How much does stress effect your colitis?

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AlabamaBabs
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Date Joined Jul 2007
Total Posts : 172
   Posted 3/5/2008 5:35 PM (GMT -6)   
Do you have flares?  Increase in bm's?  Blood in stool?  Cramps?
 
I have been having 'mini' flares every two weeks (little blood on TP when wiping and sore bottom) and treat with canasa. 
 
I had a really, really bad day at work yesterday and today there is blood in my stool, totally different than the every two week thing. 
 
Just wondering how stress and UC go hand in hand for you, or not.  Thanks for helping!
AlabamaBabs
Pancolitis diagnosed 5/07 and started 2 Lialda/day;
increased to 4 Lialda/day since 8/01/07
Started 40 mg. Prednisone on 9/16/07 and DONE as of 11/26/07!Canasa suppositories 1000mg as needed
 


tjf
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Date Joined Dec 2005
Total Posts : 3238
   Posted 3/5/2008 5:47 PM (GMT -6)   
Stress affects my IBS but never my UC. For example...I'm in a stressful situation...I immediately run to the bathroom w/ D. No other symptoms and after that event it is usually over.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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Co-Moderator UC Forum


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 3/5/2008 7:31 PM (GMT -6)   
honestly, i think stress exacerbates UC but doesn't cause it. because if it did, so many others in our world would be suffering from it.

only 1 million people have IBD, out of a country with 300 million.
Pharmacy Student, Class of 2009.  Diagnosed 8/99.  Suffered for almost 10 years.  I am currently on the Specific Carbohydrate Diet and am nearing remission.  I feel fantastic!    I have lost so many years to this disease.  I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.  My goal is to open up a pharmacy and take care of my patients(particularly explaining what the drugs do to you), compound special medications, and have a great practice. HAVE YOU CONSIDERED THE SCD DIET? IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!  (In remission since 2/15/08)
Meds 3200 mg Asacol, 2.5 mg Prednisone.  Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications!  For me, diet works...


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 3/5/2008 7:33 PM (GMT -6)   
hmmmm, that's interesting and makes sense. I don't have the D. The stools are firm. Makes me think I need to call GI nurse tomorrow and let them know. I had some cramps tonight, too.

added:  Honestly, I agree that if stress caused UC, everyone would have it. 
However, for those of us who do have it, I tend to believe our immune system doesn't function properly whereas others have properly functioning immune systems. 

I want to find a reason for the bleeding and not have to hear I'm not getting better. Guess I always go through this reasoning before calling the GI nurse to "report" that there is more bleeding, etc.  Uuuggghhh! 


AlabamaBabs
Pancolitis diagnosed 5/07 and started 2 Lialda/day;
increased to 4 Lialda/day since 8/01/07
Started 40 mg. Prednisone on 9/16/07 and DONE as of 11/26/07!Canasa suppositories 1000mg as needed
 

Post Edited (AlabamaBabs) : 3/5/2008 6:42:04 PM (GMT-7)


jujub
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Date Joined Mar 2003
Total Posts : 10407
   Posted 3/5/2008 8:16 PM (GMT -6)   
I haven't ever been able to identify a link between stressfuls situations and flaring of my symptoms. There are a few foods that will make me temporarily worse, but don't cause an actual flare. I think this DD just comes and goes as it pleases.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 3/6/2008 1:30 AM (GMT -6)   
I would say you're in a perpetual flare and because you sporatically treat with canasa supps, it's just barely keeping some of the symptoms at bay. Remember, bleeding doesn't only mean flaring. Your symptoms, if low in the rectum, will give you less obvious symptoms than if higher in the rectum and above.

You really would be better off to stay on the Canasa for at least a few weeks...maybe even twice a day and then start to taper.

Regarding stress and flares....I do find that when on maintenance meds...if my stress/anxiety levels are of a deep disturbing and helpless nature...I might start to experience some symptoms (but I do also have IBS...). But, it wouldn't mean I wouldn't see them without the stressful situation....I just might ignore it more when distressed than when I'm not. Sometimes the adrenaline bursts will mask symptoms or keep them at bay somewhat....I tend to have the symptoms in the calm after the storm rather than during.

