with the following things to eat - fish, eggs, yogurt, fruit and vegetables. Most dairy, wheat, and sugar causes an increase in symptoms. So, since January I have lost close to 10 pounds. On top of this, I am nursing a 6 month old infant, who still wakes twice during the night to nurse. I am living on about 4 hors of sleep a night, because once I wake to nurse the diarrhea starts. Two days ago I stopped counting at 12 bouts of diarrhea. The bowl is full of blood. I have absolutely no energy. I know I am dehydrated. My legs keep feeling like they are going to give out on me. I've never had diarrhea before with a flare - just blood and mucous. Today I threw up for the first time (the nausea started last week). My fear is that if I go to the hospital they are going to make me stop nursing and I will have to go on my meds again. I really don't want to take prednisone. But, I worry about dehydration and my blood presurre and anemia and everything else that is out of whack right now. I just don't know what to do. I have never had a flare this bad, and don't know at what point I should be really concerned and go to the doc. I am worried about me and my son. I guess I just need to vent. I feel like I can't talk to my husband or family about it, because they worry so much.
Sorry to ramble.
Diagnosed with UC in Jan 2006
took Asacol and 2 pred tapers
pregnant in Jan 2007 - went off meds
flare during pregnancy - went back on Asacol and pred taper
stopped drugs for nursing and now taking a holistic approach
Currently taking congaplex, zymex, multizyme, l-glutamine, calsol, protefood, colechol II and homeopathic "intestinal distress" drops.