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cworyhill
New Member


Date Joined Jan 2007
Total Posts : 16
   Posted 3/5/2008 2:00 PM (GMT -7)   
My name is Corey and I am a 21 year old male college student. I was diagnosed with colitis exactly 2 years ago. I would say I've been in a flare this entire time. I was originally on prednisone, then went to immuran, and now I have been on remicade for about 8 months. So far, the remicade has worked best but I still go to the bathroom about 6 times a day on average (mostly within the first half of the day).

My doctors tell me to not worry about my diet with colitis and just trust the meds. I did that for about a year and a half but then I decided to change anyways. Growing up I was definitely your typical teenager. I ate a lot of meat, drank a lot of soda, and ate mostly processed foods. This continued til about June of 07. I started by quitting sodas and gatorade and now I drink once bottle of vitamin water a day, a glass of soymilk, and water throughout the rest of the day. I also cut out most of my dairy except cheese. I have heard with breads that going whole grain is bad for colitis but then I've read that whole grain helps with diseases in general. I still eat meat, but I would say I've cut my daily meat intake in half. I mentioned that I am a college student and it makes it hard for me to stay on a healthier diet because those are more timely and expensive but at the same time I'm willing to figure things out that will help me.

Another thing I've done is daily excercise, yoga, and meditation. I just started the yoga/meditation part but those require a certain diet as well and I don't know if that kind of diet would help me or just hurt me.

If any of you have any advice or any ideas I would really appreciate you sharing them with me. And for those of you that have changed your diets and noticed good results please let me know what you did. Thank you all very much.

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 3/5/2008 2:14 PM (GMT -7)   
hi Cworyhill,

for me caffeine, coffee (caffinated or decaf) and oranges give me increased bm's. I seem to be okay with decaf tea and can have coffee every once in a great while, problem is, I think I am ok but turn out drinking more and more.

I thought I was headed back into a flare two weeks ago, turns out it was the oranges I has just started eating. Went away after I stopped.

Also check out probiotics.

Hope you can reduce your bm's soon.

all my best,
Beth, 32
Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 3/5/2008 3:04 PM (GMT -7)   
i have great results with diet and am off drugs. that is just my experience!
Pharmacy Student, Class of 2009.  Diagnosed 8/99.  Suffered for almost 10 years.  I am currently on the Specific Carbohydrate Diet and am nearing remission.  I feel fantastic!    I have lost so many years to this disease.  I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.  My goal is to open up a pharmacy and take care of my patients(particularly explaining what the drugs do to you), compound special medications, and have a great practice. HAVE YOU CONSIDERED THE SCD DIET? IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!  (In remission since 2/15/08)
Meds 3200 mg Asacol, 2.5 mg Prednisone.  Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications!  For me, diet works...


NIcepeter
Regular Member


Date Joined Sep 2007
Total Posts : 72
   Posted 3/5/2008 3:49 PM (GMT -7)   
My experience: you find the foods that your body likes. Each colitis patient seems different. Other people's diet as reference only. For example, I feel better if I eat wheat products contrary to many others.
36 yrs male. From Arizona
 
Took a lot of antibiotics for my sinus infection caused by allergy, Augmentin and triple antibiotics regimen. Now qualilfy to join UC team.
 
Dx in 2007. Proctitis only( party of Ulcerative Colitis). Mild Hemorrhoid. Fish oil 2 capules twice a day, helps. Alo Vera sometimes helps. Propolis helped quit bit, but had to stop due to allergy issue.
 
 


hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 3/5/2008 10:30 PM (GMT -7)   
hello!
i love the book "eating right for a bad gut".
some good general guidelines but really you have to understand that this disease doesn't really treat anyone the same.

soymilk would be killing me. but that's me.

i had a lot of success cutting out processed foods. like you said, more time consuming and more expensive. but it did cut down my trips to the toilet. i eat meat, veggies, fruits, rice, oatmeal, and even some dairy but i make almost everything myself. even got a bread machine to cut out the strange stuff that is in packaged bread. the biggest difference actually came from just cutting out protein bars!

many have had success with very strict diets like scd, but for me i found it certainly didn't work in proportion to the trouble it was and the slight depression of not being able to eat very much variety. but it may work for you!

the main thing for me was keeping a food journal for a long time (that's how i eliminated soy and eggs) and that made it pretty clear what was good and not so good for me. also keep track of your meds, probiotics, vitamins etc in the journal as well as how many BMs and what their quality is each day.