I would suggest you find more consistency in treating your symptoms and taper to actual maintenance rather than sporatic use of the Canasa.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/6/2008 12:29 PM (GMT -6)   
I'm like Quincy. I do great Uc wise during stressful situations but when things start calming down, that's when my gut decides to rebel on me.

I know about the reasoning too but usually if you put off too long, it can make a flare worse. But I also agree that sporadic use of canasa isn't properly treating the area. I compare that type of treatment to taking aspirin for an aneurism - it may help the pain but it doesn't make it go away. It's best to be consistant with our meds.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Beth75
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Date Joined Jul 2007
Total Posts : 2148
   Posted 3/6/2008 12:42 PM (GMT -6)   
For me, when I am really stressed out about a week later I get stabbing stomach cramps, no fail. does not affect my uc but I get really bad stomach cramps and I wonder why am I getting them and then I remember oooh about a week ago I was really stressed out. I have no clue why is a week later.

My UC does afffect my stress level.
Beth, 32
Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 3/6/2008 6:21 PM (GMT -6)   
Ok, thanks all--I am beginning to get it. :) I thought I was to use the Canasa until symptoms left and so I've been going on and off every two weeks for a couple of days. It makes sense to use them longer and taper. Good news is that I didn't have bleeding today, but did have cramping. I never got around to calling my GI nurse, either.

Venting-wise, just when I "thought" I knew my body, I don't! This week has been the worst. I almost feel as if I don't use the Canasa, I'll be in big trouble next week. I've been very, very tired; that darn hip is killing me at night (unless I take some tylenol and then some more); and gassy with tummy rumblings and more bm's.

Thanks everyone, for commenting!
AlabamaBabs
Pancolitis diagnosed 5/07 and started 2 Lialda/day;
increased to 4 Lialda/day since 8/01/07
Started 40 mg. Prednisone on 9/16/07 and DONE as of 11/26/07!Canasa suppositories 1000mg as needed
 


BTC
Regular Member


Date Joined Dec 2007
Total Posts : 96
   Posted 3/6/2008 7:33 PM (GMT -6)   
I've thought the same as Quincy and Red 34 - I had a very stressful 14 yr. marriage, got divorced and after meeting a wonderful man developed UC while we were on our honeymoon in Bermuda. Go figure. I had no idea what was going on till I got home and was diagnosed. Now stress seems to aggreviate things and it's like a vicious cycle - for instance, I finally got my doc to agree to give me a script for Cortifoam today and now I can't find a pharmacy that has it in stock!!!! Guess I'll be able to start it tomorrow night but it's always something. That's where my breathing exercises and meditation come in - lots of prayers too. That all calms me down and then I add an occasional Xantax.

ithurtsmom
Regular Member


Date Joined Nov 2006
Total Posts : 289
   Posted 3/6/2008 8:43 PM (GMT -6)   
My daughter had been great for over a year. We took her to Disney, she was so excited and out of her mind the whole time we were there. Four days into the trip she started to complain of stomach pain 3 days later before we got on the plane she had a BM with lots of blood. Her Dr. said any type of stress good or bad can cause a flare. Would you agree?
Joan
 
Daughter 5, UC
Pentasa 2X2 daily
Omega 3
Folic Acid 1000mcg.
Fiber
Probiotics
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/7/2008 6:35 AM (GMT -6)   
I'm a believer in extended bad stressful situations can bring a flare on because heck, stress can play a number on anyone's body even a healthy person. But I'm not so sure about the good kind of stress or anticipation "stress". I know that when I'm excited, I do go to the bathroom more but then I'm fine once I'm in a fun situation. It's the anticipation that stirs things up.

As for the Canasa - the proper treatment time and dosing (this can vary depending on flare severity) is to use one canasa at night for 6-8 weeks and taper. This is not to be used as an on the spot treatment but more of long term treatment to help control the symptoms. Once the symptoms are under control, then it can be tapered or stopped. However, my GI has told me once that he has some patients that have to use them every night and have been on them for years because they need the rectal med to control their symptoms. I am assuming that he is talking about his patients that have UP though.