hope that helps some. good luck and do what works for YOU!
aloha
28, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Asacol, probiotics, ground psyllium husk, fish oil, prenatal

may you live all the days of your life.


winni
Regular Member


Date Joined Jul 2006
Total Posts : 179
   Posted 3/6/2008 12:38 AM (GMT -7)   
I agree that keeping a food journal is VERY helpful. its a pain in the beginning, but it really does not take too long once you get used to it. If I eat anything fried im gone for. And if my is feeling rather deiicate then i try not to eat any sugar, including breads n stuff. Soymilk would hurt me too. I cut out almost all soy from my diet. In fact i started eating fish after being vegan for 10 years. I find that fish, and winter squashes (butternut, acorn etc) are good. and brown rice farina. i also think that probiotics are very helpful and omega 3 oil. I know how it is though, i have 5 roommates in thier 20s. Its pretty hard to be so careful about food when you are surrounded by people who dont have to think about it at all. How i miss 3 a.m. post-bar burritos...
Winni, 24

Diagnosed UC july 2006.
medications: colazal 9 daily, cortifoam 2x daily, 30 mg pred
supplements:calcium, aloe gel, pro-biotics
osteopenia from all this prednisone.
http://www.myspace.com/harshrealmbro


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 3/6/2008 8:06 AM (GMT -7)   
Welcome to the forum.  I think it's awesome you have been able to make all those changes for your health.  The New Eating Right for a Bad Gut is a great resource for diet.   I agree with what the others have said so far.  If you feel ok eating whole grain bread than keep eating it.  I try to eat very little red meat.  I eat Tilapia fish because it's not too expensive usually, I broil it with some seasoned salt and pepper and after put a little lemon juice on it.  I also use Soymilk and it agrees with me.
 
 I drink a lot of green tea because my Arthritis doctor recommended it, he said to drink at least 4 cups a day to fight inflammation.  (but not the bottled ones cause those are more sugar than anything.)  I drink Gatorade occasionally and also Sprite seems to be ok once in a while for me.  I don't think there is that big a difference between the amount of sugar in vitamin water vs. gatorade if you read the labels.   I have most trouble after eating out, which is probably very tough for you as a college student.  The only places I can safely eat out are Subway and sushi places.  It is different for everyone.  It takes time and trial and error to figure out what will work for you individually.  But you are off to a great start. 


Diagnosed with Left-sided Ulcerative Colitis 1995 at 15, Tried: Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Anamantle, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Feb 11) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil,  Tylenol pm, Lyrica for Fibromyalgia started 1/17/08

Post Edited (princesscolon) : 3/6/2008 8:10:22 AM (GMT-7)


ioscan -fnk
New Member


Date Joined Jan 2008
Total Posts : 12
   Posted 3/6/2008 12:53 PM (GMT -7)   
I've had good success eating just 10 or so foods. They are all low/no carb and therefore low/no fiber.
 
Chicken - Sometimes with skin, sometimes without
Spinach with olive oil
eggs cooked in coconut oil
Casinate Protein powder - Casinate protein is lactose free and loaded with cell building Amino Acids
Lamb - Occasionally when my gf cooks it for me
Steak - Occasionally
Regular black coffee
water
 
Thats really about it. Now that I'm in remission (due to colazal and rowasa as well as diet) I dial in my fiber as needed using psylium husk to avoid constipation. Even while flaring, this diet reduced gas and movements greatly. This diet would defintely induce constipation in the average person. There is also less work for the colon to do with these foods. I know it seems strict, but I would try this for a week and I would think your movements/day would come way down. I've been on it for a little less than a year and am afraid to change it up because I'm in remission. 

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2201
   Posted 3/6/2008 4:06 PM (GMT -7)   
You might also check out Breaking the Vicious Cycle and Listen to Your Gut for diets developed specifically for IBD patients.
Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/6/2008 11:25 PM (GMT -7)   
The book "Food and the Gut Reaction" also has recipes and some good info in it as well...although she uses butter in some of her recipies and I don't eat butter (animal fats) I use extra virgine olive oil instead, but there are still some pretty good recipies that you can alter to your needs.