Don't worry though, I've had this DD for 16 years now and there are times that I felt I knew my body only for it to turn around and surprise me!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Mellie
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 3/7/2008 7:09 AM (GMT -6)   
I have had a similar situation to BTC.  Terrible marriage to a jerk, lots of stress, and when I got a divorce and peace of mind, met a great guy, I started getting the rectal bleeding, D, and fatigue.  I was quickly diagnosed with UC but as the years have progressed I have been considered a "mutt" diagnoses between both Crohns and UC. Have any of you folks had Humira before? I am getting put on it this week since the Azulfidine doesnt seem to work anymore.  I am not crazy about the needles, but after getting violated by scopes from both ends redface I guess a needle prick isnt so bad!  I had a bad flare a year ago that caused a LOT of pain and swelling in my ankles,,pyoderma gangrenosum.  Have any of you had that complication of IBD?
Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 3/7/2008 10:39 AM (GMT -6)   
Hi Mellie,

No I have not heard of pyoderma gangrenum from IBD, is that a symptom of another disease or a disease in itself? The reason I ask is because I developed a kidney disease called Minimal Change Disease from taking 5ASA drugs such as sulfasalazine and a side effect of the kidney disease is edema. I would have the proteins in your urine checked just to make sure.
Beth, 32
Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/7/2008 11:01 AM (GMT -6)   
Pyoderma gangrenosum
This condition is marked by pus in the skin associated with deep ulcerations. Like erythema nodosum, pyoderma gangrenosum is most often found on the shins or ankles but sometimes occurs on the arms, too. Beginning as small blisters, these lesions eventually join together to form into deep, chronic ulcers. The disorder is somewhat more common among people with ulcerative colitis (5%) than those with Crohn's disease (1%). Pyoderma gangrenosum often follows a similar course to the pattern of the IBD itself, and may heal as the symptoms of IBD are brought under control. Antibiotics, injections of medications into the ulcers, and topical ointments all may be used as treatments.

http://www.ccfa.org/info/about/complications/skin

I've never had that personally but I hear that it's quite painful.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 3/7/2008 12:00 PM (GMT -6)   
My UC may not have caused my UC, but it's definetely a trigger. I keep a diary and sure enough, when I flare (or have flare like symptoms), it's very soon after something stressful. I keep track of foods I eat, times and volumes when I go, etc.

serendipity24
Regular Member


Date Joined Jan 2008
Total Posts : 56
   Posted 3/8/2008 2:18 AM (GMT -6)   
My stress and UC symptom correlation is one reason I hold out hope that things will get better someday!! I'm currently a vet student taking constant exams, an inconsistent schedule, and little sleep--but another two years and it's all over! Then HOPEFULLY I'll stress less on the job....time will tell.
Rachel

23 yrs old
Diagnosed with UC: March 2004 with probable IBS component

Currently taking:
Asacol 4pills 3x/day
Prograf 5mg/day
(Prograf is my miracle drug! It doesn't seem to be well known, but it's fantastic!)

Previously Tried:
Prednisone (works, but such awful side effects!), 6-MP (gave me acute pancreatitis), Entocort, Cipro (antibiotic), Bentyl, Canasa suppositories, a couple different enemas


UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 3/8/2008 5:37 AM (GMT -6)   
I think chronic stress and anxiety has an impact on the emergence of UC. This is my opinion. Stress over time wreaks havoc on the body and manifests in different ways. Since I have been dx with UC over 10 years ago I have spent a lot of time root causing my behavior in regards to stress etc. It has helped a lot. Investing time and mental energy with a good mental health professional is very beneficial.
 


mrsjewell06
Regular Member


Date Joined Apr 2006
Total Posts : 77
   Posted 3/8/2008 8:21 AM (GMT -6)   
I stress a lot and I think it affects my UC.....the doc said I could have IBS too from stress.....who knows.....

When I was diagnosed with UC.....it was said that stress can affect me.....so now everytime I am not feeling good my mom asks me what I am stressing about?!?!
*~* Beth *~*
Ulcerative Colitis ~ Diag. 2001 (Pancolitis)
~April '06 (Left-Sided Colitis)...right half of my colon "healed!"
Sulfasalazine 3 x 3 times a day
Womens Multi-Vitamin, Iron, & Culturelle Probiotic
Currently: Flaring on and off for about a year :(
Starting Rowasa enema's Monday....hopefully this works!!!