Everyone is different when it comes to food, I myself could eat what I wanted but I choose to avoid things that are bad for my health in general, processed foods, fast-foods/beverages, caffeine, animal fats, processed/refined sugars, sugar substitutes/artificial sugar (I use Stevia or honey), I drink chamomile tea and water only. I eat mainly chicken, salmon, all fruits and veggies, use extra virgine olive oil and fresh herbs, lemons to season my food.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


marguerite
New Member


Date Joined Mar 2008
Total Posts : 8
   Posted 3/10/2008 3:42 AM (GMT -7)   
What about salads, uncooked food...does that work?

birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 3/10/2008 4:59 AM (GMT -7)   
hey cory,
first, i want to stress how different everyone is in terms of diet. i, for example, would be lost without soymilk--but others seem to have a huge problem with it.

that said--here is what helps me.

1) i don't eat complex carbs--for me, this means staying away from flour of any kind (i don't really like potatoes, so that's not a problem.
2) no dairy except for some fat free yogurt (with live, active cultures)
3) as for raw veggies and salads, i can tolerate them, but the more difficult to digest veggies like broccoli and cauliflower work better steamed.
4) deep fried foods are a big no-no for me

generally, i stick to fish, soy products, fruits, veggies and nuts (my vice--i know many have trouble tolerating them)

hope that offers some insight

~k
katie; 23
diagnosed with cecal volvulus, 2006; two colon resections in the same year; diagnosed with colitis 2007; malrotated colon; no cecal valve, removed during surgery; gastritis
Amitriptyline to slow gastric emptying; Forvia; Compazine; 2 TSP of apple cider vinegar before meals (weird, but so far I am a believer in it).


Charmin
Regular Member


Date Joined Feb 2008
Total Posts : 53
   Posted 3/10/2008 10:54 AM (GMT -7)   
Thanks Blueclassring
Hi Charmin here. Just wanted to thank you for the advice of finding a doctor -- i was the undiagnosed / untreated person with "night time bathroom trips" . I had 12 days of hospitalization - morphine (lots) and failed 10 days of IV steroids. Fulminant (sp) pancolitis. Just discharged yesterday. On 40 prednisone and ramicade. Did not tolerate asacol, probably because flare was too bad. almost needed surgery, but made it without a blood transfusion.

Ok so just wanted to say thank you ( I know some didn't think your steroid suggestion was the best). And I also want to know about the SCD diet. I'm on short term disability, so I have time to try to find it on line. I'm a nurse,

I will also end here, because I'm not exactly sure how this forum works and if you will actually see this note.

All the best,
Charmin

Thanks a lot.
blueclassring said...
i have great results with diet and am off drugs. that is just my experience!

blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 3/10/2008 11:07 PM (GMT -7)   
just do a search on google and get the book Breaking the Vicious Cycle.  I have the other book Eating for your bad gut, but it does not work for me

Pharmacy Student, Class of 2009.  Diagnosed 8/99.  Suffered for almost 10 years.  I am currently on the Specific Carbohydrate Diet and am nearing remission.  I feel fantastic!    I have lost so many years to this disease.  I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.  My goal is to open up a pharmacy and take care of my patients(particularly explaining what the drugs do to you), compound special medications, and have a great practice. HAVE YOU CONSIDERED THE SCD DIET? IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!  (In remission since 2/15/08)
Meds 3200 mg Asacol, 2.5 mg Prednisone.  Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications!  For me, diet works...


lad22424
New Member


Date Joined Mar 2008
Total Posts : 13
   Posted 3/11/2008 8:41 AM (GMT -7)   
Hi, I was diagnosed with UC in Aug 08 and I am in remission now, no symptoms, on 2 Lialda a day.
Although my Dr. says that my diet doesn't really matter, I do feel like the diet I have chosen has helped me.

Right after my diagnosis, I was on Rowasa and Lialda, but after the symptoms disappeared (took 2 months), I was ratcheted back to 2 Lialda daily.
I feel like Lialda was a miracle drug for me. In the beginning they put me on a soft diet, no raw fruits or veggies for 2 months.

I have always tried to follow a healthy diet, I haven't eaten red meat since I was 18- I just turned 30. I became a vegetarian after my diagnosis and I limit my fiber intake.

My diet mainly consists of
2 cups of coffee daily
fruit (apples and oranges)
a lot of protein (tofu, veggies burgers, fish, beans)
nuts (a handful of raw almonds or cashews)
dark chocolate
and my vice- on the weekends, some vodka or wine
hummus
limited amounts of yogurt

I think one of the most important things I try to do is eat small meals, so that my body doesn't have to work too hard to digest the food at once.

Besides that, I try to do aerobic activity 5 times a week.

The only problem that I have from time to time is that I have to be careful to drink a lot of water or I'll get dehydration headaches.
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