Rhubarb
Regular Member


Date Joined Jul 2007
Total Posts : 21
   Posted 3/8/2008 8:22 PM (GMT -6)   
Stress has definitely been a factor in n=my husband's flares. Looking back over his disease, there is a pattern of stressful times followed by bad flares. Over the years they (the flares) got worse, with a humdinger of a stressful situation putting him into a bad flare about a year ago, eventually leading to his surgery last month. Thankfully, workers comp actually accepted the claim of it being work-related, and have so far covered all medical costs related to it.
Husband diagnosed with ulcerative colitis in 2003(?)
Hospitalized 4 times
Asacol, Imuran, probiotics, fish oil, Vit D, Librax, Zoloft, Metamucil
Surgery scheduled for Feb. 11
2/11/08 - Colon removed! Jpouch surgery will come later - tapering off pred, healing from surgery, and shedding those pounds gained during all the pred induced snacking!
Ileostomy is working well - I think we might be getting our lives back!


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 3/8/2008 8:42 PM (GMT -6)   
Yup, I agree with you all that stress more than the every day 'normal' can upset the body's functioning, as evidenced in our colon--more gas, looser bm's, blood/mucous, rumbly tummies, etc.

This past week was really bad for me at work. Of course, it trickles into other areas: I didn't take time to walk, ate some fast food on the run, etc. I went into the office today to 'catch up' on some things and just came home so crabby! I really have to remember to take time to walk, eat healthy and let go of the office when I come home and stay out of it on the weekends! My poor hubby! He is so good to put up with me.

I appreciate all of the responses as I've learned about taking Canasa more to my benefit and feel supported that stress is making my UC symptoms exacerbated. Thank you all, now we've got to find ways to get de-stressed and do them!
AlabamaBabs
Pancolitis diagnosed 5/07 and started 2 Lialda/day;
increased to 4 Lialda/day since 8/01/07
Started 40 mg. Prednisone on 9/16/07 and DONE as of 11/26/07!Canasa suppositories 1000mg as needed
 


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 3/9/2008 7:03 AM (GMT -6)   
Stress affects my IBS for sure - I feel every fear or shock from having to hurry or being in a conflict, right in my bowel, a physical cramp immediately. This condition has made me a conflict avoider for sure.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics.

 

  • 3 500mg Pentasa a day
  • Probiotic
  • Psyllium powder.


ColitisIsTheWorst
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 3/9/2008 4:37 PM (GMT -6)   
I do accupuncture for the pain associated with my UC, but it also really helps my stress. You have to make sure you have a really good practitioner but it can really help--esp.when i am too sick to exercise. Good luck, Lb

marguerite
New Member


Date Joined Mar 2008
Total Posts : 8
   Posted 3/10/2008 4:33 AM (GMT -6)   
I do not know what canasa is. What is it?

I am not expert and am bewildered by my uc upsets. I read somewhere long ago (an herbal book I think) that uc is caused more by distress than stress. I always believed in that (but am open), as I have a super stressful life for many years...but it seems when I feel overrun...or screwed, or displaced...for example recently I and daughters school made a report to CPS regarding her father. Now, I have a almost 9 year old with this man, saw him for 3 years before birth, for better or for worse, its a sad story but has been nothing but traumatic and stressful from day one. The early part of daughters life I had several flareups. I love parenting, but was getting taken to court on a regular basis until around 2 years ago. Relationship is not good with father, and daughters relationship has been tenuous with him...but I live with it because I have too...major stress...no flareups for 5 years. After the call to CPS, and my just deep seated fears around whats in the future, knowing CPS prob wouldn't do much....I flared...it was - as I considered it - below the belt stress...across the board....too much for me to handle...alas, I bled.

So far I have not been diagnosed with IBS...so I wonder if strictly with uc, if its distress, I would love to hear others feelings/experiences around this idea.

Insofar as accupuncture, I would love to hear more about this...did you have specific points or diagrahms you showed to the accupuncturist? I agree they need to know what they are doing, but I would like to consider that and hear more about your story...I realize I may be totally hijacking a thread and hope I am not...just trying to help and learn, but sorry if I am.
